Re: Too young too die
20 yrs old
from utica NY
told i was too young to have ALS several times
got 2 EMGs both clean about 3 months apart
only from the arms down both times
then speech issues
went back got an emg of neck face and tongue
came back dirty now the doctor wants to “wait and see”
my twitches started in my leg and chest then spread all over
sometimes its just a pop
other times its like a mini spasm
and i also get some that come multiple times in a row
they occur somewhat bilateral
both sides of jaw, cheeks, butt, waist, groin,chest, feet, hands, wherever
never had a twitch longer than 30 seconds
i even get them in my scrotum area
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the last emg was done at Strong Memorial Hospital in Rochester NY on 3/21