Old 03-16-2019, 07:12 PM #1 (permalink)
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Default Als fears

Hello everyone. I'm new on here have alot of fears and anxiety about ALS.

I have not been diagnosed. I've had four opinions from 4 different doctors that say I do not have that. I do have an EMG schedule in 3 weeks.

I've been having a lot of pain in my legs feet arms. I would say minimal weakness. I do have minimal cramping. Not severe but memo cramping with spasms.

I experienced my first symptoms about a month ago. I went to my PCP and he did an exam and said he didn't believe I had it but send me to a neurologist. He did a physical exam and said the same thing that there was no way I had it. Then I wanted a second opinion so I went to the nurse practitioner for the neurologist office. She said the same thing that she didn't think I had it but she did schedule me for an EMG. The problem was they could not see me until April.

I have went to a rheumatologist and he's done a lot of blood work on me and found nothing certain.

Days like today I'm in so much pain. I'm just really concerned and it's eating me up with anxiety so bad that I have to see a psychiatrist and be on anxiety meds. So basically I just need someone to talk to and to ease my fears may be a little bit.

It has been fired up that I might have fibromyalgia.

Last edited by ShiftKicker : 03-16-2019 at 08:48 PM Reason: paragraphs and sentences
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Old 03-16-2019, 08:56 PM #2 (permalink)
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Default Re: Als fears

You've had 4 doctors tell you "no ALS". That seems pretty definitive to me.

If you have anxiety about ALS so badly it is taking over your life and you are unable to believe 4 separate doctors, an ALS forum is the absolute worst place you can be. Please do not seek emotional support for health anxiety on a forum for for a terminal disease- that is so very inappropriate for your needs. There are many health anxiety support forums out there- I think they would be WAY better for your state of mind. You would be getting support from like minded people there and not from people who come to an ALS specific forum to get support themselves for the issues that arise from being diagnosed with ALS.

Last- you mention pain. Pain is not considered part of the normal pattern of symptoms that indicate ALS should be a concern. Please read here: READ BEFORE POSTING! Answers to common concerns about possible symptoms! to get more information.

I'm going to ask that you not continue posting here. It will only feed your anxiety. Please seek help from more appropriate places like No More Panic and Anxiety Central.
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Old 03-16-2019, 09:05 PM #3 (permalink)
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Default Re: Als fears

Lmjw,

There are five types of anxiety… dedicate some research into your
anxiety as much as you have apparently researched ALS.

Here they are…

Generalized Anxiety Disorder. ...
Obsessive-Compulsive Disorder (OCD) ...
Panic Disorder. ...
Post-Traumatic Stress Disorder (PTSD) ...
Social Phobia (or Social Anxiety Disorder...)

The first two can be present together. OCD can develop from the
continuance of the first (GAD). Panic Disorder hits those who have
low tolerance handling crisis along with being anxious to begin with.

Post Traumatic Stress Disorder (PTSD). We have read in many DIHALS
threads where the poster has claimed their symptoms began after a
sudden accident, injury, surgery or sudden severe illness. (I’d guess about
98% of them did not have ALS being that we never heard from them
again.)

Social Phobia Anxiety is fear of being negatively evaluated against what
they believe they suffer and have shared with others, family, loved ones
and friends. They Neuro shop, pursue two or three EMGs not being able
to let go of their seemingly obsession that they have ALS.

Anxiety is not a terminal disease. It’s treatable, even curable and can
open a new world of living life well and healthy.

Just a suggestion… it's time to see a psychiatrist.

Last edited by Clearwater AL : 03-16-2019 at 09:18 PM
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Old 03-17-2019, 07:54 AM #4 (permalink)
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Default Re: Als fears

I would just like to apologize. I wasn't trying to upset anybody by posting on here. So I won't apologize and I am in no way mocking what you guys have to go through every single day. Good luck to all thank you
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