The twitches have moved lower, to my feet but they are still in my legs. My legs have been weaker and my FEET have been bothering me, my ankles hurt and feel weak when I walk and the fasciculations are in my feet and are almost constant. The insides of my feet (the arch?) are the most "twitchy". As I type this I am watching my big toe do it's own dance......omg...what is going on? I admire so many of you who have had to wait so long. I am afraid that if it were to be ALS, which we all know it's just PNS, that the diagnosis would take too long to get on rilutek and possibly even lithium?
This PNS is really sucking.
This PNS is really sucking.