Hi Just Me
I wanted to check how you are doing. Did you get to the root of problems. Your story sounds frighteningly similar to mine.
Two weeks ago I started to get all over fasciculations. They were real thumpers at first (and no they were not myoclonic jerks as they were not over joints), but have since got much finer in nature. They are nearly always single fasciculations.
Since the fasciculations have started I have began to feel generally weak all over. I still have the strength, but the stamina has gone. For example I can still do straight leg raises how I used to, but I am really struggling to hold a leg raise static against gravity. Similarly I can still lift a 1 litre milk botlle, but if I hold it in front of me I cant sustain it for long - my arm shakes like mad. Any muscular exertion brings about a tremor during the action - even holding a smile makes my face muscles tremble.
My muscles also feel tight, particularly my calfs. My fingers also feel stiff.
My weakness appears to be global and symmetrical. It might be my imagination but sometimes I almost feel like it comes in waves - constantly there but much worse at times.
I have had a bad neck (cracking, stiff, limited range of movement) for some time now and thats what prompted me to sit up and pay attention to your post.