Old 03-14-2019, 05:17 PM #1 (permalink)
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Default My symptoms, my fears

Hello, first of all thank you for letting me join this forum.

Iíve been dealing with some symptoms in the last month and I wanted to ask your opinnion about it. Iím 40.

For some time I had some numbness in my hands, legs and upper lip so I had an appointment with neuro to see if something happened.

Neuro told me not to worry and asked for an MRI on Feb 1st.

On Feb 2nd I had lots of events through the day and at night I felt soreness in my legs.

That soreness didnít dissappeared and on Feb 4th, after a long day, I started twitching and ha OMG little cramps so much I couldnít alero so well.

That week was a little nightmare, lots of stiffness, twitching (specially in legs, calfs and arms) and I started notice Iíve lost some hability in doing things with my right (dominant) hand, specially with the ring and pinky finger. I googleized my symptoms and the word ďALSĒ appeared all the way.

I felt so bad on Feb 9th I went to the hospital and after a blood test (with CK level ok) and some basic tests they sent me home saying it was all due to anxiety.

On Feb 11th I went to my 2nd appointment with the neuro. He told me the craneal MRI was ok. I told him about the new symptoms and my fears about having ALS. He made some test on my feet and tried to see the twitching hitting here and there. He couldnít see it, told me to forget about ALS and prescript me alprazolam for the next weeks. I asked him about if an EMG was needed but he said ďno, itís anxiety, you donít have ALSĒ.

Symptoms stayed with me until the 3rd appointment with neuro, on March 4th. I told him I had less twitching but that symptoms stayed. He told me not to worry again and prescripted me vortioxetine, an antidepressant. Told me as well to take alprazolam only at night.

All the symptoms stay there, sometimes I feel that itís hard to speak as well. And yesterday I took some bags with my right arm and I had spasticity and pain on my biceps, leaving my arm with a 90 degrees angle. Some hours later my arm is more or less ok again but stills aching. I have pain on arms, legs, fingers, shoulders... I feel little cramps on my feet and legs. And twitching keeps there on my legs and my right arm now.

I am so worried about ALS, I want to have a new appointment with neuro and ask about doing an EMG, but Iím so afraid now. If some of you can tuve me some advice.
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Old 03-14-2019, 05:31 PM #2 (permalink)
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Default Re: My symptoms, my fears

Please read here: READ BEFORE POSTING! Answers to common concerns about possible symptoms! It addresses such things as numbness, tingling, pain- none of which are part of the normal constellation of symptoms that indicate ALS. Twitching is as general as coughing, and could mean absolutely nothing, or any other number of issues.

A neurologist has told you no ALS- there is no one else more qualified to tell you so. Maybe make an appointment with your doctor to get to the bottom of your symptoms, including properly addressing your anxiety, but ALS should not be in your thoughts.
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Old 03-15-2019, 09:59 AM #3 (permalink)
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Default Re: My symptoms, my fears

Thanks for the answer. The issue is that numbness was previous to fasciculations (twitching). And this constant pain in calfs, right arm and right hand is driving me nuts...
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Old 03-15-2019, 01:16 PM #4 (permalink)
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Default Re: My symptoms, my fears

Then please go back to address it with the doctor. Lots of things can be done for that- but a forum for people with ALS really is not going to help for that. That's for the doctor to assist you with.
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Old 03-16-2019, 07:04 AM #5 (permalink)
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Default Re: My symptoms, my fears

Yesterday they made an ultrasound test on the arm that I couldn’t move the other day from the 90 degrees position and they told me muscle was ok but that I had tendinitis. Can it be related with the spasticity usually associated with ALS?
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Old 03-16-2019, 10:07 AM #6 (permalink)
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Default Re: My symptoms, my fears

JTTP, you were told it is tendinitis. That is the diagnosis.

Again, as very knowledgeable members have replied above, these are issues
you need to consult with your doctor.

Please read the "Important - Read First Before Posting" at the top of the
page where you start a thread.

Let your doctors decide of you are anywhere near a consideration of
a possible MND in the future... from what you have written it is very
very unlikely.
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Old Yesterday, 01:11 PM #7 (permalink)
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Default Re: My symptoms, my fears

Thanks, I’ve got an appointment with neuro for the next week. Today I realized I can’t stand on my right foot without trembling and my ankle feels very loose, thinking this can be drop foot. Hope neuro sends me to get an EMG test done...
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Old Yesterday, 01:18 PM #8 (permalink)
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Default Re: My symptoms, my fears

Please come back after your exam to let us know how it goes. At this point, you are assuming something that is definitely not drop foot. "Loose" is not what drop foot is. I am hoping you will be reassured by what the specialist tells you next week. Till then, it's best you do not continue to post speculations here.
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Old Yesterday, 01:37 PM #9 (permalink)
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Default Re: My symptoms, my fears

NOT describing drop foot in the least. I hope for the sake of your mental well being, you'll believe the neuro when they tell you thar you do not have ALS.
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