L4dybugg
Distinguished member
- Joined
- Sep 4, 2008
- Messages
- 148
- Country
- US
- State
- TN
- City
- Knoxville
Andy had his Swallowing & Pulmonary Function test done today. We did not get good news. :sad:
On the swallowing test:
He failed every sip that he had to take from start to finish. She said that the speed of his swallowing was 3 times slower than what it should be, and that his swallowing muscles was 50% weakened.
she put him on a special diet as follows:
This is a Dysphagia Advanced Diet
Description: The dysphagia mechanical II or dysphagia mechanical soft diet does not allow excessively dry, crumbly, chewy, or stringy foods.
Cereal and breads: Avoid hard rolls, popcorn, cereals containing nuts or dry fruit, and granola. No cornbread or dry breads.
Eggs: Eggs can be eaten only if they are soft-cooked or scrambled, or if they are made in egg salad.
Meats: Meats that are ground or chopped soft with gravy; moist fish; soft to chew casseroles.
Dairy: Yogurt, cottage cheese and other soft cheeses.
Starches and vegetables: All soft cooked vegetables. Avoid raw vegetables and those with a stringy texture. *No shredded lettuce*
Fruits: Fruits can be eaten if they are very ripe and well diced; they are to be eaten without the seeds or the skin.
Desserts: Gelatin, ice cream, puddings, and sherbet are allowed.
Beverages: The physician will specify if either thick or thin liquids are allowed on this diet. (at this point he can have all beverages)
(Hubby is not too happy about going on this diet)
The swallowing Precautions she gave:
Diet: Dysphagia Advanced
Liquids: Thin Liquids
Meds: With pudding, applesauce or yogurt and plenty of water
No crunchy or chewy foods (example: lettuce, raw vegetables, caramel, chewy meats, ect).
No mixed liquid/solid consistencies (example: cereal with milk, soups with chunks, juicy fruits, etc)
No kernals (example: vegetables with hulls (corn, peas), rice, grainy breads or hard rolls, popcorn, nuts, etc.)
Eat slowly- pause between bites
Upright 90* for all meals
small bites, small sips
Double swallows
No straws
Alternate liquids with solids
I asked her if this was Bulbar onset, she seems to think so, she was very nice and told him to call her if anything changes. And to come back whenever he wanted for retesting later.
For the Pulmonary Function test:
As far as the lungs, there is no obstructions, no need for any meds on the lungs. The lungs itself are fine, but he said that Andy did not have much power or strength, and seems to think it is from weak muscles.
Here is the report we have: Hope you can make it out, lol.
Spirometry:
FVC liters PRED 4.18 Pre-RX Best 4.28 %PRED 103 POST-RX Best 4.26 % PRED 102 % chg -0
FEV1 Liters PRED 3.46 PRE-RX 3.04 %PRED 88 POST-RX BEST 2.96 %PRED 86 %chg -2
FEV1/FVC % PRED 83 PRE-RX 71 POST-RX BEST 70
FEF25-75% L/sec PRED 3.72 PRE-RX 2.19 % PRED 59 POST-RX BEST 1.95 %PRED 52 %chg -11
FEF50% L/sec PRED 4.45 PRE-RX 3.38 %PRED 76 POST-RX BEST 3.51 %PRED 79 % chg 4
PEF L/sec PRED 8.33 PRE-RX 4.77 %PRED 57 POST-RX BEST 4.59 %PRED 55 %chg -4
MVV L/min PRED 151 PRE-RX BEST 93 %PRED 62 POST-RX BEST 90 % PRED 60 %chg -3
Lung Volumes:
TLC Liters PRED 5.99 PRE-RX BEST 5.29 %PRED 88
RV Liters PRED 1.77 PRE-RX BEST 1.06 %PRED 60
RV/TLC % PRED 31 PRE-RX BEST 20
FRC N2 Liters PRED 2.81 PRE-RX BEST 1.47 %PRED 52
VC Liters PRED 4.18 PRE-RX BEST 4.23 %PRED 101
Diffusion:
DLCO mL/mmHg/min PRED 28.8 PRE-RX BEST 29.4 %PRED 102
DL Adj mL/mmHg/min PRED 28.8 PRE-RX BEST 29.2 %PRED 101
DLCO/VA mL/mHg/min/L PRED 4.32 PRE-RX BEST 5.44 %PRED 126
DL/VA Adj mL/mHg/min/L PRE-RX BEST 5.42
VA Liters PRE-RX BEST 5.39
Flow:
There is a graph here, and he did not get above 4 here.
This all will get back to his neuro maybe today sometime, so I hope that this will speed up him getting to go to Nashville. I was not surprised of the swallowing test, knowing how he has been doing, but I was surprised at how bad it is.
So any input at all is welcomed. Mainly keep us in your prayers, and thanks everyone for your friendship, it really means alot.
Hugs Lori
On the swallowing test:
He failed every sip that he had to take from start to finish. She said that the speed of his swallowing was 3 times slower than what it should be, and that his swallowing muscles was 50% weakened.
she put him on a special diet as follows:
This is a Dysphagia Advanced Diet
Description: The dysphagia mechanical II or dysphagia mechanical soft diet does not allow excessively dry, crumbly, chewy, or stringy foods.
Cereal and breads: Avoid hard rolls, popcorn, cereals containing nuts or dry fruit, and granola. No cornbread or dry breads.
Eggs: Eggs can be eaten only if they are soft-cooked or scrambled, or if they are made in egg salad.
Meats: Meats that are ground or chopped soft with gravy; moist fish; soft to chew casseroles.
Dairy: Yogurt, cottage cheese and other soft cheeses.
Starches and vegetables: All soft cooked vegetables. Avoid raw vegetables and those with a stringy texture. *No shredded lettuce*
Fruits: Fruits can be eaten if they are very ripe and well diced; they are to be eaten without the seeds or the skin.
Desserts: Gelatin, ice cream, puddings, and sherbet are allowed.
Beverages: The physician will specify if either thick or thin liquids are allowed on this diet. (at this point he can have all beverages)
(Hubby is not too happy about going on this diet)
The swallowing Precautions she gave:
Diet: Dysphagia Advanced
Liquids: Thin Liquids
Meds: With pudding, applesauce or yogurt and plenty of water
No crunchy or chewy foods (example: lettuce, raw vegetables, caramel, chewy meats, ect).
No mixed liquid/solid consistencies (example: cereal with milk, soups with chunks, juicy fruits, etc)
No kernals (example: vegetables with hulls (corn, peas), rice, grainy breads or hard rolls, popcorn, nuts, etc.)
Eat slowly- pause between bites
Upright 90* for all meals
small bites, small sips
Double swallows
No straws
Alternate liquids with solids
I asked her if this was Bulbar onset, she seems to think so, she was very nice and told him to call her if anything changes. And to come back whenever he wanted for retesting later.
For the Pulmonary Function test:
As far as the lungs, there is no obstructions, no need for any meds on the lungs. The lungs itself are fine, but he said that Andy did not have much power or strength, and seems to think it is from weak muscles.
Here is the report we have: Hope you can make it out, lol.
Spirometry:
FVC liters PRED 4.18 Pre-RX Best 4.28 %PRED 103 POST-RX Best 4.26 % PRED 102 % chg -0
FEV1 Liters PRED 3.46 PRE-RX 3.04 %PRED 88 POST-RX BEST 2.96 %PRED 86 %chg -2
FEV1/FVC % PRED 83 PRE-RX 71 POST-RX BEST 70
FEF25-75% L/sec PRED 3.72 PRE-RX 2.19 % PRED 59 POST-RX BEST 1.95 %PRED 52 %chg -11
FEF50% L/sec PRED 4.45 PRE-RX 3.38 %PRED 76 POST-RX BEST 3.51 %PRED 79 % chg 4
PEF L/sec PRED 8.33 PRE-RX 4.77 %PRED 57 POST-RX BEST 4.59 %PRED 55 %chg -4
MVV L/min PRED 151 PRE-RX BEST 93 %PRED 62 POST-RX BEST 90 % PRED 60 %chg -3
Lung Volumes:
TLC Liters PRED 5.99 PRE-RX BEST 5.29 %PRED 88
RV Liters PRED 1.77 PRE-RX BEST 1.06 %PRED 60
RV/TLC % PRED 31 PRE-RX BEST 20
FRC N2 Liters PRED 2.81 PRE-RX BEST 1.47 %PRED 52
VC Liters PRED 4.18 PRE-RX BEST 4.23 %PRED 101
Diffusion:
DLCO mL/mmHg/min PRED 28.8 PRE-RX BEST 29.4 %PRED 102
DL Adj mL/mmHg/min PRED 28.8 PRE-RX BEST 29.2 %PRED 101
DLCO/VA mL/mHg/min/L PRED 4.32 PRE-RX BEST 5.44 %PRED 126
DL/VA Adj mL/mHg/min/L PRE-RX BEST 5.42
VA Liters PRE-RX BEST 5.39
Flow:
There is a graph here, and he did not get above 4 here.
This all will get back to his neuro maybe today sometime, so I hope that this will speed up him getting to go to Nashville. I was not surprised of the swallowing test, knowing how he has been doing, but I was surprised at how bad it is.
So any input at all is welcomed. Mainly keep us in your prayers, and thanks everyone for your friendship, it really means alot.
Hugs Lori