Old 12-06-2018, 08:15 PM #1 (permalink)
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Default Neurologist visit

Hello all,

I need opinions on some troublesome clinical findings plus emg results.

As many of you know I have been seeing and following up with Neuromuscular specialists here in Florida for a few years now. While I still don't have any firm diagnosis I do have an abnormal clinical exam plus findings on my EMG.

I had a follow up visit with my Neurologist today and my reflexes are still very brisk, plus I have a few beats of clonus , positive Hoffman and mild spasticity all of this is more pronounced on my left side. As for my emg he found a lot of faciculations on my right calf and right forearm as those where the only two areas tested.

After the exam my neurologist explained that after 4 years of seeing me he cant find any weakness. That if I had ALS he would have seen some progression at this point but doesnt see any other than some minor changes in my clinical time to time.

I feel that it's only weakness keeping him from giving me a diagnosis but I'm truly frustrated that I have all these abnormal findings in my clinical but he says it doesn't worry him as he has never seen any weakness.

Has anyone waited this long with a Neuromuscular specialist following them to get a ALS diagnosis? I know if it is ALS there is nothing I can do but I'd like some type of a explanation at this point other than " I really dont know whats causing your abnormal findings"

Hope this post doesn't upset anyone.
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Old 12-06-2018, 08:22 PM #2 (permalink)
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Default Re: Neurologist visit

5 years and 92 posts and numerous clean, ALS free exams. I truly pity you and the amount of time you've wasted in your life chasing a disease you so clearly want, but do not have. Please, before another 5 years go by with this obsession, get counselling, take meds and do whatever you need to get your life under control.

Best to you in the future.
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Old 12-06-2018, 08:31 PM #3 (permalink)
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Default Re: Neurologist visit

"If it's ALS, there's nothing I can do."

OK, let's roll with that. Since you think you have a paralyzing disease that most people die of within the four years that you have not been weak at all, let's just accept the proposition, as you have, that you have a slowly progressive ALS.

Done!

How would you live your life differently if you had that diagnosis you're chasing? Would you stop looking for a diagnosis and start living whatever life you have left?

Great. Now go do it.
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Old 12-06-2018, 09:46 PM #4 (permalink)
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Default Re: Neurologist visit

Posting history:

High lactic acid
Update
Concerned
4 years no answers
Hello All My Good People
Sorry but I have a question
Please help with question
need some help

Pay special attention to this reply to you in one of your many threads:
High lactic acid

Sometimes people have unexplained neurological issues. However, that does not mean they have ALS. Your doctor says you do not. You need to get some help with your obsession with making people with ALS provide you emotional support. It's clear you have something life affecting, but depending on people with a terminal disease to continue supporting you after 5 years is wildly inappropriate. Please seek help from a therapist or care coordinator. There's no denying you need support, but stop demanding that support from people who are struggling with their own issues. They don't owe you. It's weird to insist.

Last edited by ShiftKicker : 12-07-2018 at 01:42 AM
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