Old 03-28-2018, 07:19 AM #1 (permalink)
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Default Curious about my symptoms

Hello I have been having some muscle twitches for about 3 weeks. I went to a primary care doctor and she said that my reflexes were normal and to relax about my symptoms. I donít seem to have any strength lost but have been having trouble sleeping due to my muscles twitching. It feels like a small flutter under my skin. I can see them when Iím wearing pants and sitting down relaxing and Laying in bed. I also sometimes feel them when Iím standing very still. I get these twitches in my neck, arms, buttocks, legs and feet and hands and face. The doctor I saw said I donít fit the bill for als since Iím 33. I also suffer from anxiety. I just gave birth 4 months ago. Iím very worried about my symptoms but the doctor said I didnít need any further testing since I donít have weakness or over active reflexes. Iím just concerned that the muscle twitches are something more. I also sometimes feel a slight buzzing sensation. I have always, since I was a young girl, felt these fluttering feelings under my skin but they have become more frequent now. Iím wondering if any of this sounds like als.
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Old 03-28-2018, 07:47 AM #2 (permalink)
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Default Re: Curious about my symptoms

It does not. Twitching is meaningless as is buzzing.

Please refer to this thread READ BEFORE POSTING! Answers to common concerns about possible symptoms!

I know you did not read it as you posted in the wrong area
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Old 03-28-2018, 08:25 AM #3 (permalink)
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Default Re: Curious about my symptoms

Thank you for your reply. Iím not sure how to use the forum. I have just been having a rough time. I keep doing strength tests to see if Iím still able to do everything. I am. Sometimes I drop things but I have always been Clumsy by nature but since the twitching Iím second guessing-everything. The doctor tested my grip strength and didnít see any concerns. Again thank you for your reply.
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Old 03-28-2018, 10:36 AM #4 (permalink)
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Default Re: Curious about my symptoms

Sorry to keep posting but the twitches sometimes feel more like kinks under my skin. I’m not sure if that is the same thing.
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Old 03-28-2018, 01:04 PM #5 (permalink)
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Default Re: Curious about my symptoms

Have you read the link Nikki provided? You will find many answers there. If you are not satisfied with your doctor's advice and assessment, or are not reassured by their response, you may need to visit with another. There really isn't anything folks here can do for you with regards to quality and feel of twitches.
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Old 03-28-2018, 01:22 PM #6 (permalink)
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Default Re: Curious about my symptoms

I guess my real fear is coming from having a positive Hoffman sign in both hands. The doctor said that because my other reflexes were not over active that they donít look at the Hoffman. Iíve only tested it on myself and Iíve had three doctors tell me that it is not cause for concern since I have no weakness or loss of function. Iím not even sure if it is a full response. It looks like the tip of my index finger moves but no other fingers and it doesnít happen every time.
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Old 03-28-2018, 01:38 PM #7 (permalink)
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Default Re: Curious about my symptoms

1. You can not self test reflexes. Even someone medically trained can not.
2 IF you actually have a bilateral Hoffman sign performed found by a clinician if it is bilateral it is usually normal.
3 even a unilateral Hoffman in the absence of anything else is probably ok
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Old 03-28-2018, 01:40 PM #8 (permalink)
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Default Re: Curious about my symptoms

Thank you so much Nikki. You have helped ease my mind. Thank you. I will no longer post.
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Old 04-03-2018, 03:30 PM #9 (permalink)
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Default Re: Curious about my symptoms

Sorry to post again but now I am concerned with bulbar onset. I feel like I have to clear my throat a lot and I also noticed that my uvula looks to be hanging low. The doctor who Saw me did not mention that at all so Iím not sure if that is Just how it looks or not. I keep feeling like I sound nasal and am slurring however my entire family keeps reassuring me that I do not. I know some times my words come out too fast and Iím wondering if any of this sounds like bulbar onset. The twitching that I have been experiencing has slowed down quite a bit. It seems to get worse when I start to have an anxiety attack. When the doctor looked At my tongue she said it looked good and that I just looked very dehydrated. Any insight would be helpful thank you
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Old 04-03-2018, 03:46 PM #10 (permalink)
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Default Re: Curious about my symptoms

Oh my goodness. This forum really isn't the place to help you with your concerns about symptoms. Please continue seeking in- person medical care to look for causes for your symptoms. Your stated anxiety attacks can not be helped here- this simply isn't a health anxiety or general medical concern forum. It's a place for people who have ALS and their caregivers- and should not be used as online counseling or a place to self diagnose.

Best wishes
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Old 04-03-2018, 04:04 PM #11 (permalink)
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Default Re: Curious about my symptoms

Sorry I was just wondering if it sounded like als at all
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Old 04-03-2018, 04:07 PM #12 (permalink)
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Default Re: Curious about my symptoms

No, it doesn't. I think anyone reading this would suggest you hydrate, sleep and maybe get a night out with friends, followed by counseling if you continue to be ruled by your fears. Congratulations on your new baby, who certainly deserves your full attention.

Best,
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Old 04-03-2018, 04:07 PM #13 (permalink)
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Oh Lord, please move on. Your doctor told you you were dehydrated, that's all. Lucky you. You know what the doctor told my husband? "You have ALS"!. I wish my husband had as innocuous diagnosis as "very dehydrated".

It's time to stop posting on this forum...forever. Enjoy your life and being with your children. Everyday you waste on spending on a disease you so obviously do not have, is time you will never, ever get back.

Goodbye
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Old 04-03-2018, 04:09 PM #14 (permalink)
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Thank you very much! I think I need to block these sites as they are only contributing to my fears. Counseling is the next step. Thank you again.
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Old 04-03-2018, 04:18 PM #15 (permalink)
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10...9...8...7...
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