Stiffgirl
New member
- Joined
- Jan 14, 2018
- Messages
- 7
- Reason
- Other
- Country
- Uk
- State
- Sometset
- City
- Bristol
firstly, thank you so much to anyone who takes the time to read this. I sincerely hope I could be as selfless if I end up with an MND diagnosis. I can only imagine what you are going through.
I have read the stickies. I am 37 and female.
I am seeing the neurologist tomorrow evening. I have had clean blood tests done. I had an MRI three years ago which was clear and a nerve conduction test on my left leg as I had numbness and tingling in my left foot and nothing was found. It still comes and goes but I have learnt not to think about it.
Two months or so ago I noticed some pain in my right back/shoulder and a tight feeling in my hand which I chalked up to rsi or something similar. Then at the beginning of Dec I started getting fasciculations in both calves, I didn’t think much about it as I know these are common. Then they started to get more painful, like gentle spasms which come and go, more in my left leg but in both legs. Then my hand started to feel even tighter and I’ve started to get more pain in my shoulder, back, bicep, hand and inside of my elbow. My thumb will not reach across my hand like it used to. I get twitching now in both biceps forearms and back of shoulders. Sometimes I get a very violent twitch in my right shoulder. It feels like my hand is seizing up similar to someone who has arthritis. If I straighten my right arm and slowly drop my hand it jumps all over the place. No astrophy I can see. No loss of function, just gripping harder/more painful.
I know that pain is not typically a sign of MND which I do have in my arm back etc. The leg cramping is there a lot and I had a bicep cramp in the night that woke me up, first I’d had.
As I said, I am seeing the neurologist tomorrow and I would be lying if I said I wasn’t scared. I have a 4 and 5 year old to think about.
Can I ask, will the neurologist be able to tell me quickly whether this could be MND or will this be a long drawn out process?
Many thanks
I have read the stickies. I am 37 and female.
I am seeing the neurologist tomorrow evening. I have had clean blood tests done. I had an MRI three years ago which was clear and a nerve conduction test on my left leg as I had numbness and tingling in my left foot and nothing was found. It still comes and goes but I have learnt not to think about it.
Two months or so ago I noticed some pain in my right back/shoulder and a tight feeling in my hand which I chalked up to rsi or something similar. Then at the beginning of Dec I started getting fasciculations in both calves, I didn’t think much about it as I know these are common. Then they started to get more painful, like gentle spasms which come and go, more in my left leg but in both legs. Then my hand started to feel even tighter and I’ve started to get more pain in my shoulder, back, bicep, hand and inside of my elbow. My thumb will not reach across my hand like it used to. I get twitching now in both biceps forearms and back of shoulders. Sometimes I get a very violent twitch in my right shoulder. It feels like my hand is seizing up similar to someone who has arthritis. If I straighten my right arm and slowly drop my hand it jumps all over the place. No astrophy I can see. No loss of function, just gripping harder/more painful.
I know that pain is not typically a sign of MND which I do have in my arm back etc. The leg cramping is there a lot and I had a bicep cramp in the night that woke me up, first I’d had.
As I said, I am seeing the neurologist tomorrow and I would be lying if I said I wasn’t scared. I have a 4 and 5 year old to think about.
Can I ask, will the neurologist be able to tell me quickly whether this could be MND or will this be a long drawn out process?
Many thanks
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