Old 01-05-2019, 10:54 AM #16 (permalink)
Member
 
Join Date: 2014
City: Round Hill
State: VA
Country: US
Diagnosed: 02/2014
Interest: I lost a loved one to ALS/MND.
Posts: 363
codyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the rough
codyclan codyclan is offline
Member
Join Date: 2014
City: Round Hill
State: VA
Country: US
Diagnosed: 02/2014
Interest: I lost a loved one to ALS/MND.
Posts: 363
codyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the rough
Default Re: Symptoms need further exploring?

Pam,
Truly you need to stop. That’s not how ALS works. You don’t have subtle bulbar onset and limb onset. Your symptoms are all over the place. Scratchy voice isn’t an indication of ALS. Choking on saliva is also not an early sign. Please work with your md but being on this site is not a good place for you.
codyclan is offline  
Old 01-05-2019, 12:33 PM #17 (permalink)
Bestfriendstilltheend's Avatar
Senior Member
 
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 534
Bestfriendstilltheend is a jewel in the roughBestfriendstilltheend is a jewel in the roughBestfriendstilltheend is a jewel in the roughBestfriendstilltheend is a jewel in the rough
Bestfriendstilltheend Bestfriendstilltheend is offline
Senior Member

Bestfriendstilltheend's Avatar
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 534
Bestfriendstilltheend is a jewel in the roughBestfriendstilltheend is a jewel in the roughBestfriendstilltheend is a jewel in the roughBestfriendstilltheend is a jewel in the rough
Default Re: Symptoms need further exploring?

Pam,

Perhaps going forward, and in light of the fact that you've been told by several members that you do not have ALS, bring any questions you still have to your PCP. Perhaps he/she can refer to counselling so that you can work on why you are unable to let go of your fixation on getting an ALS diagnosis. You do not have ALS and neuros have told you this. Why are you not moving on?
Bestfriendstilltheend is offline  
Old 01-06-2019, 04:13 PM #18 (permalink)
Pamhill83's Avatar
Banned
 
Join Date: 2018
City: Cleveland
State: Oh
Country: Usa
Interest: Other
Posts: 8
Pamhill83 is on a distinguished road
Pamhill83 Pamhill83 is offline
Banned
Pamhill83's Avatar
Join Date: 2018
City: Cleveland
State: Oh
Country: Usa
Interest: Other
Posts: 8
Pamhill83 is on a distinguished road
Default Re: Symptoms need further exploring?

Me again. I shared with my huaband my concerns and asked if he noticed things are different. He mentioned I have been dropping things a lot. He's concerned because its little things-keys, coins,pacifiers. I notice they slip out of my hands-I have made an appt with a neuromuscular dr and will request an EMG!
Pamhill83 is offline  
Old 01-06-2019, 04:23 PM #19 (permalink)
KarenNWendyn's Avatar
Very Helpful Member
 
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,463
KarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond repute
KarenNWendyn KarenNWendyn is offline
Very Helpful Member

KarenNWendyn's Avatar
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,463
KarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond repute
Default Re: Symptoms need further exploring?

If that’s what it takes to give you peace of mind, so be it. But please believe the doctor when s/he clears you of ALS.
KarenNWendyn is offline  
Old 01-06-2019, 04:55 PM #20 (permalink)
Clearwater AL's Avatar
Very Helpful Member
 
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,432
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Clearwater AL Clearwater AL is online now
Very Helpful Member
Clearwater AL's Avatar
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,432
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Default Re: Symptoms need further exploring?

Pam, just a week ago you wrote...

"I had two neurological exams 2 weeks ago."

You also you you had a baby in early November.

Now you've made another appointment with a Neurologist.

Many people here have posted they have had to wait weeks or more than a
month to get an appointment with a Neurologist.

How soon you can get this next appintment and the time until then you need
to focus on that new baby and stop obessing with you having ALS.

To have two Neurological exams in one week and nothing led the Neuros
to be suspicious you may have ALS or MND... says you are chasing ALS
and they are not.

Please refrain from posting again until AFTER you've done your third.
Clearwater AL is online now  
Closed Thread

Tags
als?, ankle, arm, bed, cramping, fell, headaches, mri, muscle, muscle twitching, neurologist, night, onset, second opinion, spasms, symptoms, testing, thumb, twitching


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Advice on Symptoms - ALS/Bulbar Symptoms/Tongue deviation Gwennie123 Do I Have ALS? Is This ALS? 2 02-24-2016 09:24 AM
Actual ALS symptoms, or just me looking for symptoms that aren't there? cmejia1115 Do I Have ALS? Is This ALS? 1 09-16-2015 01:52 PM
Bulbar symptoms? Plus other symptoms reallyworriedguy Do I Have ALS? Is This ALS? 94 11-04-2010 11:35 AM
Dad Recently Diagnosed -Exploring Possible Causes-Can Anyone Relate? crytl27 General Discussion About ALS/MND 45 09-04-2006 06:10 AM


All times are GMT -5. The time now is 12:37 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016