I have no GP. I make to little for ACA and to much for Medicaid, i I'm fortunate like 2 million other in my state who fall in th at no man's land. So after trying my best to Man through it, i was falling, literally and figuratively. I searched out the only free health clinic available. As one may imagine, it's not the Mayo clinic. A RN is your GP, which is fine, but I went through 3 of these because they kept losing them. And what took me a matter of a week or two with insurance took months.
Finally a few months shy of one year i was scheduled with the volunteer neurologist. It wasn't until my third visit with him that I realized he didn't remember me or know how to use the clinics computer to review my records. He had not even reviewed my records! The frustration was unbelievable, a true test of patience. An EM G was ordered, abnormal, with polyneuropathy. I asked the usual questions, what is causing the neuropathy, is this reason for fasciculations, is it axonal or demylinating? answers "unknown cause, let's wait 3 years and see where it goes, your faciculations if you have them are from stress, and an EM G can't determine between axonal and dymelinating.
Over the course of year and half i had a handful of follow ups. Three that he actually touched me for neur o work up, of which he found absent reflexes and loss of reflexes from previous exam. On each of these three exams he ordered a full body EMG. But the RN advised him that there are no neurologists available to them on each occasion. I pursued this, asking why the local hospital neur o clinic was not taking referals, the RN said they simply were not taking charity care.
My decline continued, knowing the Free Clinic was of no help i went to ER. They gave me a referal to the local hospital neur o clinic. In two weeks i saw neurologist who ordered EMG. This is the EM G I posted. She said that the last EM G was incorrect, likely due to a cold room and that was very common. She then referred me to get lumbar MRI, which came back with issues but does not explain EM G results. She wants to do brain/cervical. I did have an MRI almost two years ago, but I assume, this also does not explain and she would like current(me too). To bad a full MRI was not ordered to begin with.
But now I'm trying to get the neurologist at free clinic to approve so that it's covered. Strange that he had wanted a full EM G so long ago, but now that I had one I'm running into a wall. Obviously after so long of battling and slowly losing I'm anxious for help, treatment and answers. This brings it to current, when I was told by the RN " i have no Right to health care". Of which he is sadly correct. Do I read this as a threat that they will no longer see me? There is much more to this story, unfortunately. I wonder if he realizes that even non profit health care entities have guidelines or if he believes its their right to operate any way they will because they serve the poor? It seems the latter.
I have recently discovered the term, medically indigent adult, MIA's, where you are treated as sub human and there is no concern if you fall before diagnosis, treatment or cure. S o here I am, trying to research, search and hopefully find some helpfull, knowledgeable advice not from health care providers but from the other side.