Ozcar
Member
- Joined
- Sep 22, 2014
- Messages
- 10
- Reason
- Other
- Country
- IN
- State
- Maharashtra
- City
- Mumbai
Dear All,
I had been on here in 2014 with some complaints about twitching and muscle weakness, over the past 3 years it has stayed with me and gotten worse to some extent. I have been to many doctors and Neuro's and had 3 EMG, last was early last year on my limbs but doctors didn't pick up anything abnormal at the time.
Also ive been tested for Autoimmune disorders and MRI and all came back negative, so there is no diagnosis as yet, recently i had my MG blood work redone as well which came back normal.
However over the past month my symptoms got worse, i am having swallowing issues and left hand and arm weakness, also sporadic twitching, its worse on my left side and left arm, my left thumb and index finger feel tired as well my my wrist all the way to my elbow, even when i shower my arm gets tired and i need to rest it, it feels kind of clumsy and weak, there is also a bit of pain and discomfort all over my arm and my hand, when i use my hand a bit like when typing or holding something it hurts and feels tight a bit and i need to rest it ,
overall the power is still there but fatigue easily, even with my legs and especially my right leg and thigh, anyways i went to some specialist who checked my swallowing and did some test for contractions and said that my swallow was ok but a bit weak contraction at the middle near the Esophagus and had pressure build up from below he couldn't explain why, he basically said its not normal but it can happen to older people and can also be found sometimes in some younger people as well.
They also did the barium swallow study which showed ok swallowing but decreased motility of esophagus especially during during abdominal pressure, they couldn't come with up a diagnoses and sent me to a heart specialist since they said the pressure might be coming from there, the results came out fine.
Im stuck in limbo since they said it could be something small or it could be the start of some kind of MND, also my jaw and tongue feel weak and tired sometimes and i have trouble speaking but its not noticeable to others, the tongue recovers after some rest and the jaw has good and bad days. somedays its even hard to chew rice and somedays no issues, liquids are usually ok as long as i drink slowly but i haven't had any chocking attacks as yet, i do get pain and pressure on the sides of my jaw and a feeling of numbness as well when i move my jaw after eating.
Could this be ALS creeping up on me ?
I had been on here in 2014 with some complaints about twitching and muscle weakness, over the past 3 years it has stayed with me and gotten worse to some extent. I have been to many doctors and Neuro's and had 3 EMG, last was early last year on my limbs but doctors didn't pick up anything abnormal at the time.
Also ive been tested for Autoimmune disorders and MRI and all came back negative, so there is no diagnosis as yet, recently i had my MG blood work redone as well which came back normal.
However over the past month my symptoms got worse, i am having swallowing issues and left hand and arm weakness, also sporadic twitching, its worse on my left side and left arm, my left thumb and index finger feel tired as well my my wrist all the way to my elbow, even when i shower my arm gets tired and i need to rest it, it feels kind of clumsy and weak, there is also a bit of pain and discomfort all over my arm and my hand, when i use my hand a bit like when typing or holding something it hurts and feels tight a bit and i need to rest it ,
overall the power is still there but fatigue easily, even with my legs and especially my right leg and thigh, anyways i went to some specialist who checked my swallowing and did some test for contractions and said that my swallow was ok but a bit weak contraction at the middle near the Esophagus and had pressure build up from below he couldn't explain why, he basically said its not normal but it can happen to older people and can also be found sometimes in some younger people as well.
They also did the barium swallow study which showed ok swallowing but decreased motility of esophagus especially during during abdominal pressure, they couldn't come with up a diagnoses and sent me to a heart specialist since they said the pressure might be coming from there, the results came out fine.
Im stuck in limbo since they said it could be something small or it could be the start of some kind of MND, also my jaw and tongue feel weak and tired sometimes and i have trouble speaking but its not noticeable to others, the tongue recovers after some rest and the jaw has good and bad days. somedays its even hard to chew rice and somedays no issues, liquids are usually ok as long as i drink slowly but i haven't had any chocking attacks as yet, i do get pain and pressure on the sides of my jaw and a feeling of numbness as well when i move my jaw after eating.
Could this be ALS creeping up on me ?