Ozcar
Member
- Joined
- Sep 22, 2014
- Messages
- 10
- Reason
- Other
- Country
- IN
- State
- Maharashtra
- City
- Mumbai
Dear All,
Its been a while and all of you have been in my prayers everyday.
Sorry that I have landed back here but really need your guidance regarding my recurring issues, as mentioned in my old post I have a list of various issues for past 3-4 years including twitching, weakness, numbness etc, I will not waste your time writing all that again, but as mentioned before I did various testing such as EMGs of limbs , MRIs etc and no diagnoses, lately right arm, hand and wrist very bad, feels weak, slow and twitching as well, neck and stomach cramps and spasms/twitching as well and pain in some area of body such as hips without any exercise.
Last September I developed some coughing and swallowing issues, I was investigated for that as mentioned in last post, they did barium x ray swallow study, manomatry , and PH24 monitor , everything was relatively ok but as expected I had acid reflux to some degree which I have had for many years, I also developed hoarseness during past months.
I went to many ENTs and they told me it looks good ok in terms of muscle function and vocal folds in throat but said vocal cord look swollen due to maybe coughing and acid reflux, medication for acid reflux doesnt seem to work much either.
Anyways my swallowing didnt get worse for few months and even stabilize for sometime but last 2 weeks very bad again, feel like food getting stuck in throat at every bite, need to take another bite or drink water to help, my weight also gone down more as I dont eat as much , even with water sometimes feel I can drink it only very slow and like my throat muscle tense or hard and sensation that will
Choke if not careful, however honestly I never choke or gag when eating yet, just slight water or feel like food stuck in throat which causes me to clear throat, or sometimes after I finish meal coughing slightly, lastly feel like something stuck on back of my throat often.
Apart from that tongue also feels tired easily, discomfort in back of throat and soft palate also feels tired, voice gets tired as well if talking to much and feel breathless sometime, lung doctor already check me and said everything ok. No faculations of tongue also, have issue with clearing saliva sometime also like it stuck in throat especially when lay down. At night sometime wake up and need to clear throat or cough.
Last neurologist appointment was clear, follow up found no issues with strength or reflexes, doctor has not ordered new Emg almost 1 and half year.
Does it sound like any problem related to MND (ALS)? Last barium swallow was not modified barium which also makes person eat and drink but doctor said everything look ok so need to to do modified ? Also manomatry was normal so contraction is normal. However been 6 months since test? If I have any such issue will it obvious by now or worse ? Do I need to test again ?
Thanks and sorry for long message , thanks Im advance for any answers and sorry for my not so great English, hopefully you can understand
Its been a while and all of you have been in my prayers everyday.
Sorry that I have landed back here but really need your guidance regarding my recurring issues, as mentioned in my old post I have a list of various issues for past 3-4 years including twitching, weakness, numbness etc, I will not waste your time writing all that again, but as mentioned before I did various testing such as EMGs of limbs , MRIs etc and no diagnoses, lately right arm, hand and wrist very bad, feels weak, slow and twitching as well, neck and stomach cramps and spasms/twitching as well and pain in some area of body such as hips without any exercise.
Last September I developed some coughing and swallowing issues, I was investigated for that as mentioned in last post, they did barium x ray swallow study, manomatry , and PH24 monitor , everything was relatively ok but as expected I had acid reflux to some degree which I have had for many years, I also developed hoarseness during past months.
I went to many ENTs and they told me it looks good ok in terms of muscle function and vocal folds in throat but said vocal cord look swollen due to maybe coughing and acid reflux, medication for acid reflux doesnt seem to work much either.
Anyways my swallowing didnt get worse for few months and even stabilize for sometime but last 2 weeks very bad again, feel like food getting stuck in throat at every bite, need to take another bite or drink water to help, my weight also gone down more as I dont eat as much , even with water sometimes feel I can drink it only very slow and like my throat muscle tense or hard and sensation that will
Choke if not careful, however honestly I never choke or gag when eating yet, just slight water or feel like food stuck in throat which causes me to clear throat, or sometimes after I finish meal coughing slightly, lastly feel like something stuck on back of my throat often.
Apart from that tongue also feels tired easily, discomfort in back of throat and soft palate also feels tired, voice gets tired as well if talking to much and feel breathless sometime, lung doctor already check me and said everything ok. No faculations of tongue also, have issue with clearing saliva sometime also like it stuck in throat especially when lay down. At night sometime wake up and need to clear throat or cough.
Last neurologist appointment was clear, follow up found no issues with strength or reflexes, doctor has not ordered new Emg almost 1 and half year.
Does it sound like any problem related to MND (ALS)? Last barium swallow was not modified barium which also makes person eat and drink but doctor said everything look ok so need to to do modified ? Also manomatry was normal so contraction is normal. However been 6 months since test? If I have any such issue will it obvious by now or worse ? Do I need to test again ?
Thanks and sorry for long message , thanks Im advance for any answers and sorry for my not so great English, hopefully you can understand