Old 01-14-2019, 11:06 AM #1 (permalink)
sorin's Avatar
New Member (Say Hi)
 
Join Date: 2018
City: Bucharest
State: Romania
Country: ROU
Interest: I am interested in learning about ALS/MND.
Posts: 7
sorin is on a distinguished road
sorin sorin is offline
New Member (Say Hi)
sorin's Avatar
Join Date: 2018
City: Bucharest
State: Romania
Country: ROU
Interest: I am interested in learning about ALS/MND.
Posts: 7
sorin is on a distinguished road
Default Scared to death, again

I posted on this forum twice already about my symptoms. Long story short, for about one year I feel mild weakness on my dominant side (right leg and arm). I feel my right leg heavier when I step and feel objects heavier with my right arm (the dominant one). Also, my right calf and arm seem a bit smaller than their counterparts. What freaked me out was a result of CK from today of 301. I didn't work out, I only walked 5 days ago about 12 km. I don't consider myself a hypochondriac (I'm a cardiologist, I am rather rational). What do you think? My neurologist friends have all laughed at me about this. Btw, I'm 27. Thank you a lot, you're inspirational to all doctors and patients!

Last edited by sorin : 01-14-2019 at 11:11 AM
sorin is offline  
Old 01-14-2019, 11:40 AM #2 (permalink)
KarenNWendyn's Avatar
Very Helpful Member
 
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,478
KarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond repute
KarenNWendyn KarenNWendyn is offline
Very Helpful Member

KarenNWendyn's Avatar
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,478
KarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond repute
Default Re: Scared to death, again

Since you’re a cardiologist, then you must know that the normal range of CPK is broad, and many perfectly healthy people walk around with a CPK of 300 and display no symptoms. It’s normal for them. You also know it can be influenced by factors such as hydration, physical activity, trauma, alcohol use, thyroid disease, medications (and supplements). That is to say that I wouldn’t bother losing sleep over a CPK of 301.

ALS is about failing, not feeling. People with ALS don’t feel weak, muscles just don’t work. When I realized I could no longer stand on my toes or heels, it caught me by surprise as I didn’t feel weak. I can barely walk now and I still don’t “feel” weak.

You’re not describing ALS. If you’re still worried, see a primary care physician for a general physical.
KarenNWendyn is offline  
Old 01-14-2019, 12:17 PM #3 (permalink)
sorin's Avatar
New Member (Say Hi)
 
Join Date: 2018
City: Bucharest
State: Romania
Country: ROU
Interest: I am interested in learning about ALS/MND.
Posts: 7
sorin is on a distinguished road
sorin sorin is offline
New Member (Say Hi)
sorin's Avatar
Join Date: 2018
City: Bucharest
State: Romania
Country: ROU
Interest: I am interested in learning about ALS/MND.
Posts: 7
sorin is on a distinguished road
Default Re: Scared to death, again

Thank you, Karen! Yes, I know all those things but I don't think straight right now (although I stated that I am rational, lol). Thing is I have had these symptoms for one year already and what that scares me the most is the one-sidedness and the fact that my left hand and leg are stronger right now. Maybe I will schedule myself for an EMG just to be sure.
sorin is offline  
Old 01-14-2019, 01:34 PM #4 (permalink)
KarenNWendyn's Avatar
Very Helpful Member
 
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,478
KarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond repute
KarenNWendyn KarenNWendyn is offline
Very Helpful Member

KarenNWendyn's Avatar
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,478
KarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond repute
Default Re: Scared to death, again

You’re not listening.

The doctor who treats himself has a fool for a patient.

If you’re so worried, start by seeing a primary care doc. If they’re worried, they’ll send you to a neurologist. Then the neurologist can decide if an EMG is indicated. There’s a good bet a neurologist won’t find weakness on exam, and then an EMG wouldn’t be indicated.

What I learned in medical school was to always start with a history and physical. Diagnostic tests come later and are done to supplement the history and physical exam, if indicated. If you start getting tests without a good H and P, you can easily be led astray.
KarenNWendyn is offline  
Old 01-14-2019, 05:58 PM #5 (permalink)
Vincent's Avatar
Senior Member
 
Join Date: 2013
City: Barrie
State: ON
Country: CA
Diagnosed: 08/2014
Interest: I have been diagnosed with ALS.
Posts: 869
Vincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to behold
Vincent Vincent is offline
Senior Member
Vincent's Avatar
Join Date: 2013
City: Barrie
State: ON
Country: CA
Diagnosed: 08/2014
Interest: I have been diagnosed with ALS.
Posts: 869
Vincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to beholdVincent is a splendid one to behold
Default Re: Scared to death, again

Take away everything that starts with feels, pain, tingling. None of these sensory symptoms indicate ALS. What's left? Nothing. The primary symptom is muscle paralysis. You can only walk 12km? I wish I could still walk one km.
Vincent
Vincent is offline  
Thanks from
Jamesgol (01-14-2019)
Closed Thread

Tags
arm, death, neurologist, scared, story, symptoms, weakness, work


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Scared to death MTnurse Do I Have ALS? Is This ALS? 14 10-30-2017 06:17 PM
really scared to death, please help Indonesianman Do I Have ALS? Is This ALS? 15 09-28-2014 10:27 AM
Scared to death Momoftwo81 Do I Have ALS? Is This ALS? 11 07-01-2014 12:21 AM
Scared to Death! LadyW Do I Have ALS? Is This ALS? 35 04-13-2011 03:03 PM
scared to death lostinlouisville Do I Have ALS? Is This ALS? 30 07-15-2010 01:39 PM


All times are GMT -5. The time now is 02:59 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016