Old 04-16-2018, 10:04 AM #1 (permalink)
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Default Possible tongue atrophy

I am a 32 year old male who's been worried I have ALS. I am here because my fears and research keep contradicting themselves. I wanted to ask real people who know.

I have been experiencing very frequent muscle twitches (legs and arms) but I've maintained muscle mass and in fact gained so I discounted that. I tested the nerve reflex on my feet and it showed normal. The pains and cramps I have in my muscles also come with numbness and tingling which I read I aren't consistent with ALS. I tested my grip strength in my hands that feel weak but it comes out to 45-50 kg. Average to slightly above average.

Today though I noticed I have rare but intermittent twitches on my tongue at rest. I can move my tongue normally it seems. It gets tired though and I think I see atrophy on the sides. I sound to myself lately I slur words but my friends, family, and coworkers don't hear it.

Does this look like the beginning of muscle atrophy of the tongue? I apologize if I've wasted anyone's time but I just want to put these fears to rest.
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Old 04-16-2018, 10:32 AM #2 (permalink)
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Default Re: Possible tongue atrophy

Oh the tongue pics...

Not at all. A scalloped tongue can be from dehydration. I have a scalloped tongue and do not have ALS. If you're sticking your tongue way out, like you are in your pic, you don't have atrophy, as atrophy happens AFTER the muscle dies, not before.

You don't belong on an ALS forum, which is great. I have no idea how you happened upon ALS as a consideration but do consider drinking plenty of water and gettting lots of rest. Go to your doc if you have continued concerns.

Take good care.
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Old 04-16-2018, 01:53 PM #3 (permalink)
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Default Re: Possible tongue atrophy

If other people aren't hearing you slur, you're not. Keep hydrated, consider the electrolytes in your diet, sleep and stress. Then take a walk through the arboretum or somewhere beautiful and consider your good fortune in being able to do that.

Put your fears to rest so they don't waste your life.

Best,
Laurie
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Old 04-16-2018, 02:11 PM #4 (permalink)
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Default Re: Possible tongue atrophy

For what it's worth to any future visitors, tongues can get pretty ate up by many things. For me, my tongue was far worse scalloped than the photos above. Looked like cancer, I thought. Docs and dentists tried everything. A cancer specialist took one quick glance and dismissed it. Then I discovered the problem and solution myself:

My diet pill burned my brain. Phentermine increased my metabolism and decreased my appetite. Also caused my mouth to go hyperactive. I was sucking my tongue all night in my sleep, drawing the edges through my teeth. Bad pain, all day for months. Even six months after stopping the med, my mouth is still hyperactive. I learned to change the movements from sucking tongue and grinding teeth, to simply soft oscillations of the jaw.

So now I play show tunes by tapping my teeth all day. Weird, but no pain or damage. And not ALS.
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Old 04-16-2018, 04:10 PM #5 (permalink)
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Default Re: Possible tongue atrophy

I will painfully restrain myself from the torrent of sarcasm searing thru my head...

Also for any future readers, please, please don't post tongue pictures.
To say they're useless is a gross understatement.

Thank you.
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Old 04-16-2018, 04:30 PM #6 (permalink)
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Default Re: Possible tongue atrophy

Tongue pics are gross...I was too chicken to say so, though. Sorry OP!
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Old Yesterday, 06:32 AM #7 (permalink)
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Default Re: Possible tongue atrophy

Thank you to everyone who responded. I again apologize if I have wasted anyone's time and for grossing out anyone with the tongue pics. You have helped ease some of my fears and I am beginning to realize that the majority of what I feel is probably stress related. i have been reading how much stress can effect the body and, like the DIHALS main post says, its about failure instead of feeling.
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