Mayag
New member
- Joined
- Feb 17, 2018
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- CA
- City
- LA
Hello all,
I am new to this forum and I will be honest that I’m feeling quite anxious. I’ve been experiencing some symptoms that I’m worried may indicate ALS.
I will preface this by saying I’m 24 years old and I’ve had neurological problems since I was 12, so I am no stranger to seeing a neurologist. At age 12, I developed a resting finger tremor that progressed into a resting hand tremor in my right hand. After a few years the tremors progressed to include my left hand, and at times my arms will twitch. My neurologist has run two MRIs which came up normal. I had a DaT scan done in 2015 to test my dopamine levels for early onset Parkinson’s—this also came out normal. In 2014, I was also diagnosed with focal foot dystonia. The toes in my feet curl under and I get Botox injections every 3 months. I also have a head tremor that’s noticeable when I try to keep my head still. I’ve had it for years and I think it’s related to my dystonia. Does anyone know if it’s possible to have ALS and dystonia at the same time?
Now for my ALS concern:
Within the past 6 months I’ve become aware that my tongue quivers when I stick it out and I trip over words at times (primarily s- sounds). My neuro has observed this, but states that my symptoms seem stable and my tongue isn’t shrinking so he doesn’t seem to believe it’s ALS at the moment. I also experience facial twitching at times—this comes and goes.
Today, I also noticed an indent in my in my left arm below my elbow. My left arm is my dominant arm/hand. This is concerning because I don’t notice an indent in my right arm, and the right arm seems bigger. Photo attached for reference.
I’ve also been experiencing weakness and soreness in my left arm (dominant arm) for 2-3 weeks. The soreness is less bad on some days than others, but for the most part it’s present. It makes typing and writing difficult on many days, and my left hand just feels clumsy. I’ve experienced chronic left shoulder pain for several years and am not sure if this is related.
Overall I’m mainly concerned about my tongue quivering and arm weakness. Does anyone have insight on whether or not they’ve ever experienced anything like this? I wouldn’t wish ALS on my worst enemy and my thoughts are with all PALS.
Thanks all for your time,
Mayag
I am new to this forum and I will be honest that I’m feeling quite anxious. I’ve been experiencing some symptoms that I’m worried may indicate ALS.
I will preface this by saying I’m 24 years old and I’ve had neurological problems since I was 12, so I am no stranger to seeing a neurologist. At age 12, I developed a resting finger tremor that progressed into a resting hand tremor in my right hand. After a few years the tremors progressed to include my left hand, and at times my arms will twitch. My neurologist has run two MRIs which came up normal. I had a DaT scan done in 2015 to test my dopamine levels for early onset Parkinson’s—this also came out normal. In 2014, I was also diagnosed with focal foot dystonia. The toes in my feet curl under and I get Botox injections every 3 months. I also have a head tremor that’s noticeable when I try to keep my head still. I’ve had it for years and I think it’s related to my dystonia. Does anyone know if it’s possible to have ALS and dystonia at the same time?
Now for my ALS concern:
Within the past 6 months I’ve become aware that my tongue quivers when I stick it out and I trip over words at times (primarily s- sounds). My neuro has observed this, but states that my symptoms seem stable and my tongue isn’t shrinking so he doesn’t seem to believe it’s ALS at the moment. I also experience facial twitching at times—this comes and goes.
Today, I also noticed an indent in my in my left arm below my elbow. My left arm is my dominant arm/hand. This is concerning because I don’t notice an indent in my right arm, and the right arm seems bigger. Photo attached for reference.
I’ve also been experiencing weakness and soreness in my left arm (dominant arm) for 2-3 weeks. The soreness is less bad on some days than others, but for the most part it’s present. It makes typing and writing difficult on many days, and my left hand just feels clumsy. I’ve experienced chronic left shoulder pain for several years and am not sure if this is related.
Overall I’m mainly concerned about my tongue quivering and arm weakness. Does anyone have insight on whether or not they’ve ever experienced anything like this? I wouldn’t wish ALS on my worst enemy and my thoughts are with all PALS.
Thanks all for your time,
Mayag