Old 01-14-2019, 11:54 AM #1 (permalink)
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Default Scared about ALS

Thank you in advance for your help. I am a 56 year old woman. I have been terrified of ALS for several months and am looking for some information regarding how this disease would affect feet.

I am getting a lot of pain in my arches, especially if I attempt to jog. My feet and/or toes will also cramp up if I attempt to point my toes. I also have almost constant, random twitches in both of my feet in the arch/ankle area. It will be a faint pop here, then a pop a few inches away, then in another spot, etc... It feels tingly but I see the twitches hopping around when I look at my feet. It really happens almost all the time and is really worrying me. It started in one foot and now is in both feet.

I started with pain in my arches back in September and actually thought I had developed Plantars Faciitis. I attributed it to having started Pilates a few months prior so gave my feet a rest. I had pain when walking but now it is just when I attempt to jog.

Twitching started in early November in the feet and shortly after I also started getting frequent, isolated twitches in both legs (several per minute) and less frequently in other locations, arms, one hand, butt, back, lip... It is mostly a pop here and there but on occasion the twitching has stayed in the one spot (shoulder muscle and lip) for almost a day.

If muscle atrophy occurs would it cause pain like I describe in the arches because there is no support? I can jump up stairs and walk on tippy toes and heels. My feet at the ankles look boney with indents (more on right than left) so I'm afraid of atrophy. I am a twitchy mess and have really allowed this to ruin my life due to fear.

I saw my pcp on 12/24 who did basic strength testing and reflex testing. He said it was normal and he had no reason to suspect ALS. He did not look at my feet, legs, etc... but said he would send me for an EMG to alleviate my fears but I just don't want to find out I have ALS since I am not strong enough to deal with that diagnosis. I would rather live in fear with some hope instead of with the knowledge that I had ALS and no hope for recovery.

I went back to the gym 10 days ago after quitting 1.5 years ago and my strength on the machines seems normal, but maybe slightly weaker on my dominant leg. I thought it would give me reassurance over the weeks to see my strength stay steady. The pain when I attempt to jog is worrisome to me though.

Can anxiety cause almost non-stop twitching in both feet? All over the body for months? In the hand?

Thank you.

Last edited by lgelb : 01-14-2019 at 01:40 PM Reason: paras
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Old 01-14-2019, 01:44 PM #2 (permalink)
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Default Re: Scared about ALS

Since you are having pain with jogging, you should see a podiatrist. You might need new insoles or more pre-jog stretching. Hardly worth spending your life in fear.

Anxiety makes twitches worse, for sure, but many benign causes, not all of them traceable, cause them in the first place. Don't hold your life hostage to this. See a counselor about your anxiety if it keeps you from enjoying your activities.

I don't see any indication of ALS in what you post.

Best,
Laurie
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