Old 04-27-2008, 03:31 PM #1 (permalink)
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Hello,
I have not been on posting in a long time. I thought I would update what's going on. I started twitching 15 months ago with a lip twitch that quickly spread everywhere within a few days. I am 45 years old. Of course, I panicked. I saw my GP and a neuro within 1 month. They did reflex check, etc. (No Emg) and said that it was benign. The twitching is 24/7 in my feet and calves (like popcorn). My feet will also cramp occassionally-- 3 weeks no cramping at all, then 1 week cramping when I point my toes, etc. I was really afraid for a while, but now after 15 months and I have not developed any weakness, my fear has pretty much subsided. I can speed walk 5-7 miles a day, and just spent 1 week at Disney with my kids. That's enough right there to figure out if you are weak. After 15 months of no weakness, can I finally give up the worry completely? I would think with as much twitching as I have, if it was anything serious I would have other symptoms by now. Right? I guess I am just looking for some encouragemnt. You guys are really good at that!
Thanks
Sue
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Old 04-27-2008, 04:16 PM #2 (permalink)
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Chalk another one up to BFS; it sounds like your safe to me. Congrats.
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Old 04-28-2008, 05:01 AM #3 (permalink)
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After 15 months you can be sure its not ALS. Again, ALS twitches are caused by dying muscles, if the twitching rarely precede weakness (actually weakness is non-noticeable yet) it follow in weeks.
You are OK.
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Old 04-29-2008, 05:22 PM #4 (permalink)
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Thanks for the encouragement! I just needed to hear it again!
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Old 04-30-2008, 06:11 PM #5 (permalink)
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No problem, Im twitching for almost year now and its just part of my life now. Dont think about ALS too much, however we all /twitchers have "black thoughts" days with panic attacks filled with fear of ALS..
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