Old 09-28-2008, 10:16 AM #1 (permalink)
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Hi all

As you may know if you have read my previous posts i have now had constant twitching in both my calfs for 4 weeks now.

I get more in my right calf as that never stops its always going and for the past week it always feels tight and stiff and sometimes cramps when i walk around.

I read on here somewhere that a more defined muscle is a bad sign and i have put some pics of my calfs on my profile. If you look towards the bottom of the right calf u can see like a kind of lump it sticks out and it just looks more tense than the left one. And its generally much more defined than the left one.

Should i be worried about this? and when does cramps etc start in ALS is it in the beginning?

Thanks all

chris
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Old 09-28-2008, 01:33 PM #2 (permalink)
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I only got cramps while resting. Never while walking around. Your calves don't look deformed to me. (not a doc) Twitching can come from a lot of things. Generally you would have cramps, weakness and then twitching if it was ALS.

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Old 09-28-2008, 03:26 PM #3 (permalink)
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They seem normal and symmetrical to me (I am not a doc either, though).

My problems with calves started 7 or 8 years ago, when my right calf got numb on the outer side, near the ankle. At that time I blamed a pinched nerve. With time the calves became visibly assymetrical (even my neuro noticed it ). In December 2006 I had a tremor of my whole body for a few minutes, and that's when fasciculations came into my right calf, right where it was numb, and smaller ones into my left calf. Later they were replaced by cramps so strong that my gait changed. After a day cramps went away (that was the day when I self-diagnosed myself with ALS), and fasciculations were back. They somewhat receded since. I am still offcially undiagnosed. As you can see, there is no way to tell what starts when with ALS.
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Old 09-28-2008, 05:12 PM #4 (permalink)
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Default cramps

Rick has never had cramps or pain in any area of his limbs where ALS has caused twitching, stiffness, or loss of muscle. We have been waiting and watching for the cramps... but nothing. His legs jump when he sleeps, especially after missing up to 6 breaths. That starts him up again. He doesn't wake up uncomfortable either.... rather he lacks feeling everywhere. M
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Old 09-28-2008, 07:02 PM #5 (permalink)
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hey, I am no doc either, but your calfs look strong. You may notice a thinner this or more pronounce that, but you have never looked this close at your calf before. It may have always looked that. I have a dent on the out side of my anke that I fond. I dont know when it came or if I always had it. Try to feel better, I know it is hard.
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Old 09-29-2008, 03:39 AM #6 (permalink)
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Thanks all for your replys and help, i am just a bit worried as my calfs twitch constanly and they are tender and sore to touch, and feel tight.

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Old 09-29-2008, 06:46 AM #7 (permalink)
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Default question about legs jumping

Quote:
Originally Posted by Marjorie R. Wilcox View Post
Rick has never had cramps or pain in any area of his limbs where ALS has caused twitching, stiffness, or loss of muscle. We have been waiting and watching for the cramps... but nothing. His legs jump when he sleeps, especially after missing up to 6 breaths. That starts him up again. He doesn't wake up uncomfortable either.... rather he lacks feeling everywhere. M
Hi, I would like to ask some information about leg jumping at night. Have the doctors say anything about it? My husband was diagnosed with MND by a doctor, based on fasciculations and the results of the IMG. A second opinion, an ALS specialist said there were not enough signs to diagnose. I told the neuroligst about the leg jumping during sleep, something that causes me horrible anguish, but the doctor dismised it, said that it was not important. Any information?
Something else. The only test he has not had is the muscle biopsy. What is it for? We have a new appointment next week, the fourth, and I would like to ask.
Anybody can help me with the kind of questions I should ask to understand what is wrong with the IMG and what the results could mean?
Thank you to everybody
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Old 09-29-2008, 12:50 PM #8 (permalink)
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Hi, Malena ... about the leg jumping, I know that this is common in the general population and is not a symptom of ALS. It is a difficult issue for the individual, as it wakes you (and your partner) up. There are some medications now, I believe, that can help prevent this.

I don't know anything about the muscle biopsy, but I'm sure someone else will help you out.

Take care,
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