adi2uds
New member
- Joined
- Nov 16, 2007
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- AZ
- City
- Mesa
Hello,
I am a 43 year old female, married with 3 children, ages 14, 11 and 9. For the last several months, I have been fighting sever fatigue and muscle spasms. The spasm occur all over my body, but are terrible in my ribs, both front and back, my neck and jaw every time I yawn, my legs and shoulders, etc. I can't hold stuff for long periods of time, or short periods for that matter. I have problems drying my hair with a blow dryer, because my arm gets too tired after about a minute. It is painful for me to walk distances of any kind, and I find myself shuffling instead of walking after sitting or laying down for a bit. I can no longer open bottles of water or jars of food, etc. When at my doctor yesterday, he asked me to open my mouth and barely stick out my tongue. He did this three times. He told me my tongue twitches and he didn't want to scare me, but with everything else that has been going on with me, he thinks I may have ALS. He ordered blood tests, which should be back sometime next week. In the meantime, I am scared thinking about this, I feel like I am getting weaker and weaker, but I don't like to say anything to my husband, because he thinks I am being a hypochondriac. YES, he can be a jerk at times. He was the same way with my thyroid, until they discovered it was cancer. Then he was falling all over himself apologizing for not listening to me that I wasn't feeling well then. I have not even told him the doctor suspects this. I told my niece, who is an RN, and she is hoping the doctor is wrong (it is her doctor too), but she is trying to get more info on the disease.
I don't want to tell anyone else in my family right now, because they will say the doctor is nuts, and doesn't know what he is talking about, and I need to find another doctor.
I am definitely scared right now, and I wish I could figure out another reason for all that is happening with my body right now. I was tested for carpal tunnel because of the numbness and cramping in hands, and I have a 30% noted loss of use in both hands. Now, is it really carpal tunnel, or ALS. I have discomfort and spasms all the way up to my shoulders. I also have a lot of pain in my feet. Is this normal? I don't know. So many questions, but what do you really do until you know for sure? What is the chance that all this is going to add up to ALS, and if so, then how long do I have before...? Don't want to think about it.
Anyway, I would appreciate any help or comments I can get on this subject.
Thank you all sincerely in advance for being there. :
I am a 43 year old female, married with 3 children, ages 14, 11 and 9. For the last several months, I have been fighting sever fatigue and muscle spasms. The spasm occur all over my body, but are terrible in my ribs, both front and back, my neck and jaw every time I yawn, my legs and shoulders, etc. I can't hold stuff for long periods of time, or short periods for that matter. I have problems drying my hair with a blow dryer, because my arm gets too tired after about a minute. It is painful for me to walk distances of any kind, and I find myself shuffling instead of walking after sitting or laying down for a bit. I can no longer open bottles of water or jars of food, etc. When at my doctor yesterday, he asked me to open my mouth and barely stick out my tongue. He did this three times. He told me my tongue twitches and he didn't want to scare me, but with everything else that has been going on with me, he thinks I may have ALS. He ordered blood tests, which should be back sometime next week. In the meantime, I am scared thinking about this, I feel like I am getting weaker and weaker, but I don't like to say anything to my husband, because he thinks I am being a hypochondriac. YES, he can be a jerk at times. He was the same way with my thyroid, until they discovered it was cancer. Then he was falling all over himself apologizing for not listening to me that I wasn't feeling well then. I have not even told him the doctor suspects this. I told my niece, who is an RN, and she is hoping the doctor is wrong (it is her doctor too), but she is trying to get more info on the disease.
I don't want to tell anyone else in my family right now, because they will say the doctor is nuts, and doesn't know what he is talking about, and I need to find another doctor.
I am definitely scared right now, and I wish I could figure out another reason for all that is happening with my body right now. I was tested for carpal tunnel because of the numbness and cramping in hands, and I have a 30% noted loss of use in both hands. Now, is it really carpal tunnel, or ALS. I have discomfort and spasms all the way up to my shoulders. I also have a lot of pain in my feet. Is this normal? I don't know. So many questions, but what do you really do until you know for sure? What is the chance that all this is going to add up to ALS, and if so, then how long do I have before...? Don't want to think about it.
Anyway, I would appreciate any help or comments I can get on this subject.
Thank you all sincerely in advance for being there. :