Old 04-14-2019, 02:53 PM #1 (permalink)
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Default Please Help with symptoms

Hey everyone,

Iíve been doing lots of research and not getting good information from my doctors - and itís gotten to a point where Iím getting extremely anxious/scared and just need help and opinions from others.

So I suffer from muscle atrophy and weakness in my left side (notably my left pec, left lat and left tricep). Iím an avid powerlifter and bodybuilder - and I noticed the weakness on 02/20 when I was benching 455 on my previous chest day only to struggle with 225 this one. Since then I have a hard time contracting my chest to its fullest capability as well as my lat and also I think important to mention Iíve never had any trauma, pain, numbness, tingling, etc... if I didnít train I wouldnít know I was impaired at all. Iíve also had some small muscle spasms in my left tricep and my left pec (the frequency has definitely lessened - canít remember the last time it happened).

By the way Iíve read the sticky. Iíve never lost ďfull strengthĒ since the initial notice, other than the atrophy the loss of strength hasnít been getting worse. This is where Iím getting confused.

Last Wednesday I had a NC/EMG done with a physiatrist. During the exam he did several reflex tests and then did the NC and said everything looks normal. Now during the EMG he noticed some abnormalities - I canít remember specifically as I didnít know what to look for but on my tricep he kept telling me to relax - so I figure thatís gotta be one of them. At the end of the exam he said he noticed some entrapment at the C6 C7, said some of the atrophy probably wonít go away - but that it also shouldnít get worse. Now I would LOVE to believe itís simply a pinched nerve, but even he finds it weird I have no sensory issues.
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Old 04-14-2019, 04:07 PM #2 (permalink)
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Default Re: Please Help with symptoms

It's not unknown not to have sensory symptoms with a pinched nerve. If you want to post the full report (which you should get/keep for your own records, like all other tests), without showing your name, we could be more helpful.

Best,
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Old 04-14-2019, 05:44 PM #3 (permalink)
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Default Re: Please Help with symptoms

Thanks for the reply - I never got a copy of the report, however I’ll request one tomorrow. Also worth mentioning he only did my left side (tricep, bicep, forearm, hand and lat) - not my whole body. He also requested that I get a ct scan.
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Old 04-14-2019, 07:28 PM #4 (permalink)
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Default Re: Please Help with symptoms

No one is doing a whole body EMG. In ALS, doing an EMG on several limb muscles will show some particular abnormalities on the test. Doing one side as you report is common.
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Old 04-15-2019, 07:38 AM #5 (permalink)
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Default Re: Please Help with symptoms

One more question I had is in regards to the sticky - the muscle weakness described seems like it’s all or nothing, doesn’t make things harder, makes them impossible. Now I’ve still been in the gym able to workout moderately - in fact my lateral delt has remained the same strength as it was prior (on both sides). Because what I thought prior was that it may be gradual - but perhaps I’m wrong.

I’m having massive anxiety, I didn’t sleep at all last night because I noticed a little twitching on my left tricep.
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Old 04-15-2019, 08:51 AM #6 (permalink)
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Default Re: Please Help with symptoms

As it says in the sticky it is sudden in an individual muscle. You know from the gym that many ( most) movements involve multiple muscles so as long as certain muscles needed work they may partially compensate for most things but there will be something that is suddenly impossible.

None of this matters in your case though because your emg reported an issue with an isolated area. When I started symptoms the muscle where I had failure showed a classic ALS pattern but they also saw abnormalities in other muscles where I did not have problems yet. And no I was not just not noticing. I was a group exercise instructor so pretty aware and also had several neurologist exams before symptoms started in the other muscles they had noted
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Old 04-15-2019, 08:53 AM #7 (permalink)
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Default Re: Please Help with symptoms

You do not have ALS. Your lack of ALS symptoms and your non-ALS EMG attest to that. If you had ALS, do you really think the doctor would have let you go merrily on your way? No, you would have heard what my husband heard, which was, "I'm sorry, I believe you have ALS. You should get your affairs in order ASAP".

You didn't sleep last night because of YOU, not because of a disease you've been told you don't have. When you have ALS, you fail to do things, it is not hard, you just can't do them. Button your shirt, zip your pants, clip your nails, hold salad tongs etc. That's how ALS starts, not because of twitching. Let it go now. For your own mental health.
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