PharmDavid
New member
- Joined
- Sep 20, 2016
- Messages
- 7
- Reason
- Loved one DX
- Diagnosis
- 09/2016
- Country
- US
- State
- TX
- City
- Houston
My wife is in the area of probable ALS.
Her first symptoms were late 2015 and 2.5 years later she can still walk with assistance, speak, swallow, and breathe nornally.
She was on lunasin for a month and seemed to improve fine motor movement and in the past responded well to high dose prednisone. At night she sleeps on 4 ice packs along her spine which alleviate twitching and spasms 100%. Next month she will be getting on Radicava.
Her most recent genetics test came back NEGATIVE for all the 20 or so most common genetic markers.
Why on earth is her neurologist still firm on ALS diagnosis?
Has anyone else received this type of result, and was the outlook different?
Her first symptoms were late 2015 and 2.5 years later she can still walk with assistance, speak, swallow, and breathe nornally.
She was on lunasin for a month and seemed to improve fine motor movement and in the past responded well to high dose prednisone. At night she sleeps on 4 ice packs along her spine which alleviate twitching and spasms 100%. Next month she will be getting on Radicava.
Her most recent genetics test came back NEGATIVE for all the 20 or so most common genetic markers.
Why on earth is her neurologist still firm on ALS diagnosis?
Has anyone else received this type of result, and was the outlook different?