Lojo1622
New member
- Joined
- Sep 26, 2017
- Messages
- 8
- Reason
- Lost a loved one
- Country
- US
- State
- CA
- City
- Riverside
Hi all,
I just gave birth to my son two and a half months ago, and i have been told i have post partum depression, and i have been a little overly worried about dying lately. However, I feel that i have developed symptoms that point towards ALS and i am very scared.
Here are my symptoms:
Weak/heavy feelings in both arms, struggle to get coordination especially on the left. I will try getting my sons passifier in his mouth and my arm seems to move from left to right (sway or shake). Muscle twitches all over body all day and night. It feels like popcorn is going off in my body. The twitches are located everywhere- abdomen, arms, legs, feet, head, lip, etc. I also feel as if i have a lazy tongue, i seem to not pronounce certain letters very clearly. (Although it should be noted that my family does not think i sound drunk). My lips also feel weak and sometimes slip when im trying to say certain letters like "p". My voice has been raspy and sometimes will cut out- i will try to answer someone and it comes out as a whisper, but once i try again I can speak just fine. My fingers feel very tight and difficult to move, especially in the morning. I do also get vibrating feelings (i guess its almost like a tingling) just under my skin at times. And i am dizzy and feel off balance very often.
I feel so strongly that these are very early indicators of an impending ALS diagnosis. I cry about it every day. I am struggling to focus on my children or get anything accomplished. I feel like i should drop out of my masters program because there is no point in continuing that if i have ALS. Sometimes i even find myself wishing i could just get hit by a car and go that way instead of being taken by ALS. Its consuming my every thought, and the more i google, the more i am convinced i have it. I realize this may be linked to my post partum depression and i may need to seek help with that..... but in my mind it is just ALS and only ALS, and i am just waiting for the doctor to confirm it.
I think about ALS every day and i am so scared about how it must feel and how emotional it must be to go through. I worry about people with ALS who have kids, or people with ALS being bored and trapped in their body. My heart is breaking, and i just cant get past any of it. I think about my sons first birthday and i picture myself in a wheelchair unable to communicate. I worry about not seeing my daughter (who is nine) graduate, or have a boyfriend, or complete her first gym competition. I worry about how they will feel growing up without a mom. I believe in God but i'm scared of how it will feel to die and where i will go.
I was hoping that maybe someone could talk to me about how life is for them with ALS? I am so deeply burdened by this disease and i guess i am just seeking some advice on my worries. I watched a friend of mine get diagnosed, and he committed suicide because he was so miserable... so i am very worried about what it would be like to go through this disease. I'm so worried to get diagnosed with ALS or a dirty EMG and i just feel convinced that it is heading my way.
Does anyone out there think i should be expecting a diagnosis based on my symptoms? Do these symptoms seem like they will lead to ALS in the coming months/years? And how do you emotionally handle life knowing that you have a short timeline and knowing you will miss things in your kids lives etc. Any positive advice from someone caring and who has been in the position of being scared/ diagnosed would be so wonderful.
Thank you so much.
I just gave birth to my son two and a half months ago, and i have been told i have post partum depression, and i have been a little overly worried about dying lately. However, I feel that i have developed symptoms that point towards ALS and i am very scared.
Here are my symptoms:
Weak/heavy feelings in both arms, struggle to get coordination especially on the left. I will try getting my sons passifier in his mouth and my arm seems to move from left to right (sway or shake). Muscle twitches all over body all day and night. It feels like popcorn is going off in my body. The twitches are located everywhere- abdomen, arms, legs, feet, head, lip, etc. I also feel as if i have a lazy tongue, i seem to not pronounce certain letters very clearly. (Although it should be noted that my family does not think i sound drunk). My lips also feel weak and sometimes slip when im trying to say certain letters like "p". My voice has been raspy and sometimes will cut out- i will try to answer someone and it comes out as a whisper, but once i try again I can speak just fine. My fingers feel very tight and difficult to move, especially in the morning. I do also get vibrating feelings (i guess its almost like a tingling) just under my skin at times. And i am dizzy and feel off balance very often.
I feel so strongly that these are very early indicators of an impending ALS diagnosis. I cry about it every day. I am struggling to focus on my children or get anything accomplished. I feel like i should drop out of my masters program because there is no point in continuing that if i have ALS. Sometimes i even find myself wishing i could just get hit by a car and go that way instead of being taken by ALS. Its consuming my every thought, and the more i google, the more i am convinced i have it. I realize this may be linked to my post partum depression and i may need to seek help with that..... but in my mind it is just ALS and only ALS, and i am just waiting for the doctor to confirm it.
I think about ALS every day and i am so scared about how it must feel and how emotional it must be to go through. I worry about people with ALS who have kids, or people with ALS being bored and trapped in their body. My heart is breaking, and i just cant get past any of it. I think about my sons first birthday and i picture myself in a wheelchair unable to communicate. I worry about not seeing my daughter (who is nine) graduate, or have a boyfriend, or complete her first gym competition. I worry about how they will feel growing up without a mom. I believe in God but i'm scared of how it will feel to die and where i will go.
I was hoping that maybe someone could talk to me about how life is for them with ALS? I am so deeply burdened by this disease and i guess i am just seeking some advice on my worries. I watched a friend of mine get diagnosed, and he committed suicide because he was so miserable... so i am very worried about what it would be like to go through this disease. I'm so worried to get diagnosed with ALS or a dirty EMG and i just feel convinced that it is heading my way.
Does anyone out there think i should be expecting a diagnosis based on my symptoms? Do these symptoms seem like they will lead to ALS in the coming months/years? And how do you emotionally handle life knowing that you have a short timeline and knowing you will miss things in your kids lives etc. Any positive advice from someone caring and who has been in the position of being scared/ diagnosed would be so wonderful.
Thank you so much.