GGKK
Active member
- Joined
- Jan 27, 2009
- Messages
- 63
- Reason
- Learn about ALS
- Country
- BR
- State
- ES
- City
- Vitoria
Hello,
Sorry for the long message but I would like an opinion.
- Year 2005:
I was 29 years old. On april I ran my first marathon. After the marathon I gave me a break for rest and travel and stopped the exercises. One month later I felt muscle twitches in my rigth knee. As my father has neurophaty peripherical, serching on internet about neurological conditions to help him, I knew what twicthes could mean then I was scared and went to a doctor specialized in neuromuscular diseases (ALS).
He did a neuro clinical exams and the results were all normal. After a few days the fasciculations widespreaded (legs, shoulders, forarms, abdomen, back,...), not constants (just rapid fires) and not everyday. On june 2005 I back to my doctor and after I persisted a lot he did an EMG (4 limbs). Everything was normal. The fasciculations didn't stop and on september I back to my doctor again. He did all clinical exams again, all normal and after I persisted a lot he did an another EMG. All normal again (just rare fasciculations was showed but he told me it is normal). Then I put my worries out of my mind.
- Year 2009:
I am 32 years old. Since 2005 (marathon) I stopped my regular/intense exercises, my weight up from 220 lbs to 275 lbs. Nowdays I just practice some jogging and playing tennis (once a week). The widespread fasciculations have never stopped completely since 2005. Mostly when my muscles are at rest.
On last december I stopped my exercises and ate a lot (gained 8 lbs). Together with it came some vague pains, never in the same place (sometimes in foot, sometimes in calf, sometimes in arm, sometimes in leg,...). Mostly when when I am at rest (mainly after I wake up). When I am moving me, almost always no vague pains!
No weakness or atrophy (that I noticed...).
1) Should I be worried with these vague pains? It has been happening every day...not every time, they come and go!
2) And about the widespread twitches for almost 4 years? Is it normal?
3) Is it normal fasciculations in quadriceps? I feel it sometimes (right and left leg)...and in the other places, of course.
4) The fact of gain/lose weight in a small period of time could increase the fasciculations and start these vague pains?
5) And about anxiety? I back to think about it everyday (google...internet...) again like year 2005!
6) I called to my neurologist (the same I went on 2005) and he said it is not necessay an appointment due these things. Is it reasonable?
An the last one...if my doctor (specialized in neuromuscular diseases) says me I am fine just doing clinical exams, without EMG, could I put my worries out of my mind?
Thank you for your time, all the best for you!
Sorry for the long message but I would like an opinion.
- Year 2005:
I was 29 years old. On april I ran my first marathon. After the marathon I gave me a break for rest and travel and stopped the exercises. One month later I felt muscle twitches in my rigth knee. As my father has neurophaty peripherical, serching on internet about neurological conditions to help him, I knew what twicthes could mean then I was scared and went to a doctor specialized in neuromuscular diseases (ALS).
He did a neuro clinical exams and the results were all normal. After a few days the fasciculations widespreaded (legs, shoulders, forarms, abdomen, back,...), not constants (just rapid fires) and not everyday. On june 2005 I back to my doctor and after I persisted a lot he did an EMG (4 limbs). Everything was normal. The fasciculations didn't stop and on september I back to my doctor again. He did all clinical exams again, all normal and after I persisted a lot he did an another EMG. All normal again (just rare fasciculations was showed but he told me it is normal). Then I put my worries out of my mind.
- Year 2009:
I am 32 years old. Since 2005 (marathon) I stopped my regular/intense exercises, my weight up from 220 lbs to 275 lbs. Nowdays I just practice some jogging and playing tennis (once a week). The widespread fasciculations have never stopped completely since 2005. Mostly when my muscles are at rest.
On last december I stopped my exercises and ate a lot (gained 8 lbs). Together with it came some vague pains, never in the same place (sometimes in foot, sometimes in calf, sometimes in arm, sometimes in leg,...). Mostly when when I am at rest (mainly after I wake up). When I am moving me, almost always no vague pains!
No weakness or atrophy (that I noticed...).
1) Should I be worried with these vague pains? It has been happening every day...not every time, they come and go!
2) And about the widespread twitches for almost 4 years? Is it normal?
3) Is it normal fasciculations in quadriceps? I feel it sometimes (right and left leg)...and in the other places, of course.
4) The fact of gain/lose weight in a small period of time could increase the fasciculations and start these vague pains?
5) And about anxiety? I back to think about it everyday (google...internet...) again like year 2005!
6) I called to my neurologist (the same I went on 2005) and he said it is not necessay an appointment due these things. Is it reasonable?
An the last one...if my doctor (specialized in neuromuscular diseases) says me I am fine just doing clinical exams, without EMG, could I put my worries out of my mind?
Thank you for your time, all the best for you!
