possible als diagnosis

[Al]

I meant no disrespect to you for your abilities or any disabilities buschclub. We have had a few people post here with No issues other than lazyness that write whole pages with no breaks. A lot of people with ALS as you will find out if you stay around long enough have eye trouble. Blurred vision, double vision, watery eyes, dry eyes. I'm sorry but a post like yours is hard for some of us to read. You are new, you said nothing about a problem. How was I supposed to know? I asked you to help the members out by using a few spaces and periods. I certainly wasn't trying to dump on you. Sorry you felt that way.

AL.

[JAKE]

Al,

I understand what you were saying and you did it in a nice way. Hope you are doing well buddy. Blessings on you and your family.

[buschclub]

hello to all i understand what al was doing. i have been under alot of stress big deal i know everyone has it. this disease i am dealing with seems to be taking more every day and i have good days and bad one's too. thanks for everyone's time and comments.

[CindyM]

Hi Buschclub and welcome to the forum. (I'm glad we cleared up that little misunderstanding.) Write and tell us more about your diagnosis when you feel up to it. Cindy

[crystalkk]

Buschclub,

Sorry to here about that possible dx. I am looking to go to hopkins for an opinion.
How was dr rothmann emg? Did he do many muscles and many stick each muscle in more than one spot?
Did he do all 4 limbs, paraspinals, and bubular area (tongue ect.,).

[buschclub]

Hello again i have not posted in some time do to the quest for a final diagnosis. The final diagnosis is slow limb onset als. I just took a pulmanary funtion test which was not very good. maximal expertory pressure was 29% of normal the maximal inspitory pressure was 79%. My diagnosis has been a tough one in the sense i have many atypical symptoms of als like vascular dementia, neurogenic bladder and mild to moderate pain. emgs and there have been many are not perfect for als but suggestive of als. neurological exam show diffuse atrophy entire body which started in my left hand and then spread sporadic fasciculations, hyperactive reflexes with clonus hoffmans sign postive.I have dysphasia but can still walk. what the doctors at hopkins and mayo say is that i have a rare slow form and some atypical features but all other mimics have been ruled out and progression has been slow but steady. just wondering any one out there diagnosed with als in there twenties with the sporadic form. also any info from fellow amyotrophics would be great. ps. i hope every one got a chance to read lou gerhigs letters they just released they really touched me.
thanks

[buschclub]

oh and yes rothstein is good he is great at diagnosing als though he will over see the exam a fellow will perform it. and yes he did all 4 limbs and paraspinals not fun reguardless of who is doing it.

[olly]

hi buschclub.
good to hear from you again.
i am sorry to read about your dx of als,its good you have a very slow progressing form but still at your age it must be so hard to deal with.
please continue to post so we can offer you any support we can.

[millinero]

really sorry to hear about ur dx Buschclub......i know at ur age its real hard to deal with something of this stature...please do write in so that we can know how u are doing and can support u to the best of our ability.

take care

Arya.

[handinhand]

So sorry to hear about your dx. We are here for you anytime??? Keep coming back.It helps a lot! I am so sad that you are going through this at such a young age. I just hope and pray that your progression will have a hard time keeping up with you... Hugs Linda