Foxmark
Member
- Joined
- Nov 12, 2017
- Messages
- 12
- Reason
- Learn about ALS
- Country
- EU
- State
- Italy
- City
- Turin
hello all,
as you can read here https://www.alsforums.com/forum/do-i-have-als-als/40073-mum-diseas-strange-situation.html (a link of my old thread) my mum was diagnosed in Feb 18 with 2nd MND.
doctors said that is not possible to see the future but as we see in her clinical history it is probably that the situation will be worst than now.
from Feb to April and the first 2 months of Riluzolo, my mum has a slightly aggravation in syntoms, especially for stand up into the bathroom for several minutes (from 5 to 10).
as you can see in the upper link, she has left leg problems and somethingh minor into the right.
no bulbar or upper limbs signs that someone put into the periodic check.
the problem is: why in April's check doctors put only MND and not 2nd MND?
is it an accurency error or is it volunteer?
so she has all the equipment for walking safely (AFO from 2014 and walker and wheelchair for long distance).what is not clear is the future (i know that it is impossible to see the future but at least some ideas) and future scenario of the situation, also related to the timing that the problems start, that it is MAy 2013 with problems in walking (not correct foot position when you walk, than ankle problems anof course left leg atrophy under the knee and some minor problems into the right)
EMG show some zone of denervation also and some problems related to communication between muscles and nerves.
i know that is difficult to find out something but i would try to ask here for some helpful idea.
thanks in advance
see you
marco
as you can read here https://www.alsforums.com/forum/do-i-have-als-als/40073-mum-diseas-strange-situation.html (a link of my old thread) my mum was diagnosed in Feb 18 with 2nd MND.
doctors said that is not possible to see the future but as we see in her clinical history it is probably that the situation will be worst than now.
from Feb to April and the first 2 months of Riluzolo, my mum has a slightly aggravation in syntoms, especially for stand up into the bathroom for several minutes (from 5 to 10).
as you can see in the upper link, she has left leg problems and somethingh minor into the right.
no bulbar or upper limbs signs that someone put into the periodic check.
the problem is: why in April's check doctors put only MND and not 2nd MND?
is it an accurency error or is it volunteer?
so she has all the equipment for walking safely (AFO from 2014 and walker and wheelchair for long distance).what is not clear is the future (i know that it is impossible to see the future but at least some ideas) and future scenario of the situation, also related to the timing that the problems start, that it is MAy 2013 with problems in walking (not correct foot position when you walk, than ankle problems anof course left leg atrophy under the knee and some minor problems into the right)
EMG show some zone of denervation also and some problems related to communication between muscles and nerves.
i know that is difficult to find out something but i would try to ask here for some helpful idea.
thanks in advance
see you
marco