berardmr
Member
- Joined
- Aug 28, 2017
- Messages
- 16
- Reason
- Learn about ALS
- Country
- US
- State
- Florida
- City
- Ft. Myers
Hello,
I am posting regarding my 62 year old husband, who is a newly-retired law enforcement officer.
About five months ago, Dale noticed that he was losing weight without trying. His caloric intake was high. The weight kept falling off and our Primary Care doctor became concerned and ordered a barrage of tests, to include several MRIs, including the brain, full spine, upper and lower torso with dye (some of these may have been CT scans). She ordered a slew of blood tests and my husband had a colonoscopy and endoscopy. Everything came back clean.
We were in the process of selling our home and retiring to Florida. We just arrived here about 6 weeks ago. A doctor from Johns Hopkins recommended a neurologist in our area and he ran some more blood tests and said he is also baffled as to a diagnosis. He is performing an EMG on my husband and then wants us to go to Mayo Clinic in Jacksonville.
In addition to a weight loss of 40+ pounds (from 249 to 208), my husbands has lost a good bit of strength in his arms, hands and legs. He is very unsteady when getting out of bed or up from a sofa and he's fallen several times during these attempts. He eats and walks slowly. I am heartbroken to see this happening to my husband and my worst fear is ALS.
I read the sticky note and now know that an EMG will be helpful in a diagnosis.
I am beside myself with worry and I barely can eat or sleep. I cry most of the day. Not knowing and waiting is the hardest part.
Do these symptoms sound like ALS? So many other medical explanations have been ruled out and, of course, I fear the worst.
Dale is my world. I appreciate any input from this forum.
Thank you,
Michelle
I am posting regarding my 62 year old husband, who is a newly-retired law enforcement officer.
About five months ago, Dale noticed that he was losing weight without trying. His caloric intake was high. The weight kept falling off and our Primary Care doctor became concerned and ordered a barrage of tests, to include several MRIs, including the brain, full spine, upper and lower torso with dye (some of these may have been CT scans). She ordered a slew of blood tests and my husband had a colonoscopy and endoscopy. Everything came back clean.
We were in the process of selling our home and retiring to Florida. We just arrived here about 6 weeks ago. A doctor from Johns Hopkins recommended a neurologist in our area and he ran some more blood tests and said he is also baffled as to a diagnosis. He is performing an EMG on my husband and then wants us to go to Mayo Clinic in Jacksonville.
In addition to a weight loss of 40+ pounds (from 249 to 208), my husbands has lost a good bit of strength in his arms, hands and legs. He is very unsteady when getting out of bed or up from a sofa and he's fallen several times during these attempts. He eats and walks slowly. I am heartbroken to see this happening to my husband and my worst fear is ALS.
I read the sticky note and now know that an EMG will be helpful in a diagnosis.
I am beside myself with worry and I barely can eat or sleep. I cry most of the day. Not knowing and waiting is the hardest part.
Do these symptoms sound like ALS? So many other medical explanations have been ruled out and, of course, I fear the worst.
Dale is my world. I appreciate any input from this forum.
Thank you,
Michelle