Recommendation for best neuromuscular/ALS neurologist in Europe

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dott

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Dear all, this year I decided that I will get a diagnosis of something no matter what. I have collected money and need recomendations.
Please give me names of best neurologists in Europe.
Thank you, kind regards!
 
Do you count the UK and Ireland?

Orla Hardiman in Ireland.

Martin Turner and Kevin Talbot at Oxford

There are certainly others there too

On the Continent there will be excellent doctors. I know a lot of good work is done at Utrecht. There are others I am sure

ENCALS has a list of centers https://www.encals.eu/centres/
 
Ofcourse I count UK and Ireland.

I already contacted Utrecht, it is high on my “list”. I’ve heard of Sheffild with proffesor Pamela Shaw also...i just want to be sure that I go to best of best in diagnostic process...
 
Professor Pamela Shaw is excellent. So is Christopher Shaw in London
 
Professor Pamela Shaw replied on my e-mail that it is nit possible for her to examine patients from the continent, only UK citizens...is that Utrecht hospital best on the continent? The best neurologist there is I think Leonard van der Berg.

Since my problems are really unspecific I need someone really great to even have a clue what is happening to me. Neurologists in my country all say it is bfs, but bfs doesnt have any weakness with it. And yes, I know that I dont have clinical weakness, but I can’t raise my left pinky on it’s own high enough like on my right hand...and since I’m piano player...it really bother me.
 
I have heard good things of Professor van den Berg. I am sure there are excellent doctors elsewhere on the Continent

The issue with seeing an ALS specialist is that if your issue ( as is likely) is not ALS you may leave with the answer not ALS but not what it is
 
Yes, if you schedule with him or anyone, try to arrange a "fallback" consultation at the same center via the ALS specialist's referral, so you are not back at the beginning.

If the problem is basically with your pinky, I would see a hand surgeon if you haven't.
 
I have heard good things of Professor van den Berg. I am sure there are excellent doctors elsewhere on the Continent

The issue with seeing an ALS specialist is that if your issue ( as is likely) is not ALS you may leave with the answer not ALS but not what it is

I agree with you girls, but I really don’t know where else to turn. I deeply inside believe that I don’t have ALS since I’m suffering for that long, and am normal functioning truought the day. So i’m counting that maybe some of them seen some similar cases and know where to turn. I had blood cortisol levels checked and it is high. That is for now only thing that is not in range. But it could be because I’m stressed all the time. For now I have been to numerous neuromuscular neurologists and to one rheumatologist. Don’t know where else to turn. This condition is so strange.
 
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