Marcelian's post

[Marcelian]

Heya!

I am already read everything before I post something, I am so ashamed to see people who post before be aware of everything that is crucial.
I am very glad to be here in this portal, thank you so much to have been accepted me. I am 38 years old man from Budapest. I dont really know what my problem is, there is several different symptoms. I started with widespread fasciculations, numbness during the night, and difficulty to standing, and walking and climbing stairs. I have M. Crohn also so is a little bit complicated. I did labors MRA and so on, now waiting for my neuro answer and go to have EMG. I dont wanna push all of my symptoms to the group, Iam just need to have someone who can be with me in this period. Iam living with Crohn from 1998, so I know how to live with an untreatable condition. Iam very happy to be hier, and really thank you guys if someone hold my hand a bit. Marcelian

 

[ShiftKicker]

Marcelian, I have moved your post to its own thread. You can continue to post in this thread if you have a specific question.

 

[Marcelian]

Heya ! Iam kindly asking there is a possibility to have numbness regarding ALS? I know no one is superspecialist hier, but I would like to ask someone who already diagnosed. I can feel tickling also in my legs and on my face.

Cheers Marcelian

 

[Bestfriends14]

No, numbness and tingles point away from ALS. Fasiculations do not indicate ALS either as most of the population twitches at some point in their lives. The hallmark of ALS is an inability to take a step,button a shirt, open a bottle etc


Good luck at the docs!

 

[Marcelian]

Thank you so much your reply..

 

[Marcelian]

Thank you so much.

 

[Marcelian]

Heya !

I got my EMG result. Hier the doctors are not very aware in ALS so, iam just share my result with you, If anyone can help to see clearly my situation its may helps. I know no one is doctor, or not many of us, just ask.
EMG sowed fasciculations, fibrillations, and also CRD-Complex Repetitive Discharge, and also with Polyphasic M wave. ENG is clear. I also have nowadays sleeping problem-apnea I think- and overactive gag reflex and gagging. I will have an EEG also. Every another examination was negative.

Cheers

Attila

 

[Nikki J]

Can you please post the report with tables and summary? It is ok it is not in English. Remove your name and any other identifying data first.

 

[Marcelian]

Hello !

This is my summary

 

[Nikki J]

Hi I edited it as the page loaded with inappropriate ads for me. I could not see the conclusions but your emg only showed fibs in one muscle and did not show some other abnormalities we would look for associated with ALS at all. This is not an ALS EMG

What did your doctor say?

 

[Marcelian]

Heya Nikki !

Thank you for your comments. So The doctor told me, we need to wait and see he thinking about some another possible disease my TSH is in low concentration, and also I had Syphilis in the past so might be those able to do something with my muscles. They only did EMG on the right side of my body so but my symptoms everywhere presented. I think the time will answer all my questions. Anyway, I will let u know the next steps, EEG and MRA findings. Thank you for helping me, for better understanding.

I try to ask just something is very important and not to asking silly questions.

All the best

Attila

 

[Marcelian]

Heya!
Thyroid problem are excluded from possible diagnosis. EEG is clear. Yesterday and today felt first-time imbalance problem during walking.
Iam waiting for next neuro visit. I have also problem with sleeping, and cramps and some kinda paresthesia in my left leg.

Cheers

A