virtuetovicee
New member
- Joined
- Oct 26, 2018
- Messages
- 4
- Reason
- Learn about ALS
- Country
- LT
- State
- Fabijoniskes
- City
- Vilnius
Hello,
First of all thank you who will read my story. It is hard time for me now and i thought over of other possibilities, that could affect my health, but only bulbar ALS pops up in my mind.
Everything started on march. I had a flu type virus for about two weeks and my left face side was really aching. I guess this brought the onset of what I am experiencing today.
It has been over 7 months since these symptoms are going on and i felt no improvement:
body wide twitching, but specific problems have been primarily one sided - left
mild cramping, stiffness
wide spread muscle and joint pain all over body
periodic nausea
muscle fatigue and overall fatigue
i can walk only short distances and i am very slowed down
my balance is poor
The most worrying symptoms began two months ago and i understood that this hell will never gonna end:
tightness and biting in my left cheek
face twitches at rest mostly - in my nose, chin, cheeks, lips, eyebrow - everywhere!
tongue problems - twitching, tingling, scalloped edges, others say that i am still not slurring but i began to talk differently like my tongue position has changed and i began to lisp and stumble on my words
saliva in my lip corners
lump in my throat, hoarseness, tight and sore throat
itching everywhere in my face - especially in my nose area
I have done a lot of blood tests, MRI of spine and head- nothing wrong and i had two clean EMGs of limbs (my left leg, left and right hands) before my bulbar symptoms began. I am waiting for my neurologist appointment on December and i am very anxious of what awaits me.
I decided to write here because my appointment is after two months and i doubt that i will get bulbar EMG in my country. To rule out ALS i guess my neurologist will ask me to wait.
I know that there is no hope and i have to plan my different and short future, but there is one thing that concerns me, that at first i had whole body symptoms and i am still now, but my limb EMGs was clean. Can bulbar ALS began like global thing? What do you think, do i have hope?
First of all thank you who will read my story. It is hard time for me now and i thought over of other possibilities, that could affect my health, but only bulbar ALS pops up in my mind.
Everything started on march. I had a flu type virus for about two weeks and my left face side was really aching. I guess this brought the onset of what I am experiencing today.
It has been over 7 months since these symptoms are going on and i felt no improvement:
body wide twitching, but specific problems have been primarily one sided - left
mild cramping, stiffness
wide spread muscle and joint pain all over body
periodic nausea
muscle fatigue and overall fatigue
i can walk only short distances and i am very slowed down
my balance is poor
The most worrying symptoms began two months ago and i understood that this hell will never gonna end:
tightness and biting in my left cheek
face twitches at rest mostly - in my nose, chin, cheeks, lips, eyebrow - everywhere!
tongue problems - twitching, tingling, scalloped edges, others say that i am still not slurring but i began to talk differently like my tongue position has changed and i began to lisp and stumble on my words
saliva in my lip corners
lump in my throat, hoarseness, tight and sore throat
itching everywhere in my face - especially in my nose area
I have done a lot of blood tests, MRI of spine and head- nothing wrong and i had two clean EMGs of limbs (my left leg, left and right hands) before my bulbar symptoms began. I am waiting for my neurologist appointment on December and i am very anxious of what awaits me.
I decided to write here because my appointment is after two months and i doubt that i will get bulbar EMG in my country. To rule out ALS i guess my neurologist will ask me to wait.
I know that there is no hope and i have to plan my different and short future, but there is one thing that concerns me, that at first i had whole body symptoms and i am still now, but my limb EMGs was clean. Can bulbar ALS began like global thing? What do you think, do i have hope?
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