Jaded-1
Active member
- Joined
- May 2, 2009
- Messages
- 31
- Reason
- Learn about ALS
- Diagnosis
- 05/2009
- Country
- US
- State
- IL
- City
- Chicago
i have been developing some balance and weight loss over the last 5 mos. I was referred to a top notch neurologist by my endocrinologist (I was referred to endocrinologist due to I was exhibiting signs of autonomic dysfunction)
anyway... after our office visit he said he suspected ALS. I was shocked and had been under the impression the fasciculations caused fatigue and the weight loss. (Muscle is at work and the takes calories and the muscle must be fatiguing).
Well.. I went for the emg last Thursday and he said the emg is in line with his initial diagnosis. He told me I had ALS and I need to get to a clinic for treatment and a second opinion as well.
My emg report..
f wave - normal
sensory ncv - normal
h reflex - normal
emg - abnormal
13 places had.. (everything tested but my L upper/middel cervical psp and upper/lower middle lumbar psp)
fibs/psw 1+
fasc 2+
h.f none
other none
MUAP Amp 1+
MUAP Dur increased
Recruitment pattern Reduced
My Tongue (L and R)
Fib/PSW 2+
Fasc 2+
other none
MUAP Amp Normal
MUAP Dur increased
Recruitment pattern Reduced
I am concerned as this looks like it could be bulbar-onset ALS. He did not specify which ALS onset and wanted me to get to an ALS clinic.
Can this be caused by anything else? Caffeine? Marijuana? Exercise?
Anyone every have a false positive emg? This neurologist has over 38 years of experience and is a 5 star and has one top doctor honors 2x in the past 10 years. (saw awards on his wall).
anyway... after our office visit he said he suspected ALS. I was shocked and had been under the impression the fasciculations caused fatigue and the weight loss. (Muscle is at work and the takes calories and the muscle must be fatiguing).
Well.. I went for the emg last Thursday and he said the emg is in line with his initial diagnosis. He told me I had ALS and I need to get to a clinic for treatment and a second opinion as well.
My emg report..
f wave - normal
sensory ncv - normal
h reflex - normal
emg - abnormal
13 places had.. (everything tested but my L upper/middel cervical psp and upper/lower middle lumbar psp)
fibs/psw 1+
fasc 2+
h.f none
other none
MUAP Amp 1+
MUAP Dur increased
Recruitment pattern Reduced
My Tongue (L and R)
Fib/PSW 2+
Fasc 2+
other none
MUAP Amp Normal
MUAP Dur increased
Recruitment pattern Reduced
I am concerned as this looks like it could be bulbar-onset ALS. He did not specify which ALS onset and wanted me to get to an ALS clinic.
Can this be caused by anything else? Caffeine? Marijuana? Exercise?
Anyone every have a false positive emg? This neurologist has over 38 years of experience and is a 5 star and has one top doctor honors 2x in the past 10 years. (saw awards on his wall).