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Tavoh

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Aug 21, 2017
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14
Reason
Learn about ALS
Country
US
State
Texas
City
San Antonio
hello to all
Last time I posted here I got very negative responses for my concerns, I still don't understand why. I just want your opinions, I have aspbergers and I'm not good at being polite? I'm sorry if I'm rude or I say wrong things but I don't understand. my left hip hasn't felt normal for the past 3 weeks, I I've began to walk a bit funny but it hasnt gotten worse or better also when I walk up stairs my left leg gets tired much easier than the right. I've been doing self test on my self and I don't see atrophy but I'm no doctor. I went to the doctor but I've gone to him with so many times with thoughts of different illnesses he saw me for 5 minutes said it's anxiety and sent me on my way. Did no test or anything, but I've never had any symptoms stay for this long that's why I'm worried. Since I've angered you I've had many episodes and made my mother take me to hospital where I ask them to look at me but the second my mother tells them of my anxiety and says it probably nothing they agree and send me on my way. It's almost like they refuse to check me. In my brain I see the best place to get a opinion is from a person who has it. So that's why I'm here. My hip feels week and I walk a bit funny. im tired of staying up till 3 am with my mother having her try to comfort me and ultimately going to the hospital. I know you owe me nothing but just please tell what you think. Once again my symptoms weak left hip, waking a bit funny, left leg tires easily and no mater how much I walk the funnyness stays. My mother said to say that I'm 18 and have no known relatives with als. She has also help me write this to ensure I'm not being rude. Please answer
 
And I've read the stickys, I don't have failure but not everybody does
 
Hey bud-

You don't belong here. That's not a rude statement- just a true statement. It's a good thing. You don't have ALS. That's not to say you don't have something, but it's not ALS. You don't need to go to a hospital- you need to work with your doctor to get better and find the root of your symptoms.

It's tough when you feel your doctors don't take your symptoms seriously. The best choice at this point is asking to see a psychiatrist. It's what I did when I was searching for diagnosis. I have NEVER regretted it either, even though I feared it was "all in my head". A psychiatrist is a medical doctor with additional training in how moods and brain chemistry affect a person. My psychiatrist assessed me for a variety of things- including if my symptoms were caused by anxiety. I am still with him, 2 years later, as he has become my care coordinator and helps me navigate having a complex and chronic disease. A psychiatrist can help you figure out which symptoms are caused by brain chemistry and which symptoms are mechanical/neurological in nature. A psychiatrist can also help you figure out how to articulate your needs to your family doctor and your family.

You will not get anyone here to tell you that you have ALS. You will, however, be told firmly to stop posting here if you continue to post your symptoms over and over. You must listen to the people here- get proper medical help. Coming here is detrimental to your well being and gains you only more anxiety.
 
Your post was moved. If you did read the stickies you know you are only allowed to post on the DIHALS subforum.

You asked what we think. Ok. I don't think you are describing ALS at all. As we constantly tell people we don't feel weak. And yes we all have failure. It is often ( usually) very small to start but there is something that doesn't work anymore. I am the 6th person in my family in my lifetime to be affected. I have met a lot of PALS. This is what I have experienced, seen and been told by the doctors
 
Tavoh, the people who answer your questions on this forum are dying. They want to help you. And they are very serious. Some of them are so disabled that it takes great effort to read and reply to your posts.

You don't have ALS. I doubt you have any other disease, but I am not a doctor, so I can only comment on ALS, which I know fairly well. Since you don't have ALS, you shouldn't take up the time of the people here.

You do have a serious problem. Ask your family medical doctor to refer you to a good mental health professional.
 
Thank you all, I'm just wondering of initial symptoms and if it can happen in proximal muscles( midline muscles). But what you have given me is enough, if you'd like to answer please do if not thank you for your time you've been very helpful. Thank you thank you, you don't know how much you've helped me thank you so much
 
I want to know more information

Hi, I came here because I wanted to find out more information on als. I read the stickies and everything and i still feel like I don't really know much. I wanted to know what it feels like when it first begins. My doctor said that it doesn't happen overnight while at the same time I hear all types of stories of people's first experience was a random fall they couldn't get back up from. So you see my confusion. I have asbergers so I have a hard time understanding videos cause I never know if there being sarcastic or saying something but meaning something completely different so reading is the way to go for me, I can analyze it, and from it I can pull out the best conclusion. I wanted to know what the first tell tell signs are, and if they really just happen overnight. I have tightness in my left leg and I feel weakness and have been for a little longer than a month now. so do you begin feeling subtle weakness/tightness in the beginning and it just gets worse, or is it more like you fail to do a simple task such as getting up and out of no where you just can't get up or have a very unusually difficult time doing it?
 
Re: I want to know more information

I'm not going to tell you "how it starts" both because its different for each but more to avoid giving hypochondriacs fuel.

But as to your weakness/tightness, nope, not an ALS sign.
 
Re: I want to know more information

I respect that thank you anyways
 
Re: I want to know more information

Tavoh, My son also is an aspie. So I will give this a shot. Each person presents with this disease differently. Everyones disease course is different. It is like autism.....similarities amongst the people with als or aspies but no 2 people are exactly alike.

It is honorable you are asking for information. Please remember you are asking people with limited typing ability to answer your questions. You would be best going on to als association website to learn about the disease.
 
Mod note: merged threads. Tavoh, if you could continue posting on this thread instead of starting a new one- it helps people to have all the posting history in one place.

With regards to first symptoms- it's different for everyone. However, just like coughing can mean all sorts of problems, from allergies to virus to lung problems, your leg stiffness is not immediately indicative of ALS. You need to keep working with your doctor to find out why you have the symptoms you do. The people here do not see ALS. They can't tell you what your symptoms mean though, so you need to visit someone who can examine you and help you continue looking elsewhere.

Please understand you have been given plenty of answers already. This forum is not the place to keep your focus on. A doctor or physiotherapist can answer your questions about structural reasons why you have stiffness or weakness or direct you to the correct specialist if they feel it's necessary.
 
I'm sorry sir/mam, I'm still learning how all this works. I've been to doctors but they know me to well and they think everything is anxiety and that my brain isn't good enough to tell the difference between real and what I make up because of how I am, which is infuriating. What I really wanna know is how failure comes about, like what it's like and what not. Like an example if you will
 
Tavoh, I very much understand the communication problem--I can rarely tell what a person's feelings are when they speak with me. I'll be direct with you--no BS. This is the best I can think of that might help you.

I was 18. My kids were 18, too. I taught a lot of 18s. In the military, I was surrounded by 18s. My point is that while you are a unique individual, your problems (whatever they are) are well known, and so are the solutions.

Doctors: They're really unbelievably smart and knowledgeable. They rarely explain things to you, because you (or anyone else) would not be able to understand their thinking without becoming a doctor yourself.

When you met the doc, he/she looked at you, listened a little, and had already run through a thousand possibilities in his head. He examined you without you knowing it.

I won't answer any of your questions about ALS, because it's a waste of time--you don't have ALS. You DO have a serious problem somewhere, though, probably in the area of emotions, anxiety, or some sort of psychology--perhaps your relationship with your family. I don't know. But that is where you should focus your investigation. You don't belong here--you waste our time. Worst of all, you are here at a sick people website, focusing on a terrible illness. That's a problem because "you become what you focus on."
 
Thank you for your time in writing that Mike, thank you very much. I understand. But what do you mean you were 18 and so we're your kids? i hear that and think that you and your kids were all diagnosed at 18
 
Tavoh- Mike means he knows what it's like to be 18 years of age too.

Please understand you do not belong on this forum. That means that if you persist in asking questions instead of seeking medical care in person, you will be asked to leave the forum permanently. There is nothing the people here can do with regards to your worries about your symptoms because this place is for people who have been diagnosed with ALS.

While I will not state your symptoms are due to anxiety, it is anxiety that brought you to this forum. And it is anxiety that keeps your here well past what is reasonable. Your physical symptoms must be of worry to you. But the people here are not worried that it is ALS. So you must seek answers elsewhere.
 
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