All my symptoms seem ALS!

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bero

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Learn about ALS
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Hello,
I am 14 months ago suffering from sudden fatigue and weakness in all the muscles including face and neck, with sore in right arm when using for a while, difficult to concentrate, difficult to swallow, difficult to make decisions (quit from my job).
Did MRI for spinal and Brian twice, spinal tap, blood tests, emg everything came normal.
Last emg was from 5 months ago came normal.
There were a twitching from time to time in my chest and eyes and arms. BUT from 1 month ago, there were constantly twiching in the bottom of the both feets especially left one, which seems like needls and i can see it, some random twitching in arms too. Also more fatigue and weakness in legs, short breathing a bit.
I see the rapid progressive of weakness, i wake up with difficult to getup on my legs.
I think that all my symptoms indicated me to ALS.
I would ask you if I can take a medicine in this stage or wait more?
Thanks
 
First your post was moved to this subforum as you do not have a diagnosis. Pleae read in entirety the post at the top of this subforum entitled Important post read before posting.

I suggest that you return to see your doctor for a reassessment to find out if you have actual clinical weakness and to assess your breathing. Twitching means nothing.

Do doctors ever prescribe riluzole before a diagnosis? I have only ever seen it happen with people who are documented gene positive FALS who are starting symptoms and even then it is doctor dependent

From what you describe it sounds like you are not even close to a diagnosis but see a doctor and go from there
 
Sorry because i did not read the rules first!
I saw my doc from 1 month ago, and there is not evidence of weekness, so he just suggest another emg but after 2 months from now.
I am like disabled, can not think, more difficult to do normal daily activities, twiching and vibration in left foot around constantly, can not walk normally, difficult to walk.
I feel all ALS symptoms, but the specialist neurologic doc told me he do not think so!
Which i do not understand! I mean is the situation is i should wait until can not catch or walk to be diagnosis?
I do not know what to do?just wait?
Thanks for understanding!
 
With a normal EMG - or two (?) your odds of ALS, speaking mind you as a non physician have gone from .0009% to even closer to zero.

As Nikki has wisely stated, read the stickies and follow your Doctor’s advice. At this point and from what you are saying, I for one would be shocked if you were diagnosed with ALS.
 
Thanks for your reply Lenore,
I am off from 14 months, no one can give me any diagnosis for my symptoms, many doctors told me it is phsycological issues, but on doctor told me let is treat you psychologically and then we will see after 2 years!!
My nervous study was from 12 months ago and it was normal.
EMG from 5 months ago was some mild issue in muscles - repeated EMG after 1 day from the first EMG with a specialist in nervous and muscles it was normal.
1 months ago clinical exam shows no evidence of weakness, and arrange another EMG after 2 months from now.
I am lost, i visited more than 32 doctors, no one give me any diagnosis, and i am around disable - i feel big problem in my head (can not focus, can not think, can not make decisions, all muscles pain when press, stomach problems) with all other symptoms similar to ALS including fatigue.
I am 34 years old and i feel that i will die each moment, i hate the life totally - not interested in anythings.
I thought all of those related to nervous brain problems like in ALS, am i right?
 
With advice from your neurologist, a clean EMG and symptoms that aren't indicitave of ALS, I'm not sure you'll be getting a diagnosis of ALS at all. Keep seeking answers from medical professionals regarding your symptoms.

Again, too many things point away from ALS, which is great as I've never heard of ALS starting in the way you have described at all. Have your doctors ever mentioned somatoform disorder?
 
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Your mind can make your body sick. I know from experience. When depression set in when I was in my 40s, I experienced dizziness, weakness, pain, fear, increased acid reflux and resurgence of migraine headaches. I was sick every day until I started taking Remeron. About three weeks into Remeron most of my symptoms were reduced or eliminated. I still had acid reflux and some dizziness but those were there before. I felt 90% better and continued on with my life. I'm still taking Remeron and always will.

Take care of your mental health so you can see what is left to work on. I'd suggest a psychiatrist and a counselor. You can do this while working with your primary care physician.
 
32 doctors? And clean EMG just 5 months ago? You need to care for yourself
 
With advice from your neurologist, a clean EMG and symptoms that aren't indicitave of ALS, I'm not sure you'll be getting a diagnosis of ALS at all. Keep seeking answers from medical professionals regarding your symptoms.

Again, too many things point away from ALS, which is great as I've never heard of ALS starting in the way you have described at all. Have your doctors ever mentioned somatoform disorder?
Thanks for your reply!
First, doctor mentioned me somatoform disorder!
But after he made EMG he told me maybe it is mid mypothy, then he adviced me to repeat EMG with professional specialist how told did repeat EMG and told me it is normal!!
I am afraid from misdiagnosis normal!!
My small muscles in the bottom of feets and hands weak and i feel tired when using mobile or anything.
Is it any indication for ALS or serious muscles and nerves diseases?
Is it may start like that?

Thanks alot!
 
32 doctors? And clean EMG just 5 months ago? You need to care for yourself

Thanks for your reply!
I was lost, as no one have any diagnosis, and the first EMG was mild mypothy, then after one day another EMG with normal!!
I am afraid from misdiagnosis, that's why I went to many docs in many field to control my symptom.

Thanks!
 
Please stop quoting every reply. It makes it much harder for people with ALS to scroll when threads are long. Address the individual by user name if you must, though repeating the same thing to each responder is not necessary.

You have seen 32 doctors, neither emg remotely indicated ALS and your symptoms do not sound like ALS to us or, obviously, to your many doctors! You are not believing us which is your right but you have asked and been answered. I am closing this thread. Do not start another unless you have seen a doctor and been told by THEM ALS is likely. ( that is not going to happen).
 
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