IvMa6years
Member
- Joined
- Jun 16, 2017
- Messages
- 13
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- BO
- State
- CE
- City
- Cochabamba
Hello everyone, I'm experiencing bodywide fasciculations for a year now and I've been told on the BFS Facebook group that my symptoms no longer quiet sound like BFS. I was almost kicked out of the group because I was causing anxiety,
What caused that type of reaction? I'll try to explain it here:
- February 2017 - Started with bodywide twitching after a very stressful period.
- Next 8 months absolutely perfect, no weakness at all. Neuro said perfect clinical.
-November 2017 - First and only EMG to date showed reduced recruitment pattern in both tibialis anterior (only finding, no spontaneous activity)
- December 2017 - One day upon waking up, I couldn't lift my little and ring fingers of my left hand. No matter how hard I tried. 1 hour later the strength came back.
- January 2018 - Woke up with unexplained pain below the pinky finger (hypothenar area) and couldn't move the finger. After 3 or 4 days the pain subsided and the strength returned.
- January 2018 - After a night of heavy drinking, woke up with the inablity of lifting my left big toe. It was totally paralyzed. After 4 or 5 hours the strength returned. 3 days after that, surprisingly the weakness returned to my big toe, but the strength came back again!. Right now, (two weeks later) my toe is as strong as ever.
So, to summarize, I'm suffering bodywide fasciculations and episodes of unexplained weakness - that points away from BFS - but the stength ALWAYS come back - that points away from ALS (I guess :roll
So right now I'm in limbo, and I kindly request your opinions about my case. I know that I should go to the Dr. but let's say that I live in a country with a terrible health system (ALS CENTER? may be in ten thousand years).
If someone's case started like mine I'm ready to hear it, really. I'm exahusted of being in limbo and I want to plan for my future.
Thanks a lot for reading my story.
Marcelo.
What caused that type of reaction? I'll try to explain it here:
- February 2017 - Started with bodywide twitching after a very stressful period.
- Next 8 months absolutely perfect, no weakness at all. Neuro said perfect clinical.
-November 2017 - First and only EMG to date showed reduced recruitment pattern in both tibialis anterior (only finding, no spontaneous activity)
- December 2017 - One day upon waking up, I couldn't lift my little and ring fingers of my left hand. No matter how hard I tried. 1 hour later the strength came back.
- January 2018 - Woke up with unexplained pain below the pinky finger (hypothenar area) and couldn't move the finger. After 3 or 4 days the pain subsided and the strength returned.
- January 2018 - After a night of heavy drinking, woke up with the inablity of lifting my left big toe. It was totally paralyzed. After 4 or 5 hours the strength returned. 3 days after that, surprisingly the weakness returned to my big toe, but the strength came back again!. Right now, (two weeks later) my toe is as strong as ever.
So, to summarize, I'm suffering bodywide fasciculations and episodes of unexplained weakness - that points away from BFS - but the stength ALWAYS come back - that points away from ALS (I guess :roll
So right now I'm in limbo, and I kindly request your opinions about my case. I know that I should go to the Dr. but let's say that I live in a country with a terrible health system (ALS CENTER? may be in ten thousand years).
If someone's case started like mine I'm ready to hear it, really. I'm exahusted of being in limbo and I want to plan for my future.
Thanks a lot for reading my story.
Marcelo.