Unread 12-30-2008, 06:24 PM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2008
City: Sierra Vista
State: Arizona
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 1
nexus is on a distinguished road
nexus nexus is offline
New Member (Say Hi)
Join Date: 2008
City: Sierra Vista
State: Arizona
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 1
nexus is on a distinguished road
Default ALS-like symptoms, but not 100% sure

Hello,

First I just wanna say I'm so glad a forum like this exists; it sure beats going to doctors every time a new symptom begins. Speaking of symptoms, here are mine as best I can describe them:

Twitching of lower-left eyelid, usually occurs once every 30-60 minutes, but if I'm tired or sleep deprived it twitches a lot more often (sometimes I stay awake for 40+ hours; more on that below). The twitching first began maybe a couple years ago, but it only occurred seldom at first so I really didn't think much of it. Driving becomes a little scary when this happens, as it makes my left eye pulsate. The twitches last for about 20-30 seconds then stop again.

Hypothyroidism. About 8 months ago I found out from a blood test that my thyroid hormone levels were off so my doc put me on 50mcg levothyroxine once daily. Before I started the medication, I would feel a bulge in my throat that I became very self conscious about, which also lead to sleep issues as my breathing was more labored. The bulge in my throat first began about 10-11 months ago, and after the thyroid meds kicked in (after 4+ weeks) the bulge seemed to go away, but now it's back even worse so I might just need an adjustment of the levothyroxine dosage.

Excessive saliva production. First started around the same time as the bulge in my throat (10-11 months ago), however even when the bulge disappeared the saliva problem remained, and still remains today. When I'm not sleeping the saliva issue is not that bad, however when I lie in bed my throat constantly fills up with mucous that I have to clear every couple of minutes. I have been to an ENT doctor specifically for this issue and so far no answers.

Slight dizziness, at all times. I can only describe this as a light fog that's constantly with me in my head, with varying degrees of intensity. First started around the same time as the eyelid twitching (couple years ago). The term dizziness is not quite right since it's not a full-blown impairment really, but I certainly don't seem to have the same mental clarity that I used to.

Muscle stiffness and weakness. This is the most recent symptom and it only started a few weeks ago. Not all muscles are affected; right now I only have problems with my jaw and facial muscles, and occasionally my left wrist. I still can lift weights, but I have to take more precautions because of my left wrist. Chewing food has become slightly more difficult, and my face and jaw muscles feel stiff all the time.

That's it for my symptoms. My diet is well-rounded and I take multivitamins everyday, but I am a little overweight. If anyone needs more information from me, please let me know. These symptoms seem to fit well with ALS, but I just wanted to get some opinions from others before proceeding further.

Thank You in advance to anyone who is kind enough to respond
nexus is offline  
Unread 12-30-2008, 11:34 PM #2 (permalink)
planningguy's Avatar
Senior Member
 
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 567
planningguy is on a distinguished road
planningguy planningguy is offline
Senior Member
planningguy's Avatar
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 567
planningguy is on a distinguished road
Default

Nexus,

I'm not a doctor, nor diagnosed with ALS, but a couple of comments.

Benign twitching around the eye is extremely common, and is often related to stress. It has been jokingly referred to as the "grad school twitch,' because it is very common in stressed, sleep deprived young professionals.

It seems to me that you should work with the Dr. on the obvious, which is your thyroid. Muscle and joint fatigue and pain are common symptoms of thyroid problems, and if your symptoms are getting worse (especially the lump which strikes me as a red flag), or not improving, you need to let your doctor know.

Best of luck,

Robert
planningguy is offline  
Unread 01-01-2009, 12:56 AM #3 (permalink)
lydia's Avatar
Senior Member
 
Join Date: 2007
City: buffalo
State: ny
Country: US
Interest: I hope I am NOT in the process of being diagnosed
Posts: 683
lydia is on a distinguished road
lydia lydia is offline
Senior Member
lydia's Avatar
Join Date: 2007
City: buffalo
State: ny
Country: US
Interest: I hope I am NOT in the process of being diagnosed
Posts: 683
lydia is on a distinguished road
Default

Nexus,

I wanted to piggy-back on Robert's comments regarding twitches. Being really busy, over-extended, and sleep deprived practically guarantee a facial twitch, especially the one around the eyes. In grad school we wore those twitches like badges of honor.

And every doctor I have seen since trying to figure out my own symptoms has immediately asked about thyroid function. It seems like such a likely culprit I would start there-

Wishing you the best of luck figuring this all out (and oh look at the time-a happy new year too!)

Lydia
lydia is offline  
Closed Thread

Tags
als, back, bed, breathing, diet, driving, food, go away, information, lead, lift, meds, problem, problems, saliva, sleep, stiffness, symptom, symptoms, test, twitches, wanted, weakness, wrist



Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Actual ALS symptoms, or just me looking for symptoms that aren't there? cmejia1115 Do I Have ALS? Is This ALS? 1 09-16-2015 01:52 PM
Bulbar symptoms? Plus other symptoms reallyworriedguy Do I Have ALS? Is This ALS? 94 11-04-2010 11:35 AM


All times are GMT -5. The time now is 03:32 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016