Old 10-08-2008, 07:32 PM #1 (permalink)
sdsyd's Avatar
Member
 
Join Date: 2008
City: piedmont
State: sd
Country: US
Interest: undiagnosed limbo!
Posts: 330
sdsyd is on a distinguished road
sdsyd sdsyd is offline
Member
sdsyd's Avatar
Join Date: 2008
City: piedmont
State: sd
Country: US
Interest: undiagnosed limbo!
Posts: 330
sdsyd is on a distinguished road
Default Friends-face Fasics..

Hey guys. Though I am dealing with things pretty well, today I got my first real fasic in my face. MY Dx is suspect MND- and have been having fasics for 1 year. I have had small twitches in my face before, but this was a nasty one. It seems like when fasics start in a new area they are pretty intense. Oh please tell me this is just a random one! All of the others are mostly in places easily covered so people don't see.

I know I sound wimpy in saying I can deal with all the things I can hide, but this is really bugging me.

Please, anyone with face fasics please tell me how you deal with it?

P.S. On a POSITIVE note... I started the Provigil today and liked it. Aside from the mild headache (like Robert mentioned) it really gave my energy a boost. Didn't help the walking or strength though- LOL.

Thanks!

Cindy
sdsyd is offline  
Old 10-08-2008, 07:50 PM #2 (permalink)
Banned
 
Join Date: 2008
City: Baltimore
State: Maryland
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 31
JasonGoodMeasure has a little shameless behaviour in the past
JasonGoodMeasure JasonGoodMeasure is offline
Banned
Join Date: 2008
City: Baltimore
State: Maryland
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 31
JasonGoodMeasure has a little shameless behaviour in the past
Default

Greetings sdsyd,

I'm going to send you a private message.
JasonGoodMeasure is offline  
Old 10-08-2008, 07:53 PM #3 (permalink)
lydia's Avatar
Senior Member
 
Join Date: 2007
City: buffalo
State: ny
Country: US
Interest: I hope I am NOT in the process of being diagnosed
Posts: 683
lydia is on a distinguished road
lydia lydia is offline
Senior Member
lydia's Avatar
Join Date: 2007
City: buffalo
State: ny
Country: US
Interest: I hope I am NOT in the process of being diagnosed
Posts: 683
lydia is on a distinguished road
Default

Cindy,

When I was in graduate school we all developed facial "tics" and joked about it..."you are not really a grad student unless you have facial tics...hahaha" It was a badge of honor: look how stressed I am..I work harder than you...my advisor is more of a bear than yours....etc.. We were proud.

FAST FORWARD to the present: only recently have my fasics gone to my face, and believe me, they are different than those things I called facial tics. Seem more violent, larger, last longer. They are pretty darn noticeable...mine are around my lips and chin.

Well, today a student shared with me that her group mates are stressing her out so much that she has developed an eyelid tic. I told her my grad school facial tic memory and she and the other students laughed and laughed (it wasn't that funny, but you know-they have to brown nose). So I thought, why not just go for it, I already spit all over my students because of my drool/salivia issue...why not share this as well...and I shared with them that this semester is already so crazy for me that I too have developed a facial tic...we promised to look for each other's tics. To compare and contrast (reference to recent assignment). That I could gauge reactions to course assignments by looking at their faces. If they were twitching like crazy maybe I could tone my expectations down a little, etc....We had such a good laugh, it felt great. I feel better, not so embarrassed by it, and my students can connect with me on a different level. So all is good. Probably doesn't help you, but the timing of your post was amazing. I can only say-you just have to try and laugh. Personally, I find the fasics in my ass alot more embarrassing.
lydia is offline  
Old 10-08-2008, 07:58 PM #4 (permalink)
sdsyd's Avatar
Member
 
Join Date: 2008
City: piedmont
State: sd
Country: US
Interest: undiagnosed limbo!
Posts: 330
sdsyd is on a distinguished road
sdsyd sdsyd is offline
Member
sdsyd's Avatar
Join Date: 2008
City: piedmont
State: sd
Country: US
Interest: undiagnosed limbo!
Posts: 330
sdsyd is on a distinguished road
Default

ha ha ha Lydia. My ass jiggles violently as well. But lately I've been sitting on it alot and the only one who sees it bare is poor Dan. The only other violent ones are in my quads. A dose of humor is always welcome.
sdsyd is offline  
Old 10-08-2008, 09:26 PM #5 (permalink)
Zaphoon's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Springfield
State: Missouri
Country: US
Diagnosed: 08/2011
Interest: I have been diagnosed with UMND/PLS.
Posts: 2,890
Zaphoon is on a distinguished road
Zaphoon Zaphoon is offline
Extremely Helpful Member
Zaphoon's Avatar
Join Date: 2008
City: Springfield
State: Missouri
Country: US
Diagnosed: 08/2011
Interest: I have been diagnosed with UMND/PLS.
Posts: 2,890
Zaphoon is on a distinguished road
Default Jaw Muscles

My jaw muscles are almost constantly fatigued. The fascics are very small but constant, as they are in my calves but at this point, I've not been diagnosed with anything. The first neuro passed "suspected NMD" to the next guy but he disagrees. Good for me!

Zaphoon
Zaphoon is offline  
Old 10-08-2008, 11:24 PM #6 (permalink)
planningguy's Avatar
Senior Member
 
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 567
planningguy is on a distinguished road
planningguy planningguy is offline
Senior Member
planningguy's Avatar
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 567
planningguy is on a distinguished road
Default

Lydia, the grad school facial twitching. Your comment brought back memories. My face's favorite spot used to be my left eyebrow

Cynthia, I'm glad the Provigil is helping. I wish I had some advice on the facial fasiculation

Robert
planningguy is offline  
Old 10-09-2008, 04:37 AM #7 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
Default hi cindy and all.

i have bulbar symptoms and believe me you can tell the difference between harmless tic,s and real spasms.
i have had facial spasms since the start of the year,in my lower face/jaw line only.
harmless tic,s or spasms tend to effect round the eyes/upper face.
the spasms on the right side have been bad,to the point were my mouth is distorted and pulled inwards to the left.
these are painfull and very distressing not like tic,s.
i did get fassic,s in my right jaw line a while back.
also i get sudden jaw spasms/clonus were the jaw goes stiff and slams shut suddenly,this is not good for the tongue and teeth
eating is a chore,i have to keep stopping during eating to rest as my jaw/lower face is so tired.
i though the body symptoms were bad enough till i started with bulbar symptoms.
i hope this helps a bit.
olly is offline  
Old 10-09-2008, 08:32 AM #8 (permalink)
sdsyd's Avatar
Member
 
Join Date: 2008
City: piedmont
State: sd
Country: US
Interest: undiagnosed limbo!
Posts: 330
sdsyd is on a distinguished road
sdsyd sdsyd is offline
Member
sdsyd's Avatar
Join Date: 2008
City: piedmont
State: sd
Country: US
Interest: undiagnosed limbo!
Posts: 330
sdsyd is on a distinguished road
Default

Hi guys. You know nothing uusally upsets me for too long. I am here drinking my 1 cup of coffee. I'm ok now. I think Olly may have been right. It wasn't painful but forceful. And it definately wasnt a lil tic. It did literally change the shape of my face.I was driving and felt it and had a looksie in the rearview mirror.( I know, the mirror is for driving purposes)

Of course I came up with somethng twisted. If it becomes continous I will pretend to be of a different religion and where a scarf. Dan says he'll join me in the mascarade.

Have a great day all.
Today is day 3 in a row for work for me- for those of you who follow this is a big deal. LOL If I make it through today it will be 12 hours this week that I worked.

Cindy
sdsyd is offline  
Old 10-09-2008, 08:44 AM #9 (permalink)
rose's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,893
rose is on a very distinguished roadrose is on a very distinguished road
rose rose is offline
Extremely Helpful Member
rose's Avatar
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,893
rose is on a very distinguished roadrose is on a very distinguished road
Default

Quote:
Originally Posted by sdsyd View Post
Hi guys. You know nothing uusally upsets me for too long. I am here drinking my 1 cup of coffee. I'm ok now. I think Olly may have been right. It wasn't painful but forceful. And it definately wasnt a lil tic. It did literally change the shape of my face.I was driving and felt it and had a looksie in the rearview mirror.( I know, the mirror is for driving purposes)

Of course I came up with somethng twisted. If it becomes continous I will pretend to be of a different religion and where a scarf. Dan says he'll join me in the mascarade.

Have a great day all.
Today is day 3 in a row for work for me- for those of you who follow this is a big deal. LOL If I make it through today it will be 12 hours this week that I worked.

Cindy

Cindy, it sounds like spasm rather than twitch (Like Caroline said)

Re: about your work. Be careful (i.e. don't do what I did) if you have a long term disability policy and it pays out based on a previous amount of work/income.... In my situation, I kept working less and less, trying to stay on the active employee status to maintain the cheaper rates for health insurance, etc. and I pretty much screwed myself for LTD as its is based on previous 12 month period of earning. I guess I kept thinking I was going to get better, and it took a while to sink in. So instead of it paying me what would have been 60% of my regular earnings, it will be more like 10 or 15%.

Hope you do good today,
rose is offline  
Old 10-09-2008, 09:46 AM #10 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
Default hi cindy

dont worry about the scarf,these spasms are not constant.
i can have a day when i get a few and others none at all.
sometimes i can feel the right jaw muscles stiffen and think "oh no,here goes"but then it just eases off.
yours do sound like the spasms i get,you can clearly see the lower face being pulled and distorted.
when the speech therapist came to see me she said there was nothing they could give in meds for this,i did try taking extra baclofen but could not really tell if that works.
but i did look it up,botox injections was a option,not sure about that though
hope you had a good day at work.
olly is offline  
Closed Thread

Tags
mnd, robert, twitches


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Onset of cramps and fasics keithx Do I Have ALS? Is This ALS? 5 11-29-2011 09:57 PM
Fasics and cramps tripper Do I Have ALS? Is This ALS? 2 05-26-2010 09:50 PM
Spasms versus fasics ? sral General Discussion About PLS 11 06-16-2009 04:19 PM
ALS specific Fasics CB1977 Do I Have ALS? Is This ALS? 12 05-21-2009 09:19 AM
Date Fasics hit Tom Klipso General Discussion About ALS/MND 12 01-16-2009 09:54 PM
fasics, felt or seen? fredrik Do I Have ALS? Is This ALS? 11 01-15-2009 02:17 PM
question about fasics-benign or other jennibf Do I Have ALS? Is This ALS? 8 10-09-2008 11:35 PM
onesided muscle tone/&fasics=ALS? timesup Do I Have ALS? Is This ALS? 0 07-24-2008 08:51 AM
tongue fasics and baclofen olly General Discussion About ALS/MND 0 07-12-2008 11:28 AM


All times are GMT -5. The time now is 07:02 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016