Old 04-15-2019, 01:17 PM #1 (permalink)
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Default Tongue fasciculations that I can see but canít feel.

Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. Iím 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and cannot see a neurologist. I canít be referred to one because a lot of neurologists arenít excepting medi cal. What worries me is that there are a few videos on YouTube with the similar tongue movements like mine which worries me. I have no clinical weakness, no slurred words, although I have been mispronouncing words a lot lately. I do however aspirate on water. Coughing every time I drink water or eat. I noticed the tongue when I was trying to clean my back molar I used a light. Itís when my tongue is at rest. The reason I am worried, is because on bfs the tongue will twitch on the tip usually or sided but thump repeatedly in one spot and you can feel it. Thatís what they told me. It tried to upload a video but it wonít work. Also bite my tongue a lot when a talk.
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Old 04-15-2019, 01:29 PM #2 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

It sounds like you've done plenty of research. Your observations, while important, can not help you diagnose yourself with a terminal neurological disease based on personal internet research and youtube videos.

The place to start is not a neurologist, but a general medical practitioner who can examine you and tell you what they observe and where they think you should be referred to next, if anywhere. This forum can answer general questions, but is absolutely not a replacement for actual proper medical care. There are many conditions that share symptoms with what you report- from anxiety to GERD to a whole variety of of other problems. ALS is at the bottom of a very long list of other conditions and has some very distinctive symptoms that you do not report.
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Old 04-15-2019, 01:36 PM #3 (permalink)
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Default

I did see my primary and he noticed the tongue twitching all over and was concerned. Canít find a neurologist because of my crap insurance. He referred me to one but I just got a call saying they canceled it because he is no longer excepting Medi-Cal . Sorry I left that part out.

I also wanted to add that Iíve been having the most fatigue I have ever felt in my life. I donít have anxiety either.

Also have positive jaw reflex. Sorry many things itís hard to remember it all sorry.

Last edited by ShiftKicker : 04-15-2019 at 01:53 PM Reason: merged
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Old 04-15-2019, 01:42 PM #4 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

I'm not seeing any reason to think ALS.
The problems you describe might be anything or nothing at all. Don't let it bother you. Just see any doc, so you get an expert investigation.
Twitches come in many variations and tongues have a life of their own.
You can get yourself very worried if you continue looking up symptoms on the internet.
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Old 04-15-2019, 02:13 PM #5 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

Thanks for the replies. I saw my doctor and he was concerned about the tongue fasciculations and positive jaw jerk. Iím not worried because I read the statistics on Bulbar als. Only 600 cases a year in the USA. 5,000 als cases a year. Not only that Iím in my twenties.
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Old 04-16-2019, 06:47 PM #6 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

I am sorry about the insurance issue. Surely somewhere there must be a neuro who takes your insurance. It is sometimes difficult here for Masshealth people ( think it is equivalent) but they eventually find someone often in Boston as opposed to their suburb
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Old 04-16-2019, 11:43 PM #7 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

I finally got in, well not yet. May 16th to be exact. To see a neurologist. I must say I have been yawning more than I ever have in my life at least 20-30 yawns everyday for the past week. All I read on evil google could be early sign of bulbar onset. Of course Iíd read something like that. No medications either...
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Old 04-16-2019, 11:48 PM #8 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

Greatly appreciate the replies.
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Old Yesterday, 07:02 AM #9 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

That’s great you got an appointment. A month wait is not bad. Lots of us have waited longer. Yawning like twitching is unspecific. Don’t worry!

Let us know what the neuro says
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Old Yesterday, 10:08 AM #10 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

Quote:
Originally Posted by Nikki J View Post
Thatís great you got an appointment. A month wait is not bad. Lots of us have waited longer. Yawning like twitching is unspecific. Donít worry!

Let us know what the neuro says
Thanks! I will.
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Old Yesterday, 11:56 PM #11 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

Quote:
Originally Posted by Nikki J View Post
Thatís great you got an appointment. A month wait is not bad. Lots of us have waited longer. Yawning like twitching is unspecific. Donít worry!

Let us know what the neuro says
I just had another quick question. Iím getting mixed answers online that slurring speech is slow speech that kind of sounds like youíre drunk? I read some stories of people with Bulbar onset who said they had difficulty pronouncing words. Like their words were missed pronounced or jumbled.
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Old Yesterday, 11:58 PM #12 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

Also is it constantly happening every time you talk?
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Old Today, 12:37 AM #13 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

Cynthia, remember this...

"I’m not worried because I read the statistics on Bulbar als. Only 600 cases a year in the USA
5,000 als cases a year. Not only that I’m in my twenties."

Then...

"All I read on evil google could be early sign of bulbar onset. Of course I’d read something like that.."

Key words... "evil google".

Finally...

"Thanks! I will."

Ok, check back in after your Neuro appointment. Try hard to stay off Google
and log off this Forum until then.
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Thanks from
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Old Today, 12:53 AM #14 (permalink)
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Default Re: Tongue fasciculations that I can see but canít feel.

Thanks I will.
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