olgaschorle
New member
- Joined
- Jan 7, 2009
- Messages
- 3
- Reason
- Other
- Country
- GE
- State
- Baden-Würtemmberg
- City
- Bruchsal
Hallo, I am 27 female and live in Germany. Sorry for my english. I have the same question for you? Is this ALS?
This is my story:
2005 - headache, facial numbness left
2006 - back and facial pain
2007 - facial pain, cramps, lump in throat (only in the left side of my body). The first visit by neuro. The doctor said, that it was all right.
2008 - yawning, lump in my throat, cramps, pain (face, arm,shoulder), rest legs, numbness and twiching.
MRI - ok.
I was by 5 neuros. All said, that it was all richt with my reflexes and I had not do EMG, but I wanted to do this. EMG was made in my arm and leg - clear.
I have a lot of pain, cramps and this lump feeling in my throat is awful. I can´t sleep I am fatigued. I think, that I have bulbar form of ALS. I have this lump in my throat and my throat is "burning". The cramps are so painful. I take neurontin, but it doesn`t help.
The doctors say, I am to young to have ALS and I have my simptoms 4 years and it is to long. How long does it take by you, before the weakness and atrophy come?
This is my story:
2005 - headache, facial numbness left
2006 - back and facial pain
2007 - facial pain, cramps, lump in throat (only in the left side of my body). The first visit by neuro. The doctor said, that it was all right.
2008 - yawning, lump in my throat, cramps, pain (face, arm,shoulder), rest legs, numbness and twiching.
MRI - ok.
I was by 5 neuros. All said, that it was all richt with my reflexes and I had not do EMG, but I wanted to do this. EMG was made in my arm and leg - clear.
I have a lot of pain, cramps and this lump feeling in my throat is awful. I can´t sleep I am fatigued. I think, that I have bulbar form of ALS. I have this lump in my throat and my throat is "burning". The cramps are so painful. I take neurontin, but it doesn`t help.
The doctors say, I am to young to have ALS and I have my simptoms 4 years and it is to long. How long does it take by you, before the weakness and atrophy come?