chris_uk
Distinguished member
- Joined
- Aug 30, 2008
- Messages
- 111
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- State
- CL
- City
- Stockton-On-Tees
Hi all
Am having a really bad time of things, i am just living a nightmare here. Last 2 weeks my symptoms have got 100% worse, my leg twitching is beyond a joke now all down the calf, arches, instep, easily 300 times a minute. When i am laying down i can feel my whole calf muscle contracting for about 3 seconds and then letting go.
Worse part is the pain when i walk, calf goes tight, and arches cramp up, really sore to touch after i walk anywhere of great length.
got my next neuro appointment on 28th July, its more of just a follow up really but tried to fetch it forward only to be told that i have to get it done through my doctor, so going to see him next week but he is not very sympathetic so i doubt he will do anything.
keep studying my calfs in mirror, worse one is 1/2" smaller but i guess it may have always been like that.
When i walk i get a stabbing feeling in my calf that makes me stop, its the bloody pain ! i cant cope anymore with it. Dont want to take anything for it because then i feel like i will be masking it and living a lie.
Do i have weakness? i really dont know, yes i can run but in agony, i can walk but in pain, i can run up stairs but again in pain. I have been twitching 7 1/2 months now and according to some litterature people have read on BFS if you have ALS and its starts with twitching the average time for onset of weakness is between 5 - 10 months.
I really dont want to upset anyone on here with yes another down beat post but i am alone tonight my wife is out and i am just in a bad place.
Chris
Am having a really bad time of things, i am just living a nightmare here. Last 2 weeks my symptoms have got 100% worse, my leg twitching is beyond a joke now all down the calf, arches, instep, easily 300 times a minute. When i am laying down i can feel my whole calf muscle contracting for about 3 seconds and then letting go.
Worse part is the pain when i walk, calf goes tight, and arches cramp up, really sore to touch after i walk anywhere of great length.
got my next neuro appointment on 28th July, its more of just a follow up really but tried to fetch it forward only to be told that i have to get it done through my doctor, so going to see him next week but he is not very sympathetic so i doubt he will do anything.
keep studying my calfs in mirror, worse one is 1/2" smaller but i guess it may have always been like that.
When i walk i get a stabbing feeling in my calf that makes me stop, its the bloody pain ! i cant cope anymore with it. Dont want to take anything for it because then i feel like i will be masking it and living a lie.
Do i have weakness? i really dont know, yes i can run but in agony, i can walk but in pain, i can run up stairs but again in pain. I have been twitching 7 1/2 months now and according to some litterature people have read on BFS if you have ALS and its starts with twitching the average time for onset of weakness is between 5 - 10 months.
I really dont want to upset anyone on here with yes another down beat post but i am alone tonight my wife is out and i am just in a bad place.
Chris