Old 09-23-2008, 09:36 AM #1 (permalink)
awieleba's Avatar
Very Helpful Member
 
Join Date: 2008
City: oakland twp
State: michigan
Country: US
Interest: seeing neuromuscular specialist for my issue's
Posts: 1,067
awieleba is on a distinguished road
awieleba awieleba is offline
Very Helpful Member
awieleba's Avatar
Join Date: 2008
City: oakland twp
State: michigan
Country: US
Interest: seeing neuromuscular specialist for my issue's
Posts: 1,067
awieleba is on a distinguished road
Smile did something that I couldnt before!

Hey all,

For those of you that have followed any of my postings, or ramblings I should say, I wanted to tell you what I did last night. (dont have diagnosed for anyone doesnt know me)

It is not a big deal to some but I was able to cook dinner and hold Grace! NOt for long or the whole time. WHen my first son Jack was born (almost 7 yrs ago) I would cook an entire dinner and hold him while doing! (after the chopping and prep was done) I just love holding my babies and cooking...I dont know why? it is strange.

ANYWAY, I made rice and veggies last night and held Grace the whole time! I was sooo HAPPY, and mind you she is a chunky 10 month old, infact she is huge! I could not stop smiling and called my hubby to tell him. I had to switch arms off and on, but this was huge for me! Alot of people say, dont hold her as much and your arms wont be sore. Well, that is not an option for me, I want to hold her as much as I can, with this mystery illness, I dont how long I can.

I am just living in this moment! I want to point out that there are alot of things that are worse for me, like my legs and feet that hurt after anytime walking. BUT I am focusing on this right know, cooking and holding baby and I even had a glass of wine too. I did not break the glass either! I have broke 2 glasses and a beer bottle becasue I put things down so hard latley. It is strange and I dont know why, even my sister's said that i have been using my fork really loudly? ever hear of this with MND? ok,ok,ok...pull it in, I said that I was only going to post something happy that I did and I am already asking questions.....

anyway, just thought I would share.

Peace,

april
awieleba is offline  
Old 09-23-2008, 10:10 AM #2 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
Thumbs up hi april

thankyou for sharing,you are clearly devoted to your family.
it is good to hear you staying so positive despite not having a diagnosed,i suspect your family help you in a big way to keep going.
i adore rice and vegies,i do a rice with peas,sweatcorn and red/green peppers with a sprinkling of mixed herbs. we have it with chicken..
i love cooking and baking,though the baking is not ofton now only on a rare energetic day.
i do believe in a diet of fresh food cooked from scratch,no processed muck.
if i get a day i cannot cook we have a cold meal of meat/fish with salad.
i do have a perching stool from disability services so i can sit while doing things like cooking,but a bar stool may be ok to use.
you could sit at the cooker with baby on your knee while stiring ect.
take good care.
caroline
olly is offline  
Old 09-23-2008, 11:42 AM #3 (permalink)
New Member
 
Join Date: 2008
City: Granby
State: CO
Country: US
Interest: Other
Posts: 45
mtngirl is on a distinguished road
mtngirl mtngirl is offline
New Member
Join Date: 2008
City: Granby
State: CO
Country: US
Interest: Other
Posts: 45
mtngirl is on a distinguished road
Default

April,

That's wonderful! I know how awful it feels to not be able to do all the things for the kids that you once did or that you just plain want to do. I'm happy that you had such a great night.

I'm back on my feet from spinal headache and waiting for spinal lab work results. Still hoping that the West Nile has something to do w/ my symptoms.

Here's hoping today is as great as yesterday for you.

My thoughts and prayers...

Tracy
mtngirl is offline  
Old 09-23-2008, 03:49 PM #4 (permalink)
brendapals's Avatar
Senior Member
 
Join Date: 2008
City: any
State: any
Country: US
Diagnosed: 06/2008
Interest: I have been diagnosed with ALS.
Posts: 957
brendapals is on a distinguished road
brendapals brendapals is offline
Senior Member
brendapals's Avatar
Join Date: 2008
City: any
State: any
Country: US
Diagnosed: 06/2008
Interest: I have been diagnosed with ALS.
Posts: 957
brendapals is on a distinguished road
Default

April,
Good for you! Take a little rest now and then, but enjoy every minute of those kids-you will never regret it!
Have a great week-I have tons of company coming in on Friday!
Pray with me!
Hugs,
brenda
brendapals is offline  
Old 09-23-2008, 08:05 PM #5 (permalink)
planningguy's Avatar
Senior Member
 
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 567
planningguy is on a distinguished road
planningguy planningguy is offline
Senior Member
planningguy's Avatar
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 567
planningguy is on a distinguished road
Default

April,

That's great. I love those times when it all comes together. Those little tykes can be heavy, so that's great that you were able to multi-task. I picked up my "petite" ballerina the other day and was surprised by how much she's grown.

I think that setting things down hard may just be attributed to sore muscles. I know even before all this started if I was really sore from lifting or what not I lost a little "coordination," especially those last few inches before setting something down.

Take care,

Robert
planningguy is offline  
Old 09-24-2008, 09:45 AM #6 (permalink)
rose's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,893
rose is on a very distinguished roadrose is on a very distinguished road
rose rose is offline
Extremely Helpful Member
rose's Avatar
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,893
rose is on a very distinguished roadrose is on a very distinguished road
Default

April, this was so nice to read! Thanks for sharing it with us. For all of us that have had our little ones grow up, it brings back the best of memories ~ and yeah also the memories of how HEAVY they get, especially when they don't hold on!
rose is offline  
Old 09-24-2008, 12:59 PM #7 (permalink)
Moderator
Forum Moderator
 
Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,564
CindyM is on a distinguished road
CindyM CindyM is offline
Moderator
Forum Moderator

Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,564
CindyM is on a distinguished road
Default

Sweet story, April. Thanks for sharing!
CindyM is offline  
Old 09-24-2008, 01:07 PM #8 (permalink)
Sammantha's Avatar
Senior Member
 
Join Date: 2007
City: Newport
State: NC
Country: Uni
Interest: I have pseudobulbar palsy and spastic paraplegia
Posts: 505
Sammantha is on a distinguished road
Sammantha Sammantha is offline
Senior Member
Sammantha's Avatar
Join Date: 2007
City: Newport
State: NC
Country: Uni
Interest: I have pseudobulbar palsy and spastic paraplegia
Posts: 505
Sammantha is on a distinguished road
Default

I am so happy for you April....... The things i can do for my children are the things that give me the greatest happiness. I can just picture you know holding your baby, rinsing vegetables and setting the table! Best wishes, Sam
Sammantha is offline  
Old 09-25-2008, 09:28 AM #9 (permalink)
lostinlouisville's Avatar
Member
 
Join Date: 2008
City: louisville
State: ky.
Country: US
Interest: Other
Posts: 243
lostinlouisville is on a distinguished road
lostinlouisville lostinlouisville is offline
Member
lostinlouisville's Avatar
Join Date: 2008
City: louisville
State: ky.
Country: US
Interest: Other
Posts: 243
lostinlouisville is on a distinguished road
Default April

Girl, you better watch out your going to become that domestic Goddess your husband didn't marry you for lol. I love holding my kids too. People joke with me that the reason I adopted the 4 little ones was because my big 3 grew up on me. Well, my little ones are 4,6 and 10, do you think with the twins turning 5 this weekend I should adopt a little one again, JUST KIDDING, I am ready to stop. Oh April, pray for me this weekend, EMG tomorrow and my twin boy, Christopher has his surgery and then next week my 25 year old has his and then the nest week my 4 year old girl, Christina has her's . Wow, the joys of motherhood, would not miss a moment of it. You are really strong April and I know how much you love those kids and I read how much you do with them, just wanted to say you are doing a great job.

Last edited by lostinlouisville : 09-25-2008 at 09:30 AM Reason: spelling
lostinlouisville is offline  
Old 09-26-2008, 09:11 AM #10 (permalink)
awieleba's Avatar
Very Helpful Member
 
Join Date: 2008
City: oakland twp
State: michigan
Country: US
Interest: seeing neuromuscular specialist for my issue's
Posts: 1,067
awieleba is on a distinguished road
awieleba awieleba is offline
Very Helpful Member
awieleba's Avatar
Join Date: 2008
City: oakland twp
State: michigan
Country: US
Interest: seeing neuromuscular specialist for my issue's
Posts: 1,067
awieleba is on a distinguished road
Default

thank you everyone.
I was posting some more upsetting post, so I wanted a happy one. The arm thing did not last, I was sore and had a hard time carrying her on a field trip with my other son. I put her in the hip hammock and it was still hard but worth it. Just want to enjoy things one day at a time.
awieleba is offline  
Closed Thread

Tags
grace, love, mnd, night, questions, switch, wanted


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


All times are GMT -5. The time now is 12:02 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016