MoniqueM
New member
- Joined
- Oct 22, 2017
- Messages
- 8
- Reason
- Learn about ALS
- Country
- US
- State
- MI
- City
- Waverly
Hello, read your notes and thank you all for this group. I would appreciate responses, I have been having back pain, no signs of damage on MRI, Dr recommended a CT angio as I have a history of blood clots, came back clean but referred me to pulmonologist. Pulm did a PFT which came back at 74%, noted my posture was off & recommended seeing Neuromuscular specialist based on this & that I had been twitching. Saw neuromuscular specialist & MND was mentioned, did a work up & another PFT and I came in this time at 77%, they said I have a tounge tremor, otherwise nothing concerned NMS on phys exam, we then did an EMG and all came back clean, the NMS said no als. Since that visit I have developed a dry cough & my uvula is twitching to the left, I never asked him about the PVC being so low and any concerns with ALS, but with the cough and uvula twitch I am concerned that something is wrong and possibly missed, do these symptoms sound concerning for ALS, thinking of reaching back out to Dr., but he has long track record with ALS at a Univ Hospital & want to believe the EMG results & his word.