panic
Member
- Joined
- Mar 14, 2018
- Messages
- 17
- Reason
- Learn about ALS
- Country
- US
- State
- Mn
- City
- Minneapolis
Hi all, I have lurked for about a week but alas here I am. I am a 29 year old mother of 2 and am coming to terms with the fact that I most likely have this disease. I remember seeing my uncle get weaker before my eyes (not blood related) and can imagine how scared he was. This is going to sound ironic but here it goes. For the past 7 months I’ve had body wide twitching, I never thought anything of it but was encouraged to see what it was. I became obsessed with als for 2 days before concluding that body wide twitching is not a symptom of als u need weakness.
Great I thought, no als. Hours later I sort of honed in on my left hand/arm. It was so weak. I was convinced it was anxiety because, what are the chances. The weakness never went away. I can feel it even when I’m just sitting here. It is my hand, my forearm, and lastly has spread to the middle of my bicep. I don’t know how to describe what it feels like but when I sit here I can “feel the weakness”. my hand is clumsy but still useable. My heart aches for my kids as they will not have a good situation with me gone. I see my neurologist tomorrow but already know what is going on with me. My mom is a mess, this disease is the worst.
Great I thought, no als. Hours later I sort of honed in on my left hand/arm. It was so weak. I was convinced it was anxiety because, what are the chances. The weakness never went away. I can feel it even when I’m just sitting here. It is my hand, my forearm, and lastly has spread to the middle of my bicep. I don’t know how to describe what it feels like but when I sit here I can “feel the weakness”. my hand is clumsy but still useable. My heart aches for my kids as they will not have a good situation with me gone. I see my neurologist tomorrow but already know what is going on with me. My mom is a mess, this disease is the worst.