Old 08-11-2018, 08:57 PM #1 (permalink)
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Default Really anxious awaiting Neuro but wanted to get opinion

So I want to start by saying thank you so much for taking the time to help out with any input. This has been an extremely nerve wracking few months. I have been to the ER multiple times for various symptoms and other specialists.

I started out in May with intense tingling all over my body mainly the left side and then it turned to burning. The sensation moved around from my face to hands, feet etc. it was so uncomfortable to the point I couldn’t bare it. Then I had heart palpitations I’m guessing do to stress but I saw a cardiologist and atleast know my heart is 100% great. Then after this all stopped I began the twitching primarily in my legs But moved around.

Symptoms all stopped and then came back about a week ago except tingling only lasted two days and then the twitching came on and had not left me in a week now. I only really notice it when laying still. It’s very concerning...

I had a brain MRI and that ruled out MS so now I’m waiting to see the neurologist. I’m in a lot of anxiety waiting .... also had some on and off cramping in calf and hand. Does any of this sound like ALS or do any of you have suggestions on what it could be??

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Old 08-11-2018, 09:27 PM #2 (permalink)
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Default Re: Really anxious awaiting Neuro but wanted to get opinion

Hi Megn-

Please have a read here: READ BEFORE POSTING! Answers to common concerns about possible symptoms!

It covers pretty much all of what you posted and will hopefully reassure you about ALS.
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Old 08-11-2018, 11:29 PM #3 (permalink)
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Default Re: Really anxious awaiting Neuro but wanted to get opinion

Take out all "feels like", burning, tingling out of your post. There's nothing left. And to give more comfort, ALS nevers comes and goes. It comes and keeps coming. The best you can hope for is a plateau where things don't get worse as fast. I see no ALS. You are free to go.
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