Old 06-10-2018, 08:13 AM #1 (permalink)
Racer's Avatar
New Member (Say Hi)
 
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Racer Racer is offline
New Member (Say Hi)
Racer's Avatar
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Default Worried

Hello. 21 year old with extreme hypochondria. Starting in March of 2017 I was having muscle twitching in my right leg, but primarily the calf muscle. Also, I woke up a few times with the right calf muscle cramped. On top of that, it would cramp up after running, a lot. The twitching quickly spread to the rest of my body but I never thought much of it. In December of 2017, I noticed that when I would pour something with weight, my wrist/hand would shake. Around that same time, I noticed that my knees and ankles would shake when I put weight on them. There is also a sense of heaviness in the left shoulder/arm, but it has not gotten much worse. In March of 2018, I noticed that when I would drink water it seemed to go down one side of my throat. The shakiness that was in my legs was now noticeable throughout my entire body. Still able to run, jump, stand on toes, walk in heels, etc. In May of 2018 on a beach trip, I was sitting chest deep in a pool and noticed that it took a decent bit of effort to take a full breath. On my way back from the beach I had a moment where I became very hot, dizzy, and felt as though I nearly fainted. When I got back in town, I saw a neurologist (who specializes in ALS) who did a physical strength exam that he deemed normal. He didn’t seem to have concern for the twitching, shakiness, one sided throat sensations, or breathing feelings. I continued to go off he deep end with anxiety and I have had very little sleep over the past week. I convinced my gp to schedule an emg for next but I have extreme anxiety.

Other symptoms:
-dizziness that started in June 2017
-occasional pain when moving eye
-arms and legs EASILY fall asleep
Racer is offline  
Old 06-10-2018, 09:07 AM #2 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,524
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,524
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Worried

You had a normal exam and the neuromuscular specialist said it did not sound like ALS and did not order the EMG. We will only agree with that doctor. None of this makes me even consider ALS

I doubt the EMG will reassure as your admitted health anxiety will tell you fabricated reasons why you should not believe a normal result and heaven forbid you get any of the little glitches seen in many healthy people!

Please ask your pcp for help with the health anxiety as that will be your road to wellness. CBT is usually the treatment of choice
Nikki J is offline  
Thanks from
Angiegal (06-11-2018)
Old 06-10-2018, 09:24 AM #3 (permalink)
Racer's Avatar
New Member (Say Hi)
 
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Racer Racer is offline
New Member (Say Hi)
Racer's Avatar
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Default

Thank you for your reply. However I am still concerned with the twitching, body shakiness when exerting a force, and swallowing problem. The anxiety of this has caused me to miss a week of work and I have gone back to my pcp several times.

But can anyone comment on the symptoms?

Last edited by Nikki J : 06-10-2018 at 10:39 AM
Racer is offline  
Old 06-10-2018, 11:42 AM #4 (permalink)
Clearwater AL's Avatar
Very Helpful Member
 
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,340
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Clearwater AL Clearwater AL is offline
Very Helpful Member
Clearwater AL's Avatar
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,340
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Default Re: Worried

Racer, as you wrote...

"Hello. 21 year old with extreme hypochondria."

First, at 21 years old your odds of having ALS are near Lottery odds.

You just had a reply from Nikki who is a extremely knowledgeable
member of this forum.

Please listen to those who may contribute to your Thread.
Clearwater AL is offline  
Old 06-10-2018, 12:42 PM #5 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,895
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,895
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: Worried

My only suggestion is listen to Nikki.

See your primary care doctor and tell her/him your concerns.
KimT is offline  
Old 06-10-2018, 01:58 PM #6 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,304
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,304
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Worried

Likewise, please work with your PCP to find a counselor to work with you on reducing the anxiety, considering at least short-term medication as well since you are missing work. Anything else is a waste of your life and our time.

Best,
Laurie
lgelb is offline  
Old 06-11-2018, 02:36 PM #7 (permalink)
Racer's Avatar
New Member (Say Hi)
 
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Racer Racer is offline
New Member (Say Hi)
Racer's Avatar
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Default Re: Worried

Thank you for the replies. Still dealing with lots of anxiety. Went back to gp today in panick. Most current worries right now:

-swallowing feels “one sided” and feels like I have saliva accumulating at the back of my mouth. I do keep swallowing often in worry.

-“tremble” feeling in all of my muscles included neck, back, thigh, mouth, knees, ankles, butt. By this I mean the muscles shake when I use them.

-left shoulder feels kinda heavy and sometimes the trap area twitches. This varies day to day.

-twitching all over body

-shortness of breath feeling throughout the day. Seems to be on the same side as the heavy shoulder and throat feeling.

-I keep checking myself for atrophy. It looks like my tongue sits a hair lower on the side with the weird swallowing problem.


This is all driving me insane as I’ve been told by an als specialist that he didn’t have the slightest inclination that I had any kinda of neuro related issue. I also forgot to mention that I had pilondidal cyst surgeries about 5 years ago during that time I set kinda lopsided to prevent sitting on the wound. About three years ago I developed a sciatica pain and numbness when standing for periods of time. It spread to both legs but eventually went away about 6 months ago.
Racer is offline  
Old 06-11-2018, 03:21 PM #8 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,720
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,720
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
Default Re: Worried

Racer-

No one here can really help you with the reason for your symptoms- 4 people have provided the exact same advice. To continue asking after this means you are unable to hear what people are telling you. It is VERY important you understand that you are inviting seriously ill folk and their caregivers into feeding your health anxiety. This is energy they have limited access to, and your anxiety will consume it all as you continue to come here to ask these people for reassurance. You must go to a doctor to get the care and medical attention you need.

Unless you are coming back here to report what happened at a doctor's visit, please do not post again. If you post anything other than a report from your doctor's visit, this thread will be closed. Please listen to what others have posted to you above and see a doctor.

Last edited by ShiftKicker : 06-11-2018 at 06:03 PM
ShiftKicker is offline  
Thanks from
Clearwater AL (06-18-2018)
Old 06-18-2018, 08:17 AM #9 (permalink)
Racer's Avatar
New Member (Say Hi)
 
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Racer Racer is offline
New Member (Say Hi)
Racer's Avatar
Join Date: 2018
City: Knoxville
State: TN
Country: US
Interest: Other
Posts: 4
Racer is on a distinguished road
Default Re: Worried

Had an emg this morning on arms. Was freaking out the entire time. It make quite a noise when we put the needle in, which freaked me out. He finished up and said everything was normal. Was still concerned about the loud noise.
Racer is offline  
Old 06-18-2018, 08:27 AM #10 (permalink)
Bestfriendstilltheend's Avatar
Member
 
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 372
Bestfriendstilltheend has a spectacular aura aboutBestfriendstilltheend has a spectacular aura about
Bestfriendstilltheend Bestfriendstilltheend is offline
Member

Bestfriendstilltheend's Avatar
Join Date: 2017
City: Calgary
State: Alberta (AB)
Country: CA
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 372
Bestfriendstilltheend has a spectacular aura aboutBestfriendstilltheend has a spectacular aura about
Default Re: Worried

Congrats on the normal EMG. Now go get help with your hypochondria as that is your only health problem from the sounds of it.
Bestfriendstilltheend is offline  
Thanks from
Clearwater AL (06-18-2018)
Old 06-18-2018, 08:29 AM #11 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,524
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,524
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Worried

EMGs are noisy. Period. Normal EMG which you should never have had given the neuromuscular doctor’s opinion. You badgered your pcp into ordering it. As I predicted your health anxiety is fabricating reasons not to believe it was normal.

See your pcp and ask for help for health anxiety. It is ruining your life.

Closing this thread. Do not start another
Nikki J is offline  
Thanks from
Clearwater AL (06-18-2018)
Closed Thread

Tags
anxiety, arm, back, breathing, early, emg, heaviness, hypochondria, muscle, muscle twitching, neurologist, pain, running, shoulder, sleep, symptoms, trip, twitching, worried, wrist


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Worried about having ALS Devinflemming Do I Have ALS? Is This ALS? 7 01-07-2017 07:28 PM
Worried I Have ALS Shawn7 Do I Have ALS? Is This ALS? 7 01-01-2017 09:04 PM
Worried! Florider Do I Have ALS? Is This ALS? 2 12-05-2016 11:43 PM
Worried. Chuch11 Do I Have ALS? Is This ALS? 2 09-23-2016 10:00 AM


All times are GMT -5. The time now is 01:42 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016