Old 10-02-2018, 12:39 PM #1 (permalink)
Samtony981's Avatar
Banned
 
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Samtony981 Samtony981 is offline
Banned
Samtony981's Avatar
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Default Not sure itís ALS

Hello, for about 3 months I have been having very odd symptoms. Twitching all over, face spasms when squinting or smiling, lost a lot of stamina , 3+ brisk reflexes and now this past week I’ve had arm weakness. I have seen a neurologist and he said everything is probably normal but he’ll schedule an emg about 2 months from now.

I had no idea what an emg was until I searched it up and saw it was one way to detect ALS. Up until the arm weakness which the neurologist hasn’t seen yet I wasn’t worried however with this arm weakness I have become worried. Anytime I grip something hard to push or pull my arm begins to shake and when i bend my right arm my bicep does this weird thing where it flutters/ vibrates. Although I understand this is not clinical weakness could this weakness eventually lead to clinical weakness? Have you guys had someone on here where his arm shakes when pulling/ pushing/ flexing? Any advice/ information would be greatly appreciated. ( I have also read the failing not feeling thread) thank you all in advance

Last edited by ShiftKicker : 10-02-2018 at 03:29 PM
Samtony981 is offline  
Old 10-02-2018, 02:12 PM #2 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 11,463
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 11,463
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Not sure itís ALS

I think if you read that 'failing not feeling' important post again you will see that you are perceiving, or feeling weakness, which is not how ALS starts. Maybe read it a couple of times, as we try to be really specific there.

The EMG is used to look for many kinds of diseases and nerve problems, ALS is one of the rarest ones it may detect.

If your neurologist says all is probably normal, then you can relax and let them work on this, but jumping straight to a rare terminal disease doesn't make any sense. You are not describing ALS in any way, so that's great news.

All the best.
affected is offline  
Thanks from
Samtony981 (10-02-2018)
Old 10-03-2018, 10:15 PM #3 (permalink)
Samtony981's Avatar
Banned
 
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Samtony981 Samtony981 is offline
Banned
Samtony981's Avatar
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Default Re: Not sure itís ALS

Thank you for your reply it has definitely made me feel a lot better. Iím just curious on a couple things/ have a couple questions. I completely understand what youre saying about perceived weakness but with me my hands/ arm/bicep physically shake when I pull on something or putting something down or grip on something hard so wouldnít that be some type of real weakness and not be perceived? Also I know most people with als begin with clinical weakness which i definitely donít have but isnít it possible in my situation that my neurons are dying which is what is causing my hand or biceps to shake when doing certain things? Sorry if what Iím saying is odd Iíd just like to understand this a bit more. Thank you again for your reply.
Samtony981 is offline  
Old 10-03-2018, 10:53 PM #4 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 7,079
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 7,079
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Not sure itís ALS

ALS doesn't cause recurrent shaking as much as inability to push/pull/flex, in your examples. It is not that you feel effort as much as it doesn't happen.

Systemic disease is as possible as neurologic diseases, so I would start with your internist.
lgelb is offline  
Old 10-04-2018, 05:21 PM #5 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 11,463
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 11,463
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Not sure itís ALS

mate there is no reason to think that your symptoms would somehow be different.

no ALS apparent in anything you write.

as Laurie says, shaking on exertion is NOT an ALS symptom, so that's great news. I'm pretty sure we make that clear in the post you have been asked to read
affected is offline  
Old 10-23-2018, 05:41 PM #6 (permalink)
Samtony981's Avatar
Banned
 
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Samtony981 Samtony981 is offline
Banned
Samtony981's Avatar
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Default Re: Not sure itís ALS

Hi everyone, thank you all for your initial replys it has made me feel a lot better over the past 2-3 weeks.

I wanted to update you guys in a couple more symptoms I have been having. I have noticed that now my muscles have been making this popping sound for instance when I make up in the morning to stretch my hands or during the day, I hear this popping sound around my shoulder and arms kind of like when you crack your knuckles. I haven't really heard about this being an ALS symptom but just wanted to ask you guys if you had anyone else like this.

Also before when I spoke about shaking, it has become more of a essential tremor. If I use a spoon to eat food, as the spoon approaches me, my hands begin to vibrate. I know I mentioned this in my initial post but because this is a essential tremor I was wondering if people with als experience this initially because I even saw online that essential tremors are a symptom of als, but also seen people here say essential tremor is not an als symptom.

Thank you all again for your replys I really appreciate it.

Last edited by ShiftKicker : 10-23-2018 at 05:53 PM Reason: paras
Samtony981 is offline  
Old 10-23-2018, 05:55 PM #7 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,992
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,992
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
Default Re: Not sure itís ALS

Hello-

It's not clear if you've read the READ BEFORE POSTING! Answers to common concerns about possible symptoms! post or not. It covers your questions and should reassure you.
ShiftKicker is offline  
Old 10-23-2018, 06:06 PM #8 (permalink)
Bestfriendstilltheend's Avatar
Senior Member
 
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 564
Bestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really nice
Bestfriendstilltheend Bestfriendstilltheend is offline
Senior Member

Bestfriendstilltheend's Avatar
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 564
Bestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really nice
Default Re: Not sure itís ALS

Nothing at all like ALS. Please, as Shiftkicker says, read the pinned post so as to assure yourself you no longer need to be here, either to post more questions or add more symptoms.

Take good care
Bestfriendstilltheend is offline  
Thanks from
Samtony981 (10-31-2018)
Old 10-31-2018, 12:53 PM #9 (permalink)
Samtony981's Avatar
Banned
 
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Samtony981 Samtony981 is offline
Banned
Samtony981's Avatar
Join Date: 2018
City: San Diego
State: California
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 4
Samtony981 is on a distinguished road
Default Re: Not sure itís ALS

Thank you to all those who responded it means a lot. I have read that post many times but it had never mentioned tremors or muscle popping (whenever I move my right shoulder I hear a popping sound) but when I searched on this forum I have seen a few people had those symptoms which is why I was confused. I am trying very hard to get over this issue because inside I have this strong feeling I don't have ALS but when these issues persist like this its hard to move on. Any advice or explanations as to why I am having these symptoms would be greatly appreciated.
Samtony981 is offline  
Old 10-31-2018, 01:25 PM #10 (permalink)
Bestfriendstilltheend's Avatar
Senior Member
 
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 564
Bestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really nice
Bestfriendstilltheend Bestfriendstilltheend is offline
Senior Member

Bestfriendstilltheend's Avatar
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 564
Bestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really niceBestfriendstilltheend is just really nice
Default Re: Not sure itís ALS

Sam,

For any and all general health questions, which these are b/c they are not related to ALS, please refer to your PCP. This is not a general health forum.

For the record, I've not seen any PALS complain of muscles "popping". It's only been those with health anxiety and an ALS fixation to complain of such things.

Good luck to you in the future. Please try and be grateful for not having ALS instead of being bound and determined to have it. My husband would trade places with you in a heart beat.
Bestfriendstilltheend is offline  
Thanks from
Samtony981 (10-31-2018)
Closed Thread

Tags
advice, als, arm, arm weakness, clinical, emg, flexing, flu, information, lead, neurologist, spasms, symptoms, twitching, weakness, worried


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


All times are GMT -5. The time now is 03:37 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016