Old 11-09-2017, 09:12 PM #16 (permalink)
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,050
KimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud of
KimT KimT is offline
Extremely Helpful Member

Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,050
KimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud of
Default Re: Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

The first thing ANY neuro worth his/her salt would do IF they expected ALS is send you to neuromuscular specialist, even after an EMG. My neuro did an EMG and sent me to Mayo Clinic. Not a doctor in the world would diagnose ALS without an EMG.

Good luck. I hope your EMG is clean, or at least rules out ALS, so they can start figuring out what is going on.

I understand and empathize with your anxiety.
KimT is offline   Reply With QuoteReply With Quote
Old 11-09-2017, 09:43 PM #17 (permalink)
Atsugi's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,687
Atsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant future
♥ Atsugi Atsugi is offline
Extremely Helpful Member
Forum Moderator

Atsugi's Avatar
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,687
Atsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant future
Default Re: Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

You asked for "suggestions as what this could be, if not ALS."

Arian, we know ALS pretty well, but we're not doctors, so we would be dangerously foolish if we tried to diagnose someone over the Internet. If you must get the opinions of others on the Internet, you'd have to do it somewhere else.

And you said, "The symptoms don't seem to point anywhere else"

No, I'm really sure your symptoms point AWAY from ALS, and the more you post, the more we see that it is not ALS.

I don't want to be specific, writing down here what symptoms you need to have to be called ALS, because there are hypochondriacs lurking here who would suddenly get all those symptoms.

If you don't have a regular family physician, I highly recommend it. Specialists specialize. A neurologist knows only neurology. The general practice medical doctor is trained to know how to run the investigation and coordinate between the different kinds of specialists.
Atsugi is offline   Reply With QuoteReply With Quote
Old 11-09-2017, 09:52 PM #18 (permalink)
Clearwater AL's Avatar
Very Helpful Member
 
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2013
Interest: I have been diagnosed with ALS.
Posts: 1,146
Clearwater AL is just really niceClearwater AL is just really niceClearwater AL is just really niceClearwater AL is just really nice
Clearwater AL Clearwater AL is offline
Very Helpful Member
Clearwater AL's Avatar
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2013
Interest: I have been diagnosed with ALS.
Posts: 1,146
Clearwater AL is just really niceClearwater AL is just really niceClearwater AL is just really niceClearwater AL is just really nice
Default Re: Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

"I also hate that I am about 20-30 years under the average age of onset"

Geeze... would it make happy if you were of the average age?

"At this point I'm just in venting mode,"

This is not vent Forum.

There is nothing more you can post until you have an EMG and post a copy of the summary/conclusion.

Last edited by Clearwater AL : 11-09-2017 at 09:57 PM
Clearwater AL is offline   Reply With QuoteReply With Quote
The Following 2 Users Say Thank You to Clearwater AL For This Useful Post:
Atsugi (11-10-2017), ShiftKicker (11-09-2017)
Old 12-03-2017, 03:16 PM #19 (permalink)
ariansherian's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Mississauga
State: Ontario
Country: Can
Interest: I am interested in learning about ALS/MND.
Posts: 9
ariansherian is on a distinguished road
ariansherian ariansherian is offline
New Member (Say Hi)
ariansherian's Avatar
Join Date: 2017
City: Mississauga
State: Ontario
Country: Can
Interest: I am interested in learning about ALS/MND.
Posts: 9
ariansherian is on a distinguished road
Default Re: Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

Hello all,

Sorry for the late reply, the EMG appointment got pushed back. I though I would post to help someone in the future with the information here.

My EMG came back clean and normal, and I do not have ALS. However I am still experiencing some symptoms. Just wanted to give some closure to the thread.
ariansherian is offline   Reply With QuoteReply With Quote
Thanks from
KimT (12-03-2017)
Old 12-03-2017, 03:25 PM #20 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,141
ShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud of
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,141
ShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud of
Default Re: Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

Good news! I hope you can continue working with your doctor to track down the cause of your symptoms. I am very glad ALS has been ruled out for you.
ShiftKicker is offline   Reply With QuoteReply With Quote
Old 12-03-2017, 08:14 PM #21 (permalink)
ariansherian's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Mississauga
State: Ontario
Country: Can
Interest: I am interested in learning about ALS/MND.
Posts: 9
ariansherian is on a distinguished road
ariansherian ariansherian is offline
New Member (Say Hi)
ariansherian's Avatar
Join Date: 2017
City: Mississauga
State: Ontario
Country: Can
Interest: I am interested in learning about ALS/MND.
Posts: 9
ariansherian is on a distinguished road
Default Re: Muscle burning and Tremors for two years before sudden onset of ALS-like symptoms

Thanks for your kind words, and I hope this thread is able to help someone else.
ariansherian is offline   Reply With QuoteReply With Quote
Reply

Tags
als, als symptoms, burning, emg, family, family history, food, foot, juvenileals, mri, muscle, myasthenia gravis, onset, scared, swallowing, symptom, symptoms, tests, tongue, twitching, weakness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Sudden Bulbar symptoms? ahurlbut Do I Have ALS? Is This ALS? 43 03-13-2016 11:01 PM
Muscle Burning - No Wasting tripete Newly Diagnosed 9 12-29-2014 07:20 PM
Sudden weird symptoms Julie Bob Do I Have ALS? Is This ALS? 8 07-12-2011 01:28 AM
Mom was diagnosed with bulbar onset 2 years ago dnat Current Caregivers (CALS) 3 09-14-2010 01:19 PM
Burning muscle ache-please advise kellysmum Do I Have ALS? Is This ALS? 0 08-27-2008 10:50 AM


All times are GMT -5. The time now is 06:44 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016