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Snmartinez87

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Joined
Dec 18, 2016
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Other
Diagnosis
12/2018
Country
US
State
TX
https://photos.app.goo.gl/ar2kXxEgUT8chLQ63So, I was ecstatic when the doctor's told me that I don't have ALS but Dr. Harati insists that my fasciculations are benign and he wants to do the wait and see approach.

Dr. Killian recommended me that I see Dr. Aziz Shaibani in Houston. Almost 4 years of going to Baylor and no answers... I think it was time for a second opinion.

I'm scared but mostly hopeful that this new doctor will finally FINALLY! Diagnose me with whatever it is that I have and then I'll be able to either accept my fate or start treatment right away.

Here's my latest EMG :(
Not to mention that I was diagnosed with Dysarthria & dysphasia by a speech pathologist as recommended by my doctors. I also have a torn meniscus on left knee and I now wear a brace with little hinges 24/7.

I've been dropping things! Let me tell you I've dropped my phone close to 100 times before I finally bought an assistive holder. :| I'm sad & scared.

Oh and weight loss... this is not anxiety or benign anything... :|

They ruled out thymoma, isaac's syndrome, myasthenia, among many other disorders. They CT scanned me and all was clear. Everything is normal except the progressive atrophy, weakness, speech deterioration, EMG abnormalities, widespread fasciculations, etc etc...

Dr. Shaibani will see me on 10/16/17 :( :( :(
 

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Are you looking for something or just showing a report?
Al
 
I'm glad you're seeking a second opinion. Mononeuritis multiplex has a long list of possible causes that are treatable to some extent, so it's important to know if that's what you have. The good news is that the differential does not extend to ALS.
 
Hi Zaranataly/snmartinez,

I have to admit that I'm a bit confused by your post, as on September 7th you posted you had a diagnosis (not ALS) and you were finally relieved.

As you have been posting here for 6 years and have not lost any ADLs (I'm assuming that's why ALS has been ruled out, of course aside from the several EMGs that have given you the all clear of ALS), so you must understand my confusion. If you do not have a MND, what is it that you are looking for on an MND site?
 
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