Vertigo RT
New member
- Joined
- Mar 2, 2018
- Messages
- 4
- Reason
- Learn about ALS
- Country
- Us
- State
- Fl
- City
- Spring Hill
Hello, all!
Let me start by saying that I admire the strength and care that you all seem to show through what can only lightly be described as a trying time.
Truly, you are all an inspiration to people suffering, and those whom have even the smallest questions and feelings of (possible) ALS/MND.
I’ve read many, many posts on here and still have questions regarding my own health... I’m trying to make a doctors appointment now despite having no insurance...and am doing research.
To start, my name is Ryan. I’m 35/m and have two daughters. I’ve had one instance in my family of ALS on my fathers side (his father, my grandfather)
About a year ago I noticed that sometimes while speaking I would suddenly have what can be described as a spasm in my tongue and chin/lower lip area. It seemed to really get bad in stressful situations, or when I was lacking sleep.
It went away completely on its own for a while and reappeared about a month and a half ago. It’s usually paired with a bit of confusion for a moment. A lot like a “soft reset” and I’m usually able to continue about more or less normally.
It comes and goes with the days and it really didn’t seem that pressing to me until I started having strange twitching starting in my thumbs. They’re rather quick, and only “twitch” once and then are calm for between about 1 and 5 minutes. A week or so after that had started, I noticed them throughout my body. My feet, my abdomen, shoulder, and my face once in a while. Again, not constant twitching, just a quick, small jolt and then nothing for a period of time. However it all lasts all day and has been progressing(?) for about a month.
The speech thing is my prime concern, (making to me the possibility of bulbar onset?) while speaking, I’ll feel almost like a computer running out of RAM and all the sudden I’ll trip over a word, or my tongue will kind of lock up for a moment, and I stop talking. Again, I’m usually able to pick up quite quickly after that, but I’ll feel a little confused, likely due to the anxiety it causes.
I’ve got little or no “perceived weakness” maybe a little stiffness here and there, but nothing that bad, and no clinical weakness as far as I can tell.
My neck is often stiff feeling, but usually feels better through the day.
My left eyelid seems to be at it again, and that twitch, unlike the others is pretty constant. It was gone for about a month.
Here and there, I’ll feel a headache or a slightly “off kilter” feel in my head.
In the past, I’ve had health anxiety before, but a lot of this had started before I even knew what ALS really WAS.
I’d be interested in hearing anyone’s thoughts about any of this, or perhaps if I’m just being crazy... as you can imagine, I’m very afraid and hoping to get some kind of feedback.
I know that you guys probably are sick of answering questions that usually end up not even being related to ALS symptoms, and the amount of hypochondriatical stuff that you must see has got to me alarming. Sorry if this is just me being silly... but I have few people to ask or talk to about it and obviously, you all would be the best informed.
I appreciate any useful things you all can contribute.
Thank you, and good luck and Godspeed to you all.
Let me start by saying that I admire the strength and care that you all seem to show through what can only lightly be described as a trying time.
Truly, you are all an inspiration to people suffering, and those whom have even the smallest questions and feelings of (possible) ALS/MND.
I’ve read many, many posts on here and still have questions regarding my own health... I’m trying to make a doctors appointment now despite having no insurance...and am doing research.
To start, my name is Ryan. I’m 35/m and have two daughters. I’ve had one instance in my family of ALS on my fathers side (his father, my grandfather)
About a year ago I noticed that sometimes while speaking I would suddenly have what can be described as a spasm in my tongue and chin/lower lip area. It seemed to really get bad in stressful situations, or when I was lacking sleep.
It went away completely on its own for a while and reappeared about a month and a half ago. It’s usually paired with a bit of confusion for a moment. A lot like a “soft reset” and I’m usually able to continue about more or less normally.
It comes and goes with the days and it really didn’t seem that pressing to me until I started having strange twitching starting in my thumbs. They’re rather quick, and only “twitch” once and then are calm for between about 1 and 5 minutes. A week or so after that had started, I noticed them throughout my body. My feet, my abdomen, shoulder, and my face once in a while. Again, not constant twitching, just a quick, small jolt and then nothing for a period of time. However it all lasts all day and has been progressing(?) for about a month.
The speech thing is my prime concern, (making to me the possibility of bulbar onset?) while speaking, I’ll feel almost like a computer running out of RAM and all the sudden I’ll trip over a word, or my tongue will kind of lock up for a moment, and I stop talking. Again, I’m usually able to pick up quite quickly after that, but I’ll feel a little confused, likely due to the anxiety it causes.
I’ve got little or no “perceived weakness” maybe a little stiffness here and there, but nothing that bad, and no clinical weakness as far as I can tell.
My neck is often stiff feeling, but usually feels better through the day.
My left eyelid seems to be at it again, and that twitch, unlike the others is pretty constant. It was gone for about a month.
Here and there, I’ll feel a headache or a slightly “off kilter” feel in my head.
In the past, I’ve had health anxiety before, but a lot of this had started before I even knew what ALS really WAS.
I’d be interested in hearing anyone’s thoughts about any of this, or perhaps if I’m just being crazy... as you can imagine, I’m very afraid and hoping to get some kind of feedback.
I know that you guys probably are sick of answering questions that usually end up not even being related to ALS symptoms, and the amount of hypochondriatical stuff that you must see has got to me alarming. Sorry if this is just me being silly... but I have few people to ask or talk to about it and obviously, you all would be the best informed.
I appreciate any useful things you all can contribute.
Thank you, and good luck and Godspeed to you all.
