Snmartinez87
Member
- Joined
- Dec 18, 2016
- Messages
- 22
- Reason
- Other
- Diagnosis
- 12/2018
- Country
- US
- State
- TX
https://photos.app.goo.gl/ar2kXxEgUT8chLQ63So, I was ecstatic when the doctor's told me that I don't have ALS but Dr. Harati insists that my fasciculations are benign and he wants to do the wait and see approach.
Dr. Killian recommended me that I see Dr. Aziz Shaibani in Houston. Almost 4 years of going to Baylor and no answers... I think it was time for a second opinion.
I'm scared but mostly hopeful that this new doctor will finally FINALLY! Diagnose me with whatever it is that I have and then I'll be able to either accept my fate or start treatment right away.
Here's my latest EMG
Not to mention that I was diagnosed with Dysarthria & dysphasia by a speech pathologist as recommended by my doctors. I also have a torn meniscus on left knee and I now wear a brace with little hinges 24/7.
I've been dropping things! Let me tell you I've dropped my phone close to 100 times before I finally bought an assistive holder. :| I'm sad & scared.
Oh and weight loss... this is not anxiety or benign anything... :|
They ruled out thymoma, isaac's syndrome, myasthenia, among many other disorders. They CT scanned me and all was clear. Everything is normal except the progressive atrophy, weakness, speech deterioration, EMG abnormalities, widespread fasciculations, etc etc...
Dr. Shaibani will see me on 10/16/17
Dr. Killian recommended me that I see Dr. Aziz Shaibani in Houston. Almost 4 years of going to Baylor and no answers... I think it was time for a second opinion.
I'm scared but mostly hopeful that this new doctor will finally FINALLY! Diagnose me with whatever it is that I have and then I'll be able to either accept my fate or start treatment right away.
Here's my latest EMG
Not to mention that I was diagnosed with Dysarthria & dysphasia by a speech pathologist as recommended by my doctors. I also have a torn meniscus on left knee and I now wear a brace with little hinges 24/7.
I've been dropping things! Let me tell you I've dropped my phone close to 100 times before I finally bought an assistive holder. :| I'm sad & scared.
Oh and weight loss... this is not anxiety or benign anything... :|
They ruled out thymoma, isaac's syndrome, myasthenia, among many other disorders. They CT scanned me and all was clear. Everything is normal except the progressive atrophy, weakness, speech deterioration, EMG abnormalities, widespread fasciculations, etc etc...
Dr. Shaibani will see me on 10/16/17
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