Serious1
New member
- Joined
- Nov 13, 2018
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- Learn about ALS
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- TX
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- Katy
*after writing this, I see I am just regergitating all the symptoms I have been having and it lead to a long post. My intention is to let you know what ALL is going on when we all know there is probably just specific symptoms that I am focusing on for this forum.*
Thanks for reading this long post in advance.
I see a neurologist tomorrow. My PCP (who I have only known for a month), urologist, pulmonary, cardiology, ER physician... all have said its stress/anxiety/depression... why isn't this enough? I am unsure.
To be fair to myself, the twitches, trembling, hand weakness, mouth issue ect. (explained below) started after I saw them and before I have seen a neurologist. So no MND exclusion yet. The pinned DIHALS anxiety thread echoes through my mind right now as I write that...
Short story... muscle twitching all over with internal trembling at times. Some pins and needles and just not feeling right. Strength hasn't left (i dont think, have tested with my family's help) but my hand weakness, finger movement and reactions are concerning and my sleep and diet are currently crap for which I am trying to work on too...
Long story... I have had a lot of muscle twitching all over... started about 4 weeks ago in my intercostal and, basically, it is now happens everywhere. Top to bottom, you name it, its twitched (even my privates, internally...). Does seem to stop when I move (maybe just harder to detect). When standing still I have maybe 1 or a few. Laying down or sitting... it comes on more. Before bed and sleeping... it can get "bad". Wife was woken up one night by a few hard twitches. On the same night I had it really bad at the bottom of both feet it woke me up. This has been happening every night with moderate to low intensity. The only place I feel I haven't had very noticeable twitches is my head but I think I have... just they are not as strong and are quick to disappear when I reach to feel.
Recently I had some (procevied) issues with swallowing, tounge and mouth control. Feels like I have struggles speaking at times like pushing my voice out as it hurts the muscles required for talking (job has me talking a lot). Tried my best to chalk it up to over-thinking but it persisted the entire evening... freaked me out because as much as I ignored it it would get a bit worse and eating physically felt difficult so I was refusing to eat admitting though it seems to have passed but I have been having weird sensations in my mouth area, sometimes a feeling of numbness or lack of control, some sensation of uncontrolled movement... have had a weird lump feeling deeper in my esphogus as well. Have ignored that portion for weeks.
I do also feel an internal trembling. Started inside my abdomen and I seem to feel it like my twitches, almost at random, and in random spots, but lately it's been in my abdomen under my ribs on both sides, inside my right hand and inside my right foot and leg. Not all at once though. Sometimes I feel it might be my heartbeat but it does feel noticeably different than that at times. Wife can feel it very slightly... although she feels the twitching, she thinks it's mostly in my head. It was very strong in both legs last night.
Pins and needle sensations since then as well... not localized, same as the twitches. They can be weird feeling but do not tend to last. Again, all over the body and at random. Like random pin point pain to groups of stars like pain, almost a cut-off-of-circulation feeling, but localized and strong.
No real muscle weakness, almost feels like both hands are weak, at times I will use my hands and they can feel weak, today my right hand felt particularly weak and loss coordination and it is honestly scaring me... but I challenge it and I seems I still have strength and coordination though determination but its hard to tell... sensation seems a little less on my right side but super hard to tell if it is actually that or im panicing... cause I'm not trying to precieve anything and they feel weak. I am right handed and it just feels like my right hand is not right lol... trembles when I try to reverse flex with resistance, the back of the hand does feel slightly numb as compared to the other side a bit ever so slight I might be thinking too much into it... some loss in muscle mass as I stopped working out and I was a gym and nutrition rat. I am lossing weight little by little everyday.. I chalk this up to not only stress but I am not eating as much. Maybe a bowl of oatmeal, a decent sized lunch, and maybe supper.
Some fatigue that creeps up after work (took a month off after the panic attack). I have had a pain in my middle back but I believe it was due to posture and largely it went away but still seems present. And today it was worse. Right in the middle of my back and my chest also hurts and burns. Speaking of which.. heartburn has returned to normal levels, almost non-existant, hurts very little when I breath deeply. Today it began to hurt a bit more when breathing.
Bio background if interested:
Male, 27, hispanic/white, 195lbs, no diagnosed diseases, no (current) medications.
Been having health anxiety since a severe panic attack about 2 months ago. It was my first one ever and was not helped by my family well nor was I taken to the hospital to be sure. And to be clear, as much I dont want this to be a drug discussion I had the severe panic attack because of my first time usage and this is also the reason my family did not take me to the hospital. I convulsed, went numb, throst felt like closing, passed out, sweating clammy, foggy ect. This all happened ever since then. Smoked weed this once before the incident, not doing it again. No other drugs. Outside of a severe depressive/anxiety episode following that... there has been a wide range of "symptoms" as you have read. I did take some anti-depressants for three days and stopped due to suicidal ideation. I had nothing of this nature beforehand.
CBC shows elevated RBC, Hemo, Hemocrite (have had in the past, went down and now is back up).
Negative for STDs, Hep A,B, C.
High lipid panel... slightly out of range (high) on cholesterol (214mg/dl), LDL(147mg/dl) and risk ratio (3.67).
Have not tested hormones yet. Calcium and Mag are normal. I am pretty sure I am vitamin D deficient. Going to my GPA with this soon.
Ultrasound coming up to look at abdomen as back pain and GI and urine change is concerning.
Went from 5 meals a day, working out, a gallon of water to a depressive episode where I do not even a quarter of that. Small breakfast, small lunch and maybe dinner. Was "bodybuilding" so I had as much as I could in check. Trying to fix it... believe me.
This forum is truely a place of hope and help and I understand I am only a very worried guest with no diagnosis of and MND. I pray for all of you, afflicted or not (as the anxiety is amazingly powerful as well).
I have to say this...I could describe more and I am scared. Specifically about the trembling, twitching and hands and the sensations following them. Hopefully I get some resolution soon, whatever that may be. Maybe someone has some words to say about this here that can be helpful.
THANKS!
Thanks for reading this long post in advance.
I see a neurologist tomorrow. My PCP (who I have only known for a month), urologist, pulmonary, cardiology, ER physician... all have said its stress/anxiety/depression... why isn't this enough? I am unsure.
To be fair to myself, the twitches, trembling, hand weakness, mouth issue ect. (explained below) started after I saw them and before I have seen a neurologist. So no MND exclusion yet. The pinned DIHALS anxiety thread echoes through my mind right now as I write that...
Short story... muscle twitching all over with internal trembling at times. Some pins and needles and just not feeling right. Strength hasn't left (i dont think, have tested with my family's help) but my hand weakness, finger movement and reactions are concerning and my sleep and diet are currently crap for which I am trying to work on too...
Long story... I have had a lot of muscle twitching all over... started about 4 weeks ago in my intercostal and, basically, it is now happens everywhere. Top to bottom, you name it, its twitched (even my privates, internally...). Does seem to stop when I move (maybe just harder to detect). When standing still I have maybe 1 or a few. Laying down or sitting... it comes on more. Before bed and sleeping... it can get "bad". Wife was woken up one night by a few hard twitches. On the same night I had it really bad at the bottom of both feet it woke me up. This has been happening every night with moderate to low intensity. The only place I feel I haven't had very noticeable twitches is my head but I think I have... just they are not as strong and are quick to disappear when I reach to feel.
Recently I had some (procevied) issues with swallowing, tounge and mouth control. Feels like I have struggles speaking at times like pushing my voice out as it hurts the muscles required for talking (job has me talking a lot). Tried my best to chalk it up to over-thinking but it persisted the entire evening... freaked me out because as much as I ignored it it would get a bit worse and eating physically felt difficult so I was refusing to eat admitting though it seems to have passed but I have been having weird sensations in my mouth area, sometimes a feeling of numbness or lack of control, some sensation of uncontrolled movement... have had a weird lump feeling deeper in my esphogus as well. Have ignored that portion for weeks.
I do also feel an internal trembling. Started inside my abdomen and I seem to feel it like my twitches, almost at random, and in random spots, but lately it's been in my abdomen under my ribs on both sides, inside my right hand and inside my right foot and leg. Not all at once though. Sometimes I feel it might be my heartbeat but it does feel noticeably different than that at times. Wife can feel it very slightly... although she feels the twitching, she thinks it's mostly in my head. It was very strong in both legs last night.
Pins and needle sensations since then as well... not localized, same as the twitches. They can be weird feeling but do not tend to last. Again, all over the body and at random. Like random pin point pain to groups of stars like pain, almost a cut-off-of-circulation feeling, but localized and strong.
No real muscle weakness, almost feels like both hands are weak, at times I will use my hands and they can feel weak, today my right hand felt particularly weak and loss coordination and it is honestly scaring me... but I challenge it and I seems I still have strength and coordination though determination but its hard to tell... sensation seems a little less on my right side but super hard to tell if it is actually that or im panicing... cause I'm not trying to precieve anything and they feel weak. I am right handed and it just feels like my right hand is not right lol... trembles when I try to reverse flex with resistance, the back of the hand does feel slightly numb as compared to the other side a bit ever so slight I might be thinking too much into it... some loss in muscle mass as I stopped working out and I was a gym and nutrition rat. I am lossing weight little by little everyday.. I chalk this up to not only stress but I am not eating as much. Maybe a bowl of oatmeal, a decent sized lunch, and maybe supper.
Some fatigue that creeps up after work (took a month off after the panic attack). I have had a pain in my middle back but I believe it was due to posture and largely it went away but still seems present. And today it was worse. Right in the middle of my back and my chest also hurts and burns. Speaking of which.. heartburn has returned to normal levels, almost non-existant, hurts very little when I breath deeply. Today it began to hurt a bit more when breathing.
Bio background if interested:
Male, 27, hispanic/white, 195lbs, no diagnosed diseases, no (current) medications.
Been having health anxiety since a severe panic attack about 2 months ago. It was my first one ever and was not helped by my family well nor was I taken to the hospital to be sure. And to be clear, as much I dont want this to be a drug discussion I had the severe panic attack because of my first time usage and this is also the reason my family did not take me to the hospital. I convulsed, went numb, throst felt like closing, passed out, sweating clammy, foggy ect. This all happened ever since then. Smoked weed this once before the incident, not doing it again. No other drugs. Outside of a severe depressive/anxiety episode following that... there has been a wide range of "symptoms" as you have read. I did take some anti-depressants for three days and stopped due to suicidal ideation. I had nothing of this nature beforehand.
CBC shows elevated RBC, Hemo, Hemocrite (have had in the past, went down and now is back up).
Negative for STDs, Hep A,B, C.
High lipid panel... slightly out of range (high) on cholesterol (214mg/dl), LDL(147mg/dl) and risk ratio (3.67).
Have not tested hormones yet. Calcium and Mag are normal. I am pretty sure I am vitamin D deficient. Going to my GPA with this soon.
Ultrasound coming up to look at abdomen as back pain and GI and urine change is concerning.
Went from 5 meals a day, working out, a gallon of water to a depressive episode where I do not even a quarter of that. Small breakfast, small lunch and maybe dinner. Was "bodybuilding" so I had as much as I could in check. Trying to fix it... believe me.
This forum is truely a place of hope and help and I understand I am only a very worried guest with no diagnosis of and MND. I pray for all of you, afflicted or not (as the anxiety is amazingly powerful as well).
I have to say this...I could describe more and I am scared. Specifically about the trembling, twitching and hands and the sensations following them. Hopefully I get some resolution soon, whatever that may be. Maybe someone has some words to say about this here that can be helpful.
THANKS!