probablycrazy
New member
- Joined
- Feb 19, 2019
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- VA
- City
- Richmond
Mid 30's male, grandmother diagnosed at 73.
Began twitching in arm in early December, went away for a few weeks, came back in late December in left calf and r. arm, and felt like it was spreading each week: right calf, thighs, neck etc.. I twitch somewhere in my body every few seconds, for over 2 months. I had no other symptoms except twitching and some stiffness (perceived).
I mentioned to my GP, who dismissed it, but I insisted on seeing neuro. Saw neuro, who requested tests but thought I had nothing wrong after physical exam. GP didn't want me to do the tests, and instead prescribed SSRI for anti-anxiety. Once I took that I immediately had severe drowsiness, dilated pupils, tremors and leg weakness (right leg). After 4 days I had a significant limp and couldn't descend stairs without extreme care. Right leg was probably at 40% power. I got VERY worried and told my wife I have ALS.
Once I stopped taking the meds the strength came back, now at 100% (maybe 95%). I've since had a MRI (still waiting results), labs (benign) and clean EMG.
I feel really good, and the neuro that administered EMG said I was totally clear of ALS. They only needled my right leg in two areas (one thigh, one calf) and once in my right hand. I'm a little worried that they didn't do more like move the needle in and out, put it in more areas. It still causes me a little anxiety when I twitch (much less often since EMG resuts) and when I feel soreness / stiffness in my legs. I think I have soreness / stiffness in my right leg but don't feel it when I'm not thinking about it.
I'm still waiting my follow-up with the original neuro who will have MRI, EMG and lab results in hand.
Began twitching in arm in early December, went away for a few weeks, came back in late December in left calf and r. arm, and felt like it was spreading each week: right calf, thighs, neck etc.. I twitch somewhere in my body every few seconds, for over 2 months. I had no other symptoms except twitching and some stiffness (perceived).
I mentioned to my GP, who dismissed it, but I insisted on seeing neuro. Saw neuro, who requested tests but thought I had nothing wrong after physical exam. GP didn't want me to do the tests, and instead prescribed SSRI for anti-anxiety. Once I took that I immediately had severe drowsiness, dilated pupils, tremors and leg weakness (right leg). After 4 days I had a significant limp and couldn't descend stairs without extreme care. Right leg was probably at 40% power. I got VERY worried and told my wife I have ALS.
Once I stopped taking the meds the strength came back, now at 100% (maybe 95%). I've since had a MRI (still waiting results), labs (benign) and clean EMG.
I feel really good, and the neuro that administered EMG said I was totally clear of ALS. They only needled my right leg in two areas (one thigh, one calf) and once in my right hand. I'm a little worried that they didn't do more like move the needle in and out, put it in more areas. It still causes me a little anxiety when I twitch (much less often since EMG resuts) and when I feel soreness / stiffness in my legs. I think I have soreness / stiffness in my right leg but don't feel it when I'm not thinking about it.
I'm still waiting my follow-up with the original neuro who will have MRI, EMG and lab results in hand.
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